so many questions!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
new-to-cpap

so many questions!

Post by new-to-cpap » Tue Nov 04, 2008 5:54 pm

Hey everyone.
My mom just received her first CPAP machine after being diagnosed with sleep apnea. I was very relieved to find this website as we have no clue what we're doing! She is on medicaid and always has a hard time getting in touch with her doctors. Someone came and set up the machine for her, and briefly explained it, but she has a hard time remembering things or following technology and can't remember anything he said. She has a lot of anxiety, and is having a very difficult time adjusting to this new set up. I had her try it out today and she said it is too high of a pressure and it kind of hurts and makes her feel like she is going to suffocate. I tried it out to see what she meant and I found the pressure too high as well, though I don't have any breathing problems. Can you modify the settings, or do they have it set up to a specific "prescription" of settings which are best for her therapy? Would any of you mind corresponding with me for a while to help me work out the kinks for her? I'm not sure how often I can check back here, but my email is cmcrice@gmail.com and would be extremely grateful for any help, even just moral support! Thank you all very much for reading this, and best of luck to you all!
Christine

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GumbyCT
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Re: so many questions!

Post by GumbyCT » Tue Nov 04, 2008 6:07 pm

Memory Problems are associated with sleep apnea. This is a lifestyle change with a steep learning curve but can help to improve her health. I would suggest you help her by reading and searching here, there is just sooo much info it is overwhelming to many. Esp. when the memory is affected. Have her write things down if she can. Just try to be gentle as too much can be a turn off.

Start by going to your User Control Panel (upper left) when you are logged on and adding the correct equipment "in text" - avoid using those icons as they all look the same.

Take it one day at a time but there is more to learn.

Good Luck,
GumbyCT

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I have no doubt, how I sleep affects every waking moment.
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rested gal
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Re: so many questions!

Post by rested gal » Tue Nov 04, 2008 6:25 pm

Christine, welcome to the message board.

As Gumby mentioned, when we know the name of your mom's machine and mask, it will be easier for people to help you help her. Your mom is very lucky to have your support. You're smart to have found this message board.
ResMed S9 VPAP Auto (ASV)
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Mask: Aeiomed Headrest (deconstructed, with homemade straps
3M painters tape over mouth
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RipVW
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Re: so many questions!

Post by RipVW » Tue Nov 04, 2008 7:05 pm

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Hello & Welcome, Christine! Glad you found this forum--SO much useful info and SO many helpful people here!
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"You are getting sleepy . . ."
Check out my chinstrap--> http://cpapchinstraps.com
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