Redundant Soft Palate / palatal prolapse ?...in the UK

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
cpaper9000
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Joined: Mon Jun 30, 2025 2:51 pm

Redundant Soft Palate / palatal prolapse ?...in the UK

Post by cpaper9000 » Mon Jun 30, 2025 3:37 pm

Ive been using cpap for a year or so and its been very difficult. I have severe apnea witha AHI of 48. Its not the machine i have a problem with I just
get severe blockages and vibrations when exhaling through my mask using my resmed 10 cpap machine. Inhaling is fine however. The blockage when i exhale through the nose is the worst and get extreme vibrations when i breathe out through my mouth. I can only think that is my soft palate vibrating. The back of my throat is not visible anymore as it is below my tongue and my uvula is down my throat so to speak. I have tried all resmed pressures and it seems to be related to my soft palate.It feels like I am breathing through a plastic bag and its causing severe insomnia.

Recently I went private with SPIRE in the UK. Not something i can afford btw. But the Private ENT said I have a redundant palate, Is this the same as a palatal prolapse? He could not say which procedure would be best but standard UPPP is not advisable as it does not fix the problem and can make cpap use less usable. He told me to lose all my weight and go back when i am my ideal weight. I am 14 stone / 90kg and need to be 12 stone. It will take a year or so to lose all my weight and i am so exhausted with insomnia. Cpap is making breathing more problematic so i am looking for surgery options.
I recently tried a back2sleep nasal stent which stopped the palatal blockage when i exhale but its not great and really only for moderate sleep apnea. Its not enough to exhale through but it works a little bit.
What kind of procedure / surgery would be best if UPPP is no longer used? My palate does not seem to work so i assumed a UPPP would atleast help in opening up the thoat.
Any advice would be great.

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Julie
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Re: Redundant Soft Palate / palatal prolapse ?...in the UK

Post by Julie » Mon Jun 30, 2025 6:36 pm

Have you seen anyone in the US (or Canada)? What is Spire? Look up palatal prolapse and red. palate in this forum and see what's what.

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ChicagoGranny
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Re: Redundant Soft Palate / palatal prolapse ?...in the UK

Post by ChicagoGranny » Tue Jul 01, 2025 10:25 am

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cpaper9000
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Joined: Mon Jun 30, 2025 2:51 pm

Re: Redundant Soft Palate / palatal prolapse ?...in the UK

Post by cpaper9000 » Wed Jul 02, 2025 1:21 pm

Julie wrote:
Mon Jun 30, 2025 6:36 pm
Have you seen anyone in the US (or Canada)? What is Spire? Look up palatal prolapse and red. palate in this forum and see what's what.
No i havent seen anyone in the US/Canada. Spire is a private health company which is too expensive. i just went for a consultation. the UK has the NHS but its a year waiting list to see a ENT specialist