REALLY need help with sleep study results!!! UARS?

I saw my PCP yesterday. She told me that she had never seen such poor sleep and has no idea how I function. Just barely...

However, I have ZERO apnea and little hypopnea. I was in bed for 8 hours in the sleep lab, but got only 4 hours of sleep. In that 4 hours I had 39 arousals, which totaled 162 minutes of awake time and it took me a full hour to fall asleep initially. I also had significant periodic limb movements, but those did not always cause arousals. I also had no stage 4 sleep and only 11 minutes of REM.

I was very upset, as I had already decided to embrace CPAP and was dying to feel better even if I had a rough adjustment to it.

Does this sound like UARS? I have a lot of the other issues that go along with UARS - low blood pressure, migraines, Raynaud's syndrome, dizziness.

She suggested that I sleep with a body pillow, which I will do. She also referred me to a sleep neurologist, whom I will see in a few weeks.

Is UARS treated with CPAP? I really don't want a dental appliance because I have a very prominent jaw and don't want it pulled any more forward. I've read that insurance doesn't like to pay for CPAP for UARS, so I'm prepared to pay for it myself. I'm so desperate that it would be money well spent.

Does anyone have any ideas? I would really appreciate any input.

Thanks!!!

Yes, UARS is treated with cpap. It's a bit more difficult to gauge effectiveness because none of the typical markers work for UARS patients (like AHI since don't really have an AHI that needs work).
UARS patients have to go by how they feel and that's so subjective and often other conditions are present that will also be part of the "not feeling so good thing"..

We do have a few UARS patients on this forum and there have been a few discussions about it. It you have the time use the forum search "UARS" and sort through the hits.

Insurance companies aren't normally considering cpap therapy for UARS yet...it's usually a struggle because of the criteria for meeting requirements for cpap to be covered. UARS people don't meet the criteria.
You can try but you may have to be prepared to foot the bill yourself.
You won't have the usual markers that we look for to evaluate therapy except maybe leak control. Your AHI will be great and using APAP mode may or may not work well unless your flow limitations are enough to drive the pressure up.

If you decide to go the cpap route to see if it helps.
This is the machine I would suggest getting...and it has to be the "for Her" model because only the "for Her" model has a second APAP mode designed to maybe help with what might be UARS...it's not official and it's in its infancy but this is the machine I would want to at least try as from what I have read about UARS and patients being extremely sensitive...and what this machine does in the "for Her" apap mode...it's what I would try.
https://www.cpap.com/productpage/resmed ... idair.html
You can google this machine and read what Resmed says.
Now will it help you? I have no idea but if someone is going to try cpap anyway..try the machine that is the latest and has something available that might help.
It will also flag RERA...Respiratory Event Related Arousals...which may be what UARS does...no guarantees but it's about the best we have available right now.

I have a similar issue:

FYI:
In situations like this it is important to be working with a Board Certified Sleep Disorders Physician. A doctor with these credentials will know ways to get you approved for Positive Pressure therapy. It is often just them knowing what coding to use and how to word the report. This can make the difference between you getting treated or not.

Thanks very much for your replies and for the machine recommendation. The doctor I'm seeing is board certified in sleep medicine, so it's good to know that I at least have a chance of getting insurance to pay for CPAP.