Scared and FREAKED OUT about my Bipap AutoSV advanced

Sawinglogz the only way to beat him is to bombard him with the FACTS!
Doing anything else would be pointless as he is firmly backed by his boss the doc who will not hear a single bad word said against him, besides I have no witnesses and I am sure that he would deny ever having said a word.

Throwing facts at him really seems to throw him off balance, as it catches him off guard, then he backs off for a while. He tends to target women more than men.Men he treats as mates. I shall be seeing him again in a couple of months, it would please me to be prepared. I am not sure how though??

JBF
Thank you, I now understand and appreciate that I must be patient, however I can only be patient once I have mastered the settings side of things, making sure my settings are as close to correct as I can get them for me. Without understanding that can be difficult, however thanks to the forum,I think I am very slowly beginning to break the back of it now. Slowly but surely, I am beginning to get it!!

How to fight the sleep tech with hard facts re the auto asv to prove he was talking nonsense,I am still not sure how I will able to do that. Possibly there are no hard facts out there, to prove him wrong. Perhaps the machine/technology is still too new.

There are a lot of studies that show ASV technology is the most effective therapy for central sleep apnea. Look for Rested Gal's post on central sleep apnea links. I will post some pointers in a bit.

sleepinglass, Thanks for the nice things you said.

However, there I one a big caveat to my ASV endorsement... I usually throw it in as boiler plate at the end of my ASV posts as a basic caution, however I forgot to this time. Anyway, it goes like this: It is generally recognized that people with ongoing heart disorders, including post-heart attack patients AND people with COPD or other serious pulmonary diseases be supervised very carefully under a doctor's care if they intend to pursue ASV. This is what I've read in the current medical literature and I feel it is absolutely necessary to include at this point in the discussion.

Rested Gal's Central apnea links...I had them saved so easy to find.
viewtopic.php?f=1&t=3025&st=0&sk=t&sd=a

Here's Rested Gal's Links to Central Apnea:

viewtopic.php?p=457468

Probably the clearest and best research article is:

Efficacy of Adaptive Servoventilation in Treatment of Complex and Central Sleep Apnea Syndromes
http://journal.publications.chestnet.or ... 5/1839.pdf

And if you want to wade through all the material, the following Google Scholar search might help:
http://scholar.google.com/scholar?hl=en ... leep+apnea

No. ASV technology is well understood. It has been scientifically and conclusively proven to be effective. You just happened to have run across a technician that's an absolute idiot.

sleepinglass wrote:Sawinglogz the only way to beat him is to bombard him with the FACTS!
Doing anything else would be pointless as he is firmly backed by his boss the doc who will not hear a single bad word said against him, besides I have no witnesses and I am sure that he would deny ever having said a word.

I don't know how the medical profession works where you are, but around here, you can't be a respiratory therapist without a formal certification. And those certifying bodies take a keen interest when a patient is sufficiently upset with someone to file a complaint.

Think of it as going over his boss's head.

Your report might not cause something to happen. But it might. And if you're the second to report something like this, something might very well happen.

Don't try to hurt the tech--he's no doubt trying to help and at least is willing to give his opinion (many won't)--but I think he's wrong. I use the AutoSV and it does not "breath for you." At most, it gives a slight "nudge." If anything, that should help your brain/body reestablish the right breathing patterns. Most people will not benefit from the technology; but, those who do should use it.

Sir NoddingOff thank you for that caution, well said.
I am of the belief that ANYBODY who tinkers should most definitively take into account their own medical conditions.

Certainly, if I had any of the conditions that you mention in your last post,tinkering or fine tuning my machine, as I prefer to call it, would most definitively be
OUT OF THE QUESTION!

People using this forum need to exercise common sense and if in doubt,or should there be even the remotest possibility, that they may have something lacking, in the common sense DEPARTMENT, then they should most definitively NOT ALTER a single thing on their machine, without running it by their doc first. Otherwise instead for helping themselves,they could well end up making themselves even more seriously sick, than they are already.

Wow Pygsy JBF lots of lovely food for thought!

I cannot wait to sink my teeth into all that lovely information.

This is exaclty the kind of 'amo' I need.

Thanks A million! You have made my day! I am veeerrrryyy happy!!!

Curious2 wrote:Don't try to hurt the tech--he's no doubt trying to help and at least is willing to give his opinion (many won't)--but I think he's wrong. I use the AutoSV and it does not "breath for you." At most, it gives a slight "nudge." If anything, that should help your brain/body reestablish the right breathing patterns. Most people will not benefit from the technology; but, those who do should use it.

Any technician who "believes" this failed his certification exam or he took it so long ago he is badly out of date and forgotten most of what he learned. "Help" like that is the LAST thing a patient needs.

I understand newborns who are put on ventilators sometimes never "learn" to breathe on their own. My niece worked with ICU newborns, and they had to learn a lot of processes to limit ventilator time to make the newborns learn to breathe.

I don't think the same thing happens to adults, and it certainly doesn't happen from spending 8-12 hours a day on ASV.

Also ASV/bilevel/CPAP doesn't spend that much time in "ventilator" mode. They apply reasonably constant pressure to keep your airway open and your own lungs have to breathe in and out.

However, if someone did have a progressive neurological disease, they might progress from needing ASV when sleeping to needing full time ventilation. It might look to some people like the ASV/CPAP caused this, but I think that's not true.

I don't think the idea is completely idiotic, just wrong.

Whoa! That tech needs to keep his/her mouth shut unless they really know what they're talking about. If you just "heard it from a guy", then best not to pass on this information to patients.

This scenario seems highly unlikely. Mostly because of what others have stated: you spent all day breathing on your own. Your muscles are not going to atrophy. Besides, if ASV caused this problem, it would have long gone into the waste bin of medical history.

For me, I've seen the exact opposite since I started ASV two months ago. My breathing has changed and improved in order to preempt the machine. For the first few weeks, I would frequently be woken up by the machine stepping in and delivering high pressures. But by now my breath rate has increased by about five breaths a minute in order to stay ahead of the machine. And when I do have centrals, I automatically take a breath just before the machine would have jumped in. It's a remarkable thing to see the data.

Just my two cents. I also don't know definitively, so I include this disclaimer instead of keeping my OWN trap shut.