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Re: Is anyone using physical stents to keep the airway open?
Posted: Thu Jul 05, 2018 5:37 pm
by nikkwong
jnk... wrote: ↑Thu Jul 05, 2018 5:27 pm
Didn't you report a month or so ago that you got a zero AHI with MAD and CPAP?
viewtopic.php?f=1&t=171596&p=1251630#p1251630
If so, your residual tiredness issues from that point forward would likely relate to health issues beyond OSA.
The usual sleep and airway sensitivities that often accompany UARS would likely make a nasal stent less than tolerable for UARS phenotypes.
If, as you posted earlier, MAD helps you in conjunction with PAP as the MAD moves your tongue forward (which is at a much lower location than the nasal and upper throat area of the airway), it is unlikely that a nasal stent is the solution for you, IMO.
Wish you the best.
Very observant! Yeah, I can get the AHI down to zero with the MAD + CPAP. However, it often doesn't do a great job at making me feel rested. I was probably premature in my assessment of my condition/outcome. I always rush to be optimistic about my condition.
I do think the condition is solely breathing related, some days I get great rest and feel great. The equation to achieving that on a daily basis seems mysterious though, maybe just attributable to random chance/luck.
Thank you for the feedback on the stint. Guess I will continue to look elsewhere.
Re: Is anyone using physical stents to keep the airway open?
Posted: Thu Jul 05, 2018 5:46 pm
by jnk...
nikkwong wrote: ↑Thu Jul 05, 2018 5:37 pm
making me feel rested.
Many aspects of health and life in general relate to the subjective judgment of feeling rested.
nikkwong wrote: ↑Thu Jul 05, 2018 5:37 pm
I do think the condition is solely breathing related,
You may be right. But please don't discount the possibility that you may find more payoff pursuing other ways to improve how you feel once your AHI appears to be addressed.
Re: Is anyone using physical stents to keep the airway open?
Posted: Thu Jul 05, 2018 5:49 pm
by palerider
nikkwong wrote: ↑Thu Jul 05, 2018 3:40 pm
palerider wrote: ↑Thu Jul 05, 2018 2:32 pm
nikkwong wrote: ↑Thu Jul 05, 2018 9:58 am
I have a gut inclination towards a physical stent which could just stop the airway from collapsing at all!.
nikkwong wrote: ↑Thu Jul 05, 2018 12:19 pm
I remember a story about someone who vomited while keeping their mouth shut. He died. The safety aspect is troublesome, at least to me.
Something just doesn't add up for me here....
For example? Is there a reason everyone on this forum is so cynical?
You don't see the cognitive disconnect?
You're afraid of the (as you put it) "infinitesimally small" chance of dying if you barfed in your sleep with your lips taped, but you've got no problem shoving a tube partway down your throat? What do you think would happen if you barfed then?
"cynical"
Re: Is anyone using physical stents to keep the airway open?
Posted: Thu Jul 05, 2018 7:00 pm
by Goofproof
nikkwong wrote: ↑Thu Jul 05, 2018 3:40 pm
palerider wrote: ↑Thu Jul 05, 2018 2:32 pm
nikkwong wrote: ↑Thu Jul 05, 2018 9:58 am
Hi,
It seems like every time I hit REM the violent apneas wake me up, no matter what CPAP pressure I'm at.
I'm looking into alternative therapies, and I have a gut inclination towards a physical stent which could just stop the airway from collapsing at all! I've read about a few:
https://nastent.sevendreamers.com/en/
http://www.alaxo.com/alaxostent_eng.html
Also, most of the literature on the stents seems to be positive:
https://www.ncbi.nlm.nih.gov/pubmed/26525882
Does anyone use these? Particularly, I'm interested in a prescription in the US—or some alternative OTC item, or, even, something I can buy somewhere online. I think this + CPAP treatment may suppress my frequent arousals + wakeups.
nikkwong wrote: ↑Thu Jul 05, 2018 12:19 pm
I remember a story about someone who vomited while keeping their mouth shut. He died. The safety aspect is troublesome, at least to me. I would love a solution like this though, so I could move from a FFM to nasal mask—but, I don't know if I think it's worth the risk, no matter how infinitesimally small it might be.
Something just doesn't add up for me here....
For example? Is there a reason everyone on this forum is so cynical?
Experience Probably, in how things really work in the real world. Plenty of other things to worry over. Just don't take drugs and lie down under their influence. Jim
This is a CPAP Forum, not a Non CPAP forum, CPAP it's the Gold standard for treatment, go for the Gold!
Re: Is anyone using physical stents to keep the airway open?
Posted: Thu Jul 05, 2018 8:30 pm
by LSAT
nikkwong wrote: ↑Thu Jul 05, 2018 3:40 pm
palerider wrote: ↑Thu Jul 05, 2018 2:32 pm
nikkwong wrote: ↑Thu Jul 05, 2018 9:58 am
Hi,
It seems like every time I hit REM the violent apneas wake me up, no matter what CPAP pressure I'm at.
I'm looking into alternative therapies, and I have a gut inclination towards a physical stent which could just stop the airway from collapsing at all! I've read about a few:
https://nastent.sevendreamers.com/en/
http://www.alaxo.com/alaxostent_eng.html
Also, most of the literature on the stents seems to be positive:
https://www.ncbi.nlm.nih.gov/pubmed/26525882
Does anyone use these? Particularly, I'm interested in a prescription in the US—or some alternative OTC item, or, even, something I can buy somewhere online. I think this + CPAP treatment may suppress my frequent arousals + wakeups.
nikkwong wrote: ↑Thu Jul 05, 2018 12:19 pm
I remember a story about someone who vomited while keeping their mouth shut. He died. The safety aspect is troublesome, at least to me. I would love a solution like this though, so I could move from a FFM to nasal mask—but, I don't know if I think it's worth the risk, no matter how infinitesimally small it might be.
Something just doesn't add up for me here....
For example? Is there a reason everyone on this forum is so cynical?
3 people have answered you
Re: Is anyone using physical stents to keep the airway open?
Posted: Thu Jul 05, 2018 9:22 pm
by Goofproof
nikkwong wrote: ↑Thu Jul 05, 2018 9:58 am
I'm looking into alternative therapies, and I have a gut inclination towards a physical stent which could just stop the airway from collapsing at all! I've read about a few:
Also, most of the literature on the stents seems to be positive:
If you really feel it in your gut, you've pushed the tube in too far!
I would think if I was trying to sell a idea or product, I would only write positive things about the subject, I wouldn't want to shoot down my chances to profit, by writing or selling. Jim.
Re: Is anyone using physical stents to keep the airway open?
Posted: Fri Jul 06, 2018 8:47 am
by yrnkrn
The stent go just beyond the soft palate, will not help with lower obstruction location, such as tounge.
Would not work better than properly titrated CPAP.
Could be useful for people whose obstruction is the soft palate.
edit: found this endoscopy video
https://youtu.be/rZNG7TQpDkY showing soft palate obstruction how the AlaxoStent keeps it open.
Note the videos are five years old and we haven't heard about AlaxoStent much, which is saying something about its success.
Regardless, the video is interesting to watch.