back on track with therapy

thank you everyone who has shown me support and has given me masks i am really thankful to the great people here i am using my machine nightly now and feeling better sleeping with it i am finely back on track i am truely thankful to this fourm and its users

Great to hear! Thanks for following up, good to hear some positives!

So happy to hear this. Keep up the good work!

Ford (forgot your first name) Do you know by any chance or have experience with the "Insufflation Exsufflation Cough Assist" device? I need to help my sister's 12 yrs old granddaughter who has a Down syndrome and needs encouragement to get the mucus out of her throat. She does not talk. Only whispers. Had tracheostomy but stopped using the cannula. Is there another way to cause her to cough without the device?

avi123 i to have issues with mucus build up in my throat and lungs i am to weak to cough it up i have a suction machine
i use to suction out my lungs and throat so i can breath better you can buy suction machines on amazon and ebay i got mine
on ebay for 147 dollers a few months ago brand new in the package it comes with the machine canister and tubing you need to buy suction catheters separately i use 14 fr whistle tip catheters myself i do not have Experience with the cough assist device here are the links to the machine http://www.ebay.com/itm/Roscoe-Medical- ... 53fa77af87
and the link to the caths

http://www.ebay.com/sch/i.html?_odkw=su ... r&_sacat=0

fordjx4000 wrote:avi123 i to have issues with mucus build up in my throat and lungs i am to weak to cough it up i have a suction machine
i use to suction out my lungs and throat so i can breath better you can buy suction machines on amazon and ebay i got mine
on ebay for 147 dollers a few months ago brand new in the package it comes with the machine canister and tubing you need to buy suction catheters separately i use 14 fr whistle tip catheters myself i do not have Experience with the cough assist device here are the links to the machine http://www.ebay.com/itm/Roscoe-Medical- ... 53fa77af87
and the link to the caths

http://www.ebay.com/sch/i.html?_odkw=su ... r&_sacat=0

Reply,

Thanks, let me find out from my sister about using the suction device.

Wow, you seem to be a real survivor, Chantilly. I like that a lot. From time to time, you'll have your ups and downs like the rest of us, but with your communication skills and attitude I think you will do well. Keep up the good work and then, most importantly, help inspire others by sharing your advice.

Chantilly, you are an inspiration! Keep up the good work as good cpap therapy and restful sleep can only make you feel better in many other ways. Which masks have you tried ?

swift fx a hybrid mask and the mirage quttro i like them all im alternating between masks every night

Chantilly, how is the suction done on you, does the catheter go thru the tracheostomy, mouth or nose? The catheter does not go into your lungs, am I correct?

Chantilly, Please don't reply!

Chantilly, my sister wrote that the Suction Machine would be too invasive for her granddaughter, age 12, with the Down syndrome at this point. They used such machine during last year when she was rehabilitated at Alyn* in Jerusalem when it was done thru the tracheostomy tube. Now she is back home and they see her often full of mucus and trying to cough it up. She has a finger oximeter which is set to alarm when the oxygen saturation falls below 84%. I assume that it is used to wake her up and then by breathing while awake it would raise the saturation level automatically. Am I correct?


http://www.alyn.org/

"ALYN treats children with a wide range of congenital and acquired conditions including cerebral palsy, neuromuscular diseases, spinal cord injuries, brain injuries, burns, terror and motor vehicle accident victims. ALYN- leading the field of Pediatric Rehabilitation."