I'm sad ....

Why? After three months of CPAP. more leg pain, shoulder, much anxiety, improved at a sleepy, but my mood has worsened. Why? I'm sad, because AHI is perfect, must have more patience? please advice for me... thx

greetings from italy

Giuseppe

Hi Giuseppe, i just checked back on your previous thread (viewtopic.php?f=1&t=51950&st=0&sk=t&sd=a&start=15), and a few things were mentioned there.

Are your leaks better?

Are you perhaps mouth breathing/mouth leaking? Do you wake up with a very dry mouth?

On your graph from 9/5 you still had a lot of snores (VR). For some this is not a problem, but maybe for you, your pressure is not high enough.
Do you sleep on your back most of the night?

Sorry I don't speak italian!

this is with CPAP 16



this is with CPAP 15

Giuseppe,

It looks like you are still having trouble with large leaks. If you are still using a nasal mask, it's time to buy a full-face mask. I'm guessing you're not getting therapy because your large-leaks are still out of control. It looks like you're still using the nasal mask but have tried tightening or rearranging your headgear. That seems to be working for you at the beginning of the night, but when your face finally relaxes late at night, large leaks start again. Please - please please... Consider getting a full face mask.

You may need to talk with your respiratory therapist or sleep doctor about the best full-face mask available in your area.
Again - the quattro and the ultra mirage full-face are the most popular in the US. There may be something equivalent in Italy.

Good luck.

In addition to the large leaks you should also note that it can often take many months (not just three) for your body to adjust to CPAP therapy. And during that adjustment time, it is not unusual for problems to continue.

But do talk with your medical team about the leaks. Also talk with your team about continued depression. I certainly hope that your depression will decrease with time.

Best wishes as you continue forward!

Hello Giuseppe,

I would not put too much faith in the data from your CPAP machine. I also had good AHI at times and felt lousy. I see these possible reasons why you feel lousy:

1. You are waking up many times each night because having difficutly adapting to CPAP. This is expected because you have such high pressure 16. If you have very fragmented sleep you are not achieving proper sleep cycles of REM non REM and most IMPORTANT DELTA sleep. Your breathing may not have stopped but you still got crapola sleep. Crapola is Italian for crappy if you did not already know this!!

2. You possibly still have apneas even though the data says otherwise. Are you using a Oximeter to check your oxygen level. THIS IS THE MOST IMPORTANT TOOL FOR KNOWING IF YOUR CPAP TREATMENT IS EFFECTIVE! Please google CMS 50E Oximeter and purchase one (or something equivilent) if you have not already.

3. If it's possible your tongue is blocking your airway and contributing to your apnea - DO NOT SLEEP ON YOUR BACK! Put on one those fanny packs, wear it high on your back, and fill it with a child's size soccer ball (or football in Europe). My experience is CPAP does a crapola job of moving your tongue out of the way if it's interfering with your airway.

You might be able to lower your pressure and get better rest. However, I would not advise doing this until you have the Oximeter to give you direct feedback about your O2 level's. You lower your CPAP from 16 to 15 and see next morning how your oxygent level looks. If ok then lower some more. Obviously, leaks become easier to control with lower pressure.

Ciao, Tom

this is my last polysomnography with CPAP.
I apologize, it's Italian, can you explain what is saturation?
I live in southern Italy, my doctor is in Milan, northern Italy, not easy answers.
Thanks to all.

Giuseppe



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popotti wrote: can you explain what is saturation?

Saturation in this context means the amount of oxygen in your blood. Using an oximeter at home during the night would let you check to see if your oxygen levels are still dropping while you are using your cpap. You can buy one to use on your own if you want. However, your doctor might be able to order the test for one night so you don't have to buy the meter.

But saturation SpO2 94 is good?

thanks

If your awake SP02 is 94% (SPO2 basale?) and you have 94% at night, then that's OK. But during the sleep study you went down to 80%, that's bad.

However I would say day-time / awake/ basale SPO2 of 94% is not that good. Did they do any lung function testing? Do you have COPD / emphysema (http://it.wikipedia.org/wiki/Broncopneu ... ostruttiva) ?

with musk fullface, this is my nithgmare



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Are you saying you tried a full face mask and got a bad report? Is it not possible that the mask was just the wrong one for you, or maybe the wrong size? There are many full face masks available - which one did you try? OR, are you saying that the idea of using any FF mask is a nightmare? Have you looked on Cpap.com to see the different types such as Quattro, Ultra Mirage or Hybrid? They are all very popular.

[quote = "Julie"] Sta dicendo che si è tentato una maschera sul viso, ma ho un cattivo rapporto? Non è possibile che la maschera è stata solo quella sbagliata per te, o forse la dimensione che non va? Ci sono molte maschere disponibili - quale hai provato? O, stai dicendo che la [/ i] del ricorso ad una maschera di FF è un incubo? Hai guardato su Cpap.com per vedere i diversi tipi, come Quattro, Ultra Mirage o ibrida? Sono tutti molto popolari. [/ Quote]

used FLEXFIT 431 small,

Did they have your legs wired during the titration study, or did your report make any mention of limb movements? I ask that because you mentioned leg and shoulder pain, and sometimes there can be limb movement problems in addition to the sleep apnea. But for some the soreness can come from sleeping longer in the same position or sleeping in an unnatural position to accomodate the cpap. Agree with others to make sure you are not mouth breathing. How much sleep are you getting, and is it solid or broken?

Giuseppe

According to the data your snoring is terrible --- do not sleep on your back. Sleep only on your side or stomach. Wear a back pack to keep you from rolling over on your back. See how you feel if you do not sleep on your back. Possibly you can use less air pressure if you sleep on your side.

Again, purchase a oximeter to see what is happening to your oxygen levels during sleep. Here is a link to what I bought. You should be able to find the same in Italy. http://www.semedicalsupply.com/cms-50e.htm