Riding the dragon
Riding the dragon
I will protect institutional & MD identities wherever possible.
I was diagnosed late last year. It took 5 months to get my setup because well, we know what's been going on with computer chips, shipping, and human viruses.
My DX: 60 events/hr, complex & obstructive.
I didn't care for the place that did the initial study, so I transferred to the local university. I had my doubts about the specialty sleep center, but the process itself is fairly well understood. It's the interpretation & treatment is where things can get dicey.
Note: The Mayo Clinic website states that they do their studies in one night, splitting 4 hours for unassisted observation and 4 hours of support titration. The sleep specialty outfit used two nights, the first being 8 hours of unsupported observation and the second night was titration. Titration is supposed to yield your therapeutic air pressure settings.
Apnea has quite the learning curve. In conversations with the U MD, he shared that over pressure from CPAP can create stints of complex apnea. I expect to hear from him this week, he's been having lost time from his own medical issues. He also warned that even the best medical websites should be cross checked (re:Mayo Clinic). I've been a PTSD/depression/anxiety survivor most of my life. There's a good deal of crossover in symptoms. I'll know more when he gets the telemetry from the Airsense 11. The stated goal is 5 or less events/hr, I've never seen less than 10, and range from 20-30. I can tell immediately when waking what my count was overnight. It ranges from foggy to wanting the family coronary, just so the pain stops. (Cardio hypertrophy, it runs in the family) It's not localized pain, rather it's fatigue like I've never experienced before. I used to bicycle 75 miles @20MPH when I had time, sometimes logging 2K over a summer. Nothing even close to this stuff. Recovery doesn't happen, the exhaustion subsides as the morning passes on. My medical people are out of gas, this is the remaining treatable issue. While I was transferring my sleep treatment to the university, I consulted with the CPAP OEM's respiratory therapist. She wanted to have the U MD write orders for BiPAP equipment. As I said, the U MD is going to get into the data and see if there's induced complex apnea. Fun fact: SSRIs are known to lower REM time.
I was diagnosed late last year. It took 5 months to get my setup because well, we know what's been going on with computer chips, shipping, and human viruses.
My DX: 60 events/hr, complex & obstructive.
I didn't care for the place that did the initial study, so I transferred to the local university. I had my doubts about the specialty sleep center, but the process itself is fairly well understood. It's the interpretation & treatment is where things can get dicey.
Note: The Mayo Clinic website states that they do their studies in one night, splitting 4 hours for unassisted observation and 4 hours of support titration. The sleep specialty outfit used two nights, the first being 8 hours of unsupported observation and the second night was titration. Titration is supposed to yield your therapeutic air pressure settings.
Apnea has quite the learning curve. In conversations with the U MD, he shared that over pressure from CPAP can create stints of complex apnea. I expect to hear from him this week, he's been having lost time from his own medical issues. He also warned that even the best medical websites should be cross checked (re:Mayo Clinic). I've been a PTSD/depression/anxiety survivor most of my life. There's a good deal of crossover in symptoms. I'll know more when he gets the telemetry from the Airsense 11. The stated goal is 5 or less events/hr, I've never seen less than 10, and range from 20-30. I can tell immediately when waking what my count was overnight. It ranges from foggy to wanting the family coronary, just so the pain stops. (Cardio hypertrophy, it runs in the family) It's not localized pain, rather it's fatigue like I've never experienced before. I used to bicycle 75 miles @20MPH when I had time, sometimes logging 2K over a summer. Nothing even close to this stuff. Recovery doesn't happen, the exhaustion subsides as the morning passes on. My medical people are out of gas, this is the remaining treatable issue. While I was transferring my sleep treatment to the university, I consulted with the CPAP OEM's respiratory therapist. She wanted to have the U MD write orders for BiPAP equipment. As I said, the U MD is going to get into the data and see if there's induced complex apnea. Fun fact: SSRIs are known to lower REM time.
_________________
Machine: AirSense 11 Autoset |
Mask: AirFit F20 Complete Mask + AirMini Mask Setup Pack Bundle |
Re: Riding the dragon
Welcome to the group. Since I just happen to be the first to see your post I'll let you know you should refer to the post: Sticky: Newbies PLEASE READ BEFORE POSTING for instructions to download OSCAR and how to post the results. Good luck.
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit™ F30 Mask + 2 Replacement Cushions Bundle |
Additional Comments: Autopap Min 8.4, max 15, ramp off, flex 3, heated humidity off, O2 therapy added 5/20/22 & discontinued 8/26/22 after asthmas dx/treatment |
- Miss Emerita
- Posts: 3455
- Joined: Sun Nov 04, 2018 8:07 pm
Re: Riding the dragon
Welcome! Yes, Oscar charts will be a huge boon. I'd also like to know whether you had significant central apneas during the non-titration night of your sleep study. Can you upload a copy of the sleep study? (Be sure to black out personal information.) This will help us understand whether your CAs are treatment-induced or not.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: Bleep DreamPort CPAP Mask Solution |
Oscar software is available at https://www.sleepfiles.com/OSCAR/
Re: Riding the dragon
In around 15% of individuals, it's not common, but people are unreasonably terrified about it.
Get OSCAR
Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.
Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.
Re: Riding the dragon
I'm not so much terrified as irritated that I'm getting conflicting stories between MD specialists. This machine doesn't allow for end user management of pressure. This isn't brain surgery and I'm a programmer/analyst.
Tired today. Someone wants me to post my sleep studies. I'll get to it.
_________________
Machine: AirSense 11 Autoset |
Mask: AirFit F20 Complete Mask + AirMini Mask Setup Pack Bundle |
- loggerhead12
- Posts: 560
- Joined: Fri Sep 01, 2017 4:00 pm
Re: Riding the dragon
The Airsense 11 doesn't let you change the pressures? I haven't been paying much attention to that model yet but that is surprising.
Re: Riding the dragon
you need the clinician manual which should show you how to change pressure. basically a set of button pushing gets you in. pls find the clinician manual here-
https://www.apneaboard.com/adjust-cpap- ... tup-manual
good luck!
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
- ChicagoGranny
- Posts: 14499
- Joined: Sun Jan 29, 2012 1:43 pm
- Location: USA
Re: Riding the dragon
Learn how in 38 seconds or double your money back - https://www.youtube.com/watch?v=sEDSvaVaTvs
- loggerhead12
- Posts: 560
- Joined: Fri Sep 01, 2017 4:00 pm
Re: Riding the dragon
ChicagoGranny wrote: ↑Sat Jun 11, 2022 11:22 amLearn how in 38 seconds or double your money back - https://www.youtube.com/watch?v=sEDSvaVaTvs
Re: Riding the dragon
some are visual learners and some are not.loggerhead12 wrote: ↑Sat Jun 11, 2022 12:15 pmChicagoGranny wrote: ↑Sat Jun 11, 2022 11:22 amLearn how in 38 seconds or double your money back - https://www.youtube.com/watch?v=sEDSvaVaTvs
¯\_(ツ)_/¯
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
- Dog Slobber
- Posts: 3962
- Joined: Thu Feb 15, 2018 2:05 pm
- Location: Ontario, Canada
Re: Riding the dragon
He's completely wrong.loggerhead12 wrote: ↑Sat Jun 11, 2022 10:08 amThe Airsense 11 doesn't let you change the pressures? I haven't been paying much attention to that model yet but that is surprising.
AirSense 11s absolutely do allow for end user configuration, including pressure adjustment. Like the Air 10's you just need to know how to get into clinical mode. Their configuration items with a few exceptions are just like the Air 10s, except it's a touch screen instead of physical dials and buttons.
Unsure why the OP thinks that stating he's a programmer/analyst makes him an authority on Air 11's clinician mode.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack |
Additional Comments: Min EPAP: 8.2, Max IPAP: 25, PS:4 |