C-Flex question

Willsucceed:

I found Cflex to be a relief for me, and an aid to my comfort.

I don't think my therapy was compromised before I had a machine WITH c-flex. I'm certainly enjoying the ease of exhaling WITH Cflex turned on. I can also say that my therapy with c-flex if not compromised.

I agree with CollegeGirl's statement, and I would have said the same thing, being a 'global statement' (per your interpretation) or not.

In my experience and opinion, most readers of these posts do have an open mind in their research for answers, and would not stop questioning if they read one statement that said "absolutely"...unless they are intentionally looking for that result.

If one feels better using cflex, and their numbers don't change for the worse, then it's a good thing for them. I view its usage as comfort, which in turn adds to my therapy. Others may not. Therefore, how can you argue otherwise? It depends on what each of us feels we need. WE are the best judges of the success of our therapy, in either the "how we feel" method, or "by the numbers" method.

After all, how many sleep studies are done with c-flex? How many sleep studies does it take to come up with the numbers that WE need to tweak our cpap (pressure) for ourselves. The study is a one-night-stand, and no two may be alike.

If something is a variable, it can be considered as having no global effect on treatment. In my opinion, of course.

I just woke up, ejdischer, so I'm too "fuzzy" to go into any great learned editorial on the subject. But I use C-Flex set on 1, as per my RX. Since starting therapy, I've tried it everywhere except "off". I find 1, which is the minimal pressure relief for my machine, to be a comfortable level. My CPAP pressure is 15. In all honesty, I may try it turned off because I'm finally getting used to the higher pressure.

offerocker wrote:

In my experience and opinion, most readers of these posts do have an open mind in their research for answers, and would not stop questioning if they read one statement that said "absolutely"...unless they are intentionally looking for that result.

While I'm sure that your experience and opinion is a full and accurate assessment of how most readers think and function, I'm not nearly as worried about "most readers," as I am about those FEW readers who are so new to CPAP treatment, new to this forum and desperate for answers, that they are misinformed by posters who write anecdotal opinion as fact.

Folk like you and I who are NOT new to treatment know to look further than any one posting when we are seeking answers. We also know that there is no one answer that works for EVERYONE. Folk that are new to OSA and it's treatment are at their most vulnerable and in that anxious vulnerable state, may not seek as deeply as they should.

Regarding the topic of this thread, while C-FLEX is great for many, it is a nightmare for some. You have gone on (and on, and on) about agreeing with CollegeGirl which, of course, is fine except when personal opinion is written in a manner that implies that others will have the same experience. I'd hate to see ANY new user suffer further, or stop treatment altogether, based on having read an OPINION written as FACT.

It is really simple to phrase our statements such that they clearly state that we are talking about our personal opinion and that while something worked for us, it might not work for others. I'm not sure why you are so offended by this notion... Do you honestly believe that everyone will have the same experience that you do with C-FLEX?

My biggest problem is mouth leaks......and I'm continually experimenting with ways to conquer that difficulty.

Simple solution: full-face mask.

If the object is to supply pressurized air to a system with three holes, it's silly to only cover two of them and then to either hope the third stays closed, or to tape it shut. Just cover all three, for Pete's sake. It's pretty obvious.

That's assuming you don't have those nasty claustrophobia issues. If you do, though, they can often be overcome with time.

I have been a scuba diver for about 14 years and the C-flex feature feels very much like the regulator I am used to using while diving.
With the regulator when you breathe in you get positive air pressure that stops completely when you exhale.

Perhaps for that reason it feels quite natural to me.

WillSucceed wrote:offerocker wrote:

In my experience and opinion, most readers of these posts do have an open mind in their research for answers, and would not stop questioning if they read one statement that said "absolutely"...unless they are intentionally looking for that result.

While I'm sure that your experience and opinion is a full and accurate assessment of how most readers think and function, I'm not nearly as worried about "most readers," as I am about those FEW readers who are so new to CPAP treatment, new to this forum and desperate for answers, that they are misinformed by posters who write anecdotal opinion as fact.

Folk like you and I who are NOT new to treatment know to look further than any one posting when we are seeking answers. We also know that there is no one answer that works for EVERYONE. Folk that are new to OSA and it's treatment are at their most vulnerable and in that anxious vulnerable state, may not seek as deeply as they should.

MAYBE not EVERYONE "may not seek as deeply as they 'should', for an answer to their question(s), but if you've been around here long enough, you'd know that MANY will either ask a question without reading previous posts, THEN they'll be advised of options, etc by MANY experienced people here. There have been MANY people who have done HOURS of reading and research on their subject of concern before they ask questions. I don't know how much (many + many) equates, but it pretty well covers all but the ignorant (those who do NOT ask questions), or those only looking for the answer(s) they want.

I very much doubt that CollegeGirl's statement which offended you will be the first one that gets read. We have a 'search' option that returns all results on the interested subject. I do not intend to argue your point, but point out that you too are making a 'blanket statement'.

I expected another response from you to keep your point in tact.

WillSucceed wrote: Regarding the topic of this thread, while C-FLEX is great for many, it is a nightmare for some. You have gone on (and on, and on) about agreeing with CollegeGirl which, of course, is fine except when personal opinion is written in a manner that implies that others will have the same experience. I'd hate to see ANY new user suffer further, or stop treatment altogether, based on having read an OPINION written as FACT.

If you will RE-READ my post, I made ONE reference to CollegeGirl, stating that, I, as a human, with little or a lot cpap experience would have made the same statement as the one you are focusing on. I agree that I'd hate to see any new user suffer further, etc. However, I have more faith in people who desperately seek information. Some/many of use have learned to not even take our own doctor's STATEMENT as fact! I'm sorry for those that do, and those who also live outside of our cpap world. There are those that need that, and will continue to do so. I'd guess that you're relatively new to this forum. New people either do a lot of reading before the make a post, OR just come out and state their problem and ask for HELP.

This is a DISCUSSION FORUM, NOT a REFERENCE GUIDE supported by a medical institution.

WillSucceed wrote: It is really simple to phrase our statements such that they clearly state that we are talking about our personal opinion and that while something worked for us, it might not work for others.

Again, if you've done any reading here, there are multiple disclaimers re "In my opinion"..."I am not a doctor, etc...."
I am quoting "Sleepy Eyes": I'm not a Doctor, nor am I associated with the medical profession in any way. Any comments I make are just personal opinions. Take them or leave them. (justa don't gripe at me if ya donna like 'em!)" as an example, in case you missed that one also.

Although you are arguing about ONE SENTENCE, and I do understand your point, I believe you need to step back from this and take everything else into consideration. Yes, you may be correct, or, if you'd rather, you are correct.

WillSucceed wrote: I'm not sure why you are so offended by this notion... Do you honestly believe that everyone will have the same experience that you do with C-FLEX?

Well, now, sarcasm doesn't sit well with me, and I will do my best to refrain from returning it.
1. I am not 'offended by this notion'. You have a valid point.
2. Re my beliefs, I think you need to re-read my post.
---------------------------------------

YOU HAVE MADE YOUR POINT.

Further arguments on this subject should be moot by now, and I will not defend myself or any other previous posters further; it's not necessary, and we have limited time, which we'd rather invest in answering questions and/or offering support to people who actually are voicing personal problems with cpap,

Your statement is valid, and your point is well-taken; thank you for that observation.

I just got done looking at my last post and I don't want people to think that I am yelling . I'm not if anyone thinks that excuse me. I think I need new glasses.

Offerocker:
Wow, what a post! My ears are still ringing!

Sure, this is NOT a medical forum and, as you put it:

it pretty well covers all but the ignorant

I find that I worry, perhaps needlessly, about the "ignorant" because I don't want to see them falling through the cracks. If we find a way to help those that have the least knowledge, we are helping everyone.

My question about your notion of C-FLEX was not sarcasm at all. I really wondered, given what you had written, that you might think that what you experienced would hold true for everyone else. That is why I asked.

You have commented that you think I'm "new" to the forum... well, if 2 years is "new," then I guess I'm "new." How being "new" would make any difference is beyond me and, if advocating the those users who might fall through the cracks is an artifact of being "new," then I'll happily stay "new." Complacency is not a good thing unless one wants to find a way to further marginalize the already disenfranchised.

Offerocker wrote:

Yes, you may be correct, or, if you'd rather, you are correct.

Then she wrote:

Well, now, sarcasm doesn't sit well with me, and I will do my best to refrain from returning it.

Gotta' say, your comment sounds a little sarcastic to me. Makes me wonder if you like sarcasm more than you would like to admit. I don't NEED to be correct, but I do need to do what I can to make sure that new users don't get mislead by opinion mascarading as fact.

While I absolutely agree with your comment that this is a discussion forum and not a medical reference, there are users who will turn to a forum like this hoping/believing that it is a medical forum. My caution regarding "factual" statements is an artifact of that.

Willsucceed: It seems that this bears repeating.

Offerocker wrote:Willsucceed:

I found Cflex to be a relief for me, and an aid to my comfort.

If one feels better using cflex, and their numbers don't change for the worse, then it's a good thing for them. I view its usage as comfort, which in turn adds to my therapy. Others may not.

I was speaking for MYSELF

You must learn to be more accurate in your statements.

I'm off this topic now, so anything addressed to me will go unheeded.
Ah, sweet relief.
You haven't even touched on my sarcasm abilities, but have a good day anyway; you apparently CANNOT be appeased, even when someone agrees with you. I don't care to argue minutia.

Offerocker wrote:

You haven't even touched on my sarcasm abilities

Looks as though you really do like sarcasm more than you care to admit!

And she wrote:

Further arguments on this subject should be moot by now, and I will not defend myself or any other previous posters further

Then, in her next post she wrote:

I'm off this topic now, so anything addressed to me will go unheeded

Ya? Fat chance. You have more to say, I'd bet on it! Go on, vent your spleen!! You will feel better and, if you really put your back into it, your blood pressure might even go down some.

I do, Offerocker, think that my posts are accurate; that you don't concur may be unfortunate, but it does not mean that mine are inaccurate.

Unheeded? I think not. What a pity that "guesting" as Sadie, or some other name, does not allow posters to hide their real identity any longer.