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- secret agent girl
- Posts: 574
- Joined: Tue Nov 10, 2009 2:15 pm
- newhosehead
- Posts: 319
- Joined: Sat Dec 26, 2009 5:48 pm
Re: Spoons before and after PAP
Thank you for posting this. I had never read it and I am so glad I have. It is something I will not forget.
Equipment: PR System One REMstar Pro CPAP
Pressure Settings: 12 cwp
Mask: Full Face Mirage Quattro
Pressure Settings: 12 cwp
Mask: Full Face Mirage Quattro
Re: Spoons before and after PAP
What am I missing? I don't see a link...
Re: Spoons before and after PAP
That was something. Thank You for sharing that with all of us.
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Additional Comments: She wasn't what you would call refined, She wasn't what you would call unrefined, She was the kind of a person who keeps a Parrot. *Mark Twain* |
Judy R.
Re: Spoons before and after PAP
Yeah. This essay periodically makes the rounds of the thyroid board where I participate. I really like it.secret agent girl wrote:Some recent threads reminded me of the spoon theory of health. If you haven't read it yet, I highly recommend it.
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Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Encore Basic Software; Pressure >7 |
Howkim
I am not a mushroom.
I am not a mushroom.
Re: Spoons before and after PAP
This one I hadn't read before. It conveys so well the difference between living life healthy or with health considerations. Thanks for sharing. Kudos to the friend who really wanted to understand. Thanks for posting.
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Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions |
My SleepDancing Video link https://www.youtube.com/watch?v=jE7WA_5c73c
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- Posts: 776
- Joined: Sat Jan 17, 2009 8:49 pm
- Location: Salt Lake City, Utah
Re: Spoons before and after PAP
I have never heard the daily stresses of trying to live with a chronic illness, described in a clearer way.
Many of forum members have conditions in addition to cpap - and many do not - The article would be of interest to everyone.
Jan
Many of forum members have conditions in addition to cpap - and many do not - The article would be of interest to everyone.
Jan
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Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Additional Comments: Began CPAP 1-16-2009, Pressure=10 cm, Mask, CMS 50Plus Oximeter |
- JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: Spoons before and after PAP
SAG, thanks for posting that. It is hard to describe. As with the authors friend, I'm afraid my wife (who is my very best friend) often flucuates between denial and acceptance, but generally does not understand. It can be a source of friction for us. Not that she does not care or try to understand. It's a good way to explain any chronic illness.
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Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O |
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
- secret agent girl
- Posts: 574
- Joined: Tue Nov 10, 2009 2:15 pm
- secret agent girl
- Posts: 574
- Joined: Tue Nov 10, 2009 2:15 pm
- BlackSpinner
- Posts: 9742
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: Spoons before and after PAP
I now have a drawer full of beautiful spoons, including a couple dipped in chocolate.
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Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: Spoons before and after PAP
Yes, I have all the spoons I could want.
- JohnBFisher
- Posts: 3821
- Joined: Wed Oct 14, 2009 6:33 am
Re: Spoons before and after PAP
Depends on the night, of course. Last night I had all sorts of problems with cramping. Go figure. As you might guess, I ran out of steam much earlier. And I still have a full plate I need to complete tonight. Sigh!secret agent girl wrote:So how many more spoons has pap treatment given you A few more Doubled 'em
(Thus far, I feel like I have a couple less, but am hopeful of seeing that change.)
But when sleep goes well, I go from almost none (without my ASV unit) to a full handful. The difference in my ability to think, concentrate and articulate my thoughts is nothing short of astounding.
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Mask: Quattro™ FX Full Face CPAP Mask with Headgear |
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O |
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński