OT: Slinky will like this

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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roster
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OT: Slinky will like this

Post by roster » Fri Nov 14, 2008 1:26 pm

Rooster
I have a vision that we will figure out an easy way to ensure that children develop wide, deep, healthy and attractive jaws and then obstructive sleep apnea becomes an obscure bit of history.https://www.youtube.com/watch?v=0ycw4uaX ... re=related

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dsm
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Re: OT: Slinky will like this

Post by dsm » Fri Nov 14, 2008 3:50 pm

Rooster,

Gives a whole new meaning to 'Slinky' - very imaginative

DSM

PS what do you do in your real spare time
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Re: OT: Slinky will like this

Post by roster » Fri Nov 14, 2008 4:08 pm

dsm wrote:..........

PS what do you do in your real spare time
Well here is one thing I will see next week: http://www.australiamovie.com/.

But it looks like it is a chick flick and I don't like chick flicks.

But give me a grown meaty chicken and ......
Rooster
I have a vision that we will figure out an easy way to ensure that children develop wide, deep, healthy and attractive jaws and then obstructive sleep apnea becomes an obscure bit of history.https://www.youtube.com/watch?v=0ycw4uaX ... re=related

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Re: OT: Slinky will like this

Post by Slinky » Fri Nov 14, 2008 4:35 pm

Awww,now, Rooster. Whud ya have to go and do that fer?? I've got slow speed dial up out here in the boonies! I did have a good laugh tho, after it finally got loaded. Tanks for tinking uv me.

By the way, I said to h*ll w/the doctors last night, put my VPAP back in auto mode and slept like a dream and felt great this AM.

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Re: OT: Slinky will like this

Post by dsm » Fri Nov 14, 2008 4:43 pm

Slinky,

Pleased to hear you are back in control

D
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Re: OT: Slinky will like this

Post by Slinky » Fri Nov 14, 2008 7:28 pm

Thanks, DSM. And by the way, nice photo of you. Very pleasant smile!

It STILL bugs me WHAT adjustment will eliminate that "puff" in Spontaneous mode!! No way anyone can convince me that Spontaneous mode can't be every bit as smooth and easy as auto mode w/this VPAP Auto and the EasyBreathe technology. Once I get caught up on some decent sleep again I'm gonna try the options one at a time for a week at a time. It may take me forever and a day to go thru them all at one week at a time but .... I'm pouring thru the Clinician's Manual already plotting which option seems the most likely "culprit".

Dang medical profession!

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Re: OT: Slinky will like this

Post by Snoredog » Fri Nov 14, 2008 7:32 pm

Slinky wrote:Thanks, DSM. And by the way, nice photo of you. Very pleasant smile!

It STILL bugs me WHAT adjustment will eliminate that "puff" in Spontaneous mode!! No way anyone can convince me that Spontaneous mode can't be every bit as smooth and easy as auto mode w/this VPAP Auto and the EasyBreathe technology. Once I get caught up on some decent sleep again I'm gonna try the options one at a time for a week at a time. It may take me forever and a day to go thru them all at one week at a time but .... I'm pouring thru the Clinician's Manual already plotting which option seems the most likely "culprit".

Dang medical profession!
you tell em Slink!!

LOL LOL LOL all them post-it pad slinkies reminding you of those Rescan reports?
someday science will catch up to what I'm saying...

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Re: OT: Slinky will like this

Post by Slinky » Fri Nov 14, 2008 7:37 pm

YOU are irrepressable (is that a word?), SnoreDog.

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Re: OT: Slinky will like this

Post by jnk » Fri Nov 14, 2008 7:47 pm

Slinky wrote:. . . No way anyone can convince me that Spontaneous mode can't be every bit as smooth and easy as auto mode w/this VPAP Auto and the EasyBreathe technology. . . .
Slinky,

You can always run your straight bilevel numbers, but do so in VAuto mode, if you prefer the feel of VAuto mode. Just program in your epap number as Min EPAP and your ipap number as Max IPAP and make the PS (pressure support) the difference between those two numbers. For example if you want it to be 16/12, put 16 as Max IPAP, 12 as Min EPAP, and 4 as PS (since 16 minus 12 is 4). Although you will be in VAuto mode, you will keep the machine from doing anything automatically. You will be getting regular bilevel but with the feel of VAuto mode.

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Re: OT: Slinky will like this

Post by Slinky » Fri Nov 14, 2008 10:50 pm

Yup, yup, thass whut I'm doin' and its workin' GREAT! Smooth an' easy breathin' AND SLEEP! Restful sleep last night. Brilliant minds think alike, jnk.

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Re: OT: Slinky will like this

Post by jnk » Sat Nov 15, 2008 8:36 am

Slinky wrote:Yup, yup, thass whut I'm doin' and its workin' GREAT! Smooth an' easy breathin' AND SLEEP! Restful sleep last night. Brilliant minds think alike, jnk.
Well, I don't know how brilliant THIS mind is, because I am doing something with my machine that seems completely illogical but is working for me anyway.

A few nights ago, I got a BUNCH of apneas, more than two an hour. I hadn't changed a thing and hadn't done anything out of the ordinary that day before. So I thought about how much better I had been feeling, how it was pretty much the end of allergy season, and how the tech that titrated me actually recommended only two cm between ipap and epap (which is out of protocol, these days). Then I mixed all those thoughts up in my mind and decided to lower my min epap to 7 and change my pressure support to 2, just for an experiment. (I had been running min epap at 10 and pressure support at 4.) I have now had three nights in a row with the best sleep I've had yet on PAP therapy. My AHI has been around 5 (on a ResMed, mind you). My machine has been 95ing around 12/10, but staying at 9/7 most of the night until the last few hours. I don't know what it means or why lowering my pressure is giving me better numbers, but I'm keeping it there for a while.

Glad you're getting good sleep too.

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Re: OT: Slinky will like this

Post by Slinky » Sat Nov 15, 2008 9:22 am

Well, just as an experiment I blended the Mayo and local IPAP and EPAP settings for a starter. I set IPAP at 13 and EPAP at 5 and after debataing a bit opted to go w/the Default Pressure Support of 4. I'm catching up on sleep 'cause I slept 8 1/2 hours night before last and 9 1/2 hours last night w/one potty trip each night. AND I felt GREAT when waking up! And good all day yesterday. I don't EVER remember feeling GREAT when waking up! Not ever.We'll see what a week's worth of data reveals and reset the pressures accordingly. So far it is looking like the locals were more accurate than Mayo. Mayo had come up w/IPAP 10, EPAP 5 whereas the locals had come up w/IPAP 13, EPAP 8

Median 8.4, 95th Percentile 10.2, Maxium 10.8 last night w/Calculated Pressures 12.2 and 8.2.
And Median 7.8, 95th Percentile 9.6 and Maximum 10.6 night before last w/Calculated Pressures 11.6 and 7.6.

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Women are Angels. And when someone breaks our wings, we simply continue to fly.....on a broomstick. We are flexible like that.
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Re: OT: Slinky will like this

Post by jnk » Sat Nov 15, 2008 10:08 am

Slinky wrote:Well, just as an experiment I blended the Mayo and local IPAP and EPAP settings for a starter. I set IPAP at 13 and EPAP at 5 and after debataing a bit opted to go w/the Default Pressure Support of 4. I'm catching up on sleep 'cause I slept 8 1/2 hours night before last and 9 1/2 hours last night w/one potty trip each night. AND I felt GREAT when waking up! And good all day yesterday. I don't EVER remember feeling GREAT when waking up! Not ever.We'll see what a week's worth of data reveals and reset the pressures accordingly. So far it is looking like the locals were more accurate than Mayo. Mayo had come up w/IPAP 10, EPAP 5 whereas the locals had come up w/IPAP 13, EPAP 8

Median 8.4, 95th Percentile 10.2, Maxium 10.8 last night w/Calculated Pressures 12.2 and 8.2.
And Median 7.8, 95th Percentile 9.6 and Maximum 10.6 night before last w/Calculated Pressures 11.6 and 7.6.
If I were you and using VAuto mode, I think I would change the pressure support to 5, since a distance of 5 between ipap and epap is the one thing the locals and Mayo agreed on. That might be the most important number for you, since it involves the amount of air being moved with each breath. To my mind, Min EPAP-5 (if that's enough pressure to fall asleep to), Max IPAP-13, and PS-5. That way, you'll start out the night at 10/5, but the machine can move toward 13/8 when and if you need it. All the while, programmed with those numbers, the machine will make sure there is always 5 cm distance between the inhale pressure and the exhale pressure you experience at any given time, because that's the way ResMed auto bi-level works.

Just a thought.

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Re: OT: Slinky will like this

Post by Slinky » Sat Nov 15, 2008 11:24 am

Doggone it, jnk, I TOLD you brilliant minds think alike! The ONLY reason I didn't set Pressure Support at 5 is because the locals either set it at 4 or 4 is the Default and I was relying on that or that the Default might adjust itself according to the spread between IPAP and EPAP. I'll let it ride at 4 to finish out a week and then will be changing Pressure Support to 5 depending on how things go. Just out of curiosity if nothing else once I get in a week of some decent sleep. I need this decent sleep to recoup!!! I haven't had any since switching to Sponateous mode. Mumble, grumble, doggone doctors, issue orders when there's noone w/any sense to back them up, like the DME's RT. Medical "professionals", sleep "professionals" my arse!

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Women are Angels. And when someone breaks our wings, we simply continue to fly.....on a broomstick. We are flexible like that.
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dsm
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Re: OT: Slinky will like this

Post by dsm » Sat Nov 15, 2008 3:14 pm

JNK & Slinky,

Very interesting settings - certainly different & great to hear that those experiments are working so well.

Tks for the info

DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)