Riding the dragon

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Balrog6
Posts: 3
Joined: Mon Jun 06, 2022 8:01 am

Riding the dragon

Post by Balrog6 » Mon Jun 06, 2022 8:43 am

I will protect institutional & MD identities wherever possible.
I was diagnosed late last year. It took 5 months to get my setup because well, we know what's been going on with computer chips, shipping, and human viruses.
My DX: 60 events/hr, complex & obstructive.
I didn't care for the place that did the initial study, so I transferred to the local university. I had my doubts about the specialty sleep center, but the process itself is fairly well understood. It's the interpretation & treatment is where things can get dicey.
Note: The Mayo Clinic website states that they do their studies in one night, splitting 4 hours for unassisted observation and 4 hours of support titration. The sleep specialty outfit used two nights, the first being 8 hours of unsupported observation and the second night was titration. Titration is supposed to yield your therapeutic air pressure settings.
Apnea has quite the learning curve. In conversations with the U MD, he shared that over pressure from CPAP can create stints of complex apnea. I expect to hear from him this week, he's been having lost time from his own medical issues. He also warned that even the best medical websites should be cross checked (re:Mayo Clinic). I've been a PTSD/depression/anxiety survivor most of my life. There's a good deal of crossover in symptoms. I'll know more when he gets the telemetry from the Airsense 11. The stated goal is 5 or less events/hr, I've never seen less than 10, and range from 20-30. I can tell immediately when waking what my count was overnight. It ranges from foggy to wanting the family coronary, just so the pain stops. (Cardio hypertrophy, it runs in the family) It's not localized pain, rather it's fatigue like I've never experienced before. I used to bicycle 75 miles @20MPH when I had time, sometimes logging 2K over a summer. Nothing even close to this stuff. Recovery doesn't happen, the exhaustion subsides as the morning passes on. My medical people are out of gas, this is the remaining treatable issue. While I was transferring my sleep treatment to the university, I consulted with the CPAP OEM's respiratory therapist. She wanted to have the U MD write orders for BiPAP equipment. As I said, the U MD is going to get into the data and see if there's induced complex apnea. Fun fact: SSRIs are known to lower REM time.

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mummmz
Posts: 247
Joined: Sat Jun 18, 2016 5:06 pm
Location: USA

Re: Riding the dragon

Post by mummmz » Mon Jun 06, 2022 9:44 am

Welcome to the group. Since I just happen to be the first to see your post I'll let you know you should refer to the post: Sticky: Newbies PLEASE READ BEFORE POSTING for instructions to download OSCAR and how to post the results. Good luck.

_________________
Machine: AirSense 11 Autoset
Mask: ResMed AirFit™ F30 Mask + 2 Replacement Cushions Bundle
Additional Comments: Autopap Min 8.4, max 15, ramp off, flex 3, heated humidity off, O2 therapy added 5/20/22 & discontinued 8/26/22 after asthmas dx/treatment

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Miss Emerita
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Joined: Sun Nov 04, 2018 8:07 pm

Re: Riding the dragon

Post by Miss Emerita » Mon Jun 06, 2022 10:38 am

Welcome! Yes, Oscar charts will be a huge boon. I'd also like to know whether you had significant central apneas during the non-titration night of your sleep study. Can you upload a copy of the sleep study? (Be sure to black out personal information.) This will help us understand whether your CAs are treatment-induced or not.
Oscar software is available at https://www.sleepfiles.com/OSCAR/

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palerider
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Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: Riding the dragon

Post by palerider » Mon Jun 06, 2022 10:53 am

Balrog6 wrote:
Mon Jun 06, 2022 8:43 am
he shared that over pressure from CPAP can create stints of complex apnea.
In around 15% of individuals, it's not common, but people are unreasonably terrified about it.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

Balrog6
Posts: 3
Joined: Mon Jun 06, 2022 8:01 am

Re: Riding the dragon

Post by Balrog6 » Sat Jun 11, 2022 9:35 am

palerider wrote:
Mon Jun 06, 2022 10:53 am
Balrog6 wrote:
Mon Jun 06, 2022 8:43 am
he shared that over pressure from CPAP can create stints of complex apnea.
In around 15% of individuals, it's not common, but people are unreasonably terrified about it.
I'm not so much terrified as irritated that I'm getting conflicting stories between MD specialists. This machine doesn't allow for end user management of pressure. This isn't brain surgery and I'm a programmer/analyst.
Tired today. Someone wants me to post my sleep studies. I'll get to it.

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loggerhead12
Posts: 560
Joined: Fri Sep 01, 2017 4:00 pm

Re: Riding the dragon

Post by loggerhead12 » Sat Jun 11, 2022 10:08 am

Balrog6 wrote:
Sat Jun 11, 2022 9:35 am
This machine doesn't allow for end user management of pressure. This isn't brain surgery and I'm a programmer/analyst.
The Airsense 11 doesn't let you change the pressures? I haven't been paying much attention to that model yet but that is surprising.

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zonker
Posts: 11048
Joined: Fri Jun 19, 2015 4:36 pm

Re: Riding the dragon

Post by zonker » Sat Jun 11, 2022 10:43 am

Balrog6 wrote:
Sat Jun 11, 2022 9:35 am
This machine doesn't allow for end user management of pressure. This isn't brain surgery and I'm a programmer/analyst.
you need the clinician manual which should show you how to change pressure. basically a set of button pushing gets you in. pls find the clinician manual here-

https://www.apneaboard.com/adjust-cpap- ... tup-manual

good luck!
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg

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ChicagoGranny
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Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Riding the dragon

Post by ChicagoGranny » Sat Jun 11, 2022 11:22 am

Balrog6 wrote:
Sat Jun 11, 2022 9:35 am
This machine doesn't allow for end user management of pressure.
Learn how in 38 seconds or double your money back - https://www.youtube.com/watch?v=sEDSvaVaTvs

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loggerhead12
Posts: 560
Joined: Fri Sep 01, 2017 4:00 pm

Re: Riding the dragon

Post by loggerhead12 » Sat Jun 11, 2022 12:15 pm

zonker wrote:
Sat Jun 11, 2022 10:43 am
you need the clinician manual which should show you how to change pressure. basically a set of button pushing gets you in. pls find the clinician manual here-
ChicagoGranny wrote:
Sat Jun 11, 2022 11:22 am
Learn how in 38 seconds or double your money back - https://www.youtube.com/watch?v=sEDSvaVaTvs
8)

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zonker
Posts: 11048
Joined: Fri Jun 19, 2015 4:36 pm

Re: Riding the dragon

Post by zonker » Sat Jun 11, 2022 12:40 pm

loggerhead12 wrote:
Sat Jun 11, 2022 12:15 pm
zonker wrote:
Sat Jun 11, 2022 10:43 am
you need the clinician manual which should show you how to change pressure. basically a set of button pushing gets you in. pls find the clinician manual here-
ChicagoGranny wrote:
Sat Jun 11, 2022 11:22 am
Learn how in 38 seconds or double your money back - https://www.youtube.com/watch?v=sEDSvaVaTvs
8)
some are visual learners and some are not.
¯\_(ツ)_/¯
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg

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Dog Slobber
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Joined: Thu Feb 15, 2018 2:05 pm
Location: Ontario, Canada

Re: Riding the dragon

Post by Dog Slobber » Sat Jun 11, 2022 1:56 pm

loggerhead12 wrote:
Sat Jun 11, 2022 10:08 am
Balrog6 wrote:
Sat Jun 11, 2022 9:35 am
This machine doesn't allow for end user management of pressure. This isn't brain surgery and I'm a programmer/analyst.
The Airsense 11 doesn't let you change the pressures? I haven't been paying much attention to that model yet but that is surprising.
He's completely wrong.

AirSense 11s absolutely do allow for end user configuration, including pressure adjustment. Like the Air 10's you just need to know how to get into clinical mode. Their configuration items with a few exceptions are just like the Air 10s, except it's a touch screen instead of physical dials and buttons.

Unsure why the OP thinks that stating he's a programmer/analyst makes him an authority on Air 11's clinician mode.