Mystery solved! ever heard of "palatal prolapse" (new article)?

That sounds "hinkey".
Very, very hinkey.

chunkyfrog wrote: ↑

Mon Mar 09, 2020 11:23 pm

That sounds "hinkey".
Very, very hinkey.

I don't disagree with you. I've asked for more options and a shipping cost, as well as info on future availability. But good luck finding another supplier who will even ship to the U.S.

imposterdroids wrote: ↑

Mon Mar 09, 2020 8:40 pm

I'm told they will deliver to the U.S., but the options they've given me so far haven't allowed me to make a purchase.

Assuming you have a checking account, it looks very easy to order direct from the supplier.

Well, 13 years later...
I have palatal prolapse. With an ASV machine, an F1B full face mask from BMC (50$ aliexpress), I have much better sleep than CPAP. I'm looking into getting a barbed pharyngoplasty https://www.youtube.com/watch?v=s4DhudXwQbUsince it looks to be the ticket for people with CCC level 2 (complete concentric collapse) which is (I think) what palatal prolapse is.

I tried pretty much all the masks, my pressure goes up to 20 and so that mask is the best I've found for high pressure.
About the nasal stents like the Alaxo... I have the six inch and unless you don't have a gag reflex forget it... when it passes say around four inches in you start gagging and coughing and there's no getting used to that. No amount of will can void your natural reflexes. You literally have to not have a gag reflex to live with that.

I tried medical glue and tape with the mask and it'll help a little but it'll leak anyway and it's a lot of hassle.

Hoping this helps and that others can contribute what surgeries they've had or looking into.

Cheers,

Antoine

Here is a review of the literature:

Conclusion
Barbed reposition pharyngoplasty has proven to be an easy to learn, quick, safe and effective new palatopharyngeal procedure, that can be used in a single level surgery or as a part of multilevel procedures. Patients affected by severe OSA may benefit from this surgery with more significant reduction of AHI values. In our opinion, this valid technique should be included within the surgical armamentarium of a sleep surgeon.

Last but not least, BRP was popularized in Italy since 2017 and then it

https://www.sciencedirect.com/science/a ... 0921002982

Shaare wrote: ↑

Sun Mar 10, 2024 1:12 am

(snip)
Hoping this helps and that others can contribute what surgeries they've had or looking into.
(snip)

I replied to another thread... just read this whole thread with interest. I found through experimentation that my palatal prolapse (thanks rubicon) was being set off by EPR 3. Positional dependent, supine worst, left side some, right side minimal. Reducing EPR lessened it... turning off EPR I have not had a recurrence. This solution was actually suggested two pages back here. Went to see an ENT, he didn't even look at the graphs I'd brought, gave me the old 'say ah' and called it 'tongue'. This did not evince without CPAP EPR 2/3.

If you feel like your face is being slapped from inside, I think that's palatal.

Hi @Shaare, thanks for reviving the old thread.

I found your reply quite interesting and have a few questions. I also have classic PP. If I let CPAP, my pressures could sometimes go up to 15 without resolving some OA events. That being said, I am somewhat unsatisfied with CPAP. How is that ASV is better in this regard?

For me "no EPR" is mandatory. With EPR of only 1, I can experience palate "flipping" even when awake with mask on. To cut long story short, with my dual chin strap that stops jaw dropping in REM and with pressures of ~6.6:9.6 I can keep AHI ~5 with acceptable incidence of leaks and aerophagia (and subsequently induced GERD/LPR). That is point of diminished return for me - because increasing pressures really increase aerophagia/LPR and I don't want to go there.

Moreover, I also have Alaxo 6". Guiding it through nasal passages is piece of cake, trying to unsheathe it is totally different story - ineffable feeling really Regarding barbed wire pharyngoplasty, I find it interesting because it is easily found in my vicinity (Rome/Italy), but having in mind that I still have side effects from somnoplasty, I would rather skip additional surgeries.

Thanks again and please elaborate a bit on ASV for PP. I'm willing to go that route if it seems reasonable.
Cvelee