Newbie having really frustrating experience

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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kteague
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Re: Newbie having really frustrating experience

Post by kteague » Sun Feb 06, 2022 7:21 am

Are you able to breathe through your nose when awake? Not an ENT doc here, just thinking if the air goes in your nose and out your mouth, is the nasal area your issue?

When my first machine did not provide data I talked my doc into ordering a loaner machine to collect data for 2 weeks. Is that a possibility? Continuing in failure is a tough row to hoe, and beyond discouraging. I'm thinking your energies would be better invested in finding a way to get concrete info rather than trial and error. Soon after my trial period I bought a used data capable machine from a trusted member on here. If there is nothing you can do along these lines, I apologize for adding an extra pressure to your frustrations.

In general, there's some often shared tips shared on here for mitigating common problems. First is some kind of cervical collar. I use one of those c-shaped travel pillows turned backwards to keep my chin up when sleeping in the recliner. If my head drops too far either forward or backward my airway gets compromised. Also, when lying down I try to be conscious of positioning myself in a way that gravity doesn't sabotage my efforts. I side sleep on a firm flat pillow. This way my chin doesn't drop and cause loss of air through my mouth. Sleeping with my face slightly off the edge of the pillow causes it to tilt downward slightly as the edge of the pillow compresses a bit - just enough for my tongue to drop forward when relaxing instead of into the airway space. The single best tip I learned here was to train my tongue to stay forward and suction sealed to the roof of my mouth. Took months of diligent practice and a few hickeys on the roof of my mouth from sucking too hard :) but once it became second nature I was able to stop using suction and can rely on simple tongue placement and preventing chin drop.

Your description of not getting enough air makes me wonder if you are experiencing hypopneas, a partial compromise of air flow, but short of an apnea. Maybe some of the above tips could help if that's the case. My journey early on was quite awful. It's been no big deal for well over 10 years now. Good luck with figuring things out.

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Jlfinkels
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Re: Newbie having really frustrating experience

Post by Jlfinkels » Sun Feb 06, 2022 10:33 am

Dizzybear wrote:
Thu Feb 03, 2022 1:17 pm
New to CPAP as of about two weeks ago.
[snip snip snip]
You are experiencing what many of us did, the first few tries with CPAP are frustrating until you find the right settings for you. If you really don’t want to use it, then don’t. It’s your choice. I’ve only been using it a year now, so these are my opinions based on my experience.

I have no experience with your machine, but check on your “easy ex” setting. Likely it can be set anywhere from 0-3 (amount of pressure drop in cmH2O used for exhale).

Without OSCAR it’s hard, but not impossible with patience to get folks what they need to help. Start with exact make/model descriptions of your machine (which you did) and mask. See if your machine has info on leaks, AHI and AHI breakdown (H,OA,CA,etc), min/avg/max pressure for inhale and exhale, probably a lot more I’m forgetting.

Something else to consider is “borrowing” from your sleep center or other place a Resmed machine if for nothing else than to be able to get OSCAR reports for others to help.

Good luck on the journey.
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palerider
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Re: Newbie having really frustrating experience

Post by palerider » Sun Feb 06, 2022 3:35 pm

Julie wrote:
Sun Feb 06, 2022 5:45 am
Really? It seems to be what I've seen many times - if only to get used to the mask.
Really, yes. you've been mistaken.

Wearing the mask without the machine hooked up feels very different compared to wearing it with the machine at pressure.

What's the point of getting used to having the thing strapped to your face, without getting used to breathing with it?

besides some masks are quite uncomfortable when the cushions aren't inflated.

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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zonker
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Re: Newbie having really frustrating experience

Post by zonker » Sun Feb 06, 2022 5:30 pm

palerider wrote:
Sun Feb 06, 2022 3:35 pm
Julie wrote:
Sun Feb 06, 2022 5:45 am
Really? It seems to be what I've seen many times - if only to get used to the mask.
Really, yes. you've been mistaken.
huh. i was under the same impression as julie.

guess i'll revise my advice.
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Pugsy
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Re: Newbie having really frustrating experience

Post by Pugsy » Sun Feb 06, 2022 5:39 pm

zonker wrote:
Sun Feb 06, 2022 5:30 pm
palerider wrote:
Sun Feb 06, 2022 3:35 pm
Julie wrote:
Sun Feb 06, 2022 5:45 am
Really? It seems to be what I've seen many times - if only to get used to the mask.
Really, yes. you've been mistaken.
huh. i was under the same impression as julie.

guess i'll revise my advice.
I would only advise wearing the mask without the machine being involved when dealing with someone who is having a significant tactile response that is negative.
Maybe someone who was having some serious claustrophobia issues and can't stand having it on the face much less using the machine.

Otherwise when I talk about wearing the mask during the day while awake it is going to include using the machine and having the air blowing because for most people the problem they seem to be having a problem adjusting to is going to be actually breathing with the machine blowing air.
Either the rhythm or the exhale being difficult ...or something like that.

So it depends on what the person is complaining about but I would say the majority of the time any problems are going to be with actually using the machine in some manner....and to get adjusted to using the machine and breathing with it....a person will have to be using the machine AND wearing the mask.

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zonker
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Re: Newbie having really frustrating experience

Post by zonker » Sun Feb 06, 2022 5:59 pm

Pugsy wrote:
Sun Feb 06, 2022 5:39 pm
zonker wrote:
Sun Feb 06, 2022 5:30 pm
palerider wrote:
Sun Feb 06, 2022 3:35 pm
Julie wrote:
Sun Feb 06, 2022 5:45 am
Really? It seems to be what I've seen many times - if only to get used to the mask.
Really, yes. you've been mistaken.
huh. i was under the same impression as julie.

guess i'll revise my advice.
I would only advise wearing the mask without the machine being involved when dealing with someone who is having a significant tactile response that is negative.
Maybe someone who was having some serious claustrophobia issues and can't stand having it on the face much less using the machine.

Otherwise when I talk about wearing the mask during the day while awake it is going to include using the machine and having the air blowing because for most people the problem they seem to be having a problem adjusting to is going to be actually breathing with the machine blowing air.
Either the rhythm or the exhale being difficult ...or something like that.

So it depends on what the person is complaining about but I would say the majority of the time any problems are going to be with actually using the machine in some manner....and to get adjusted to using the machine and breathing with it....a person will have to be using the machine AND wearing the mask.
makes sense. i was just thinking of the possible claustrophobic feeling i got when i first had the full face mask on. and as i age out, it's getting harder and harder to remember just what i was thinking as a newbie.
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BuckarooBanzai
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Re: Newbie having really frustrating experience

Post by BuckarooBanzai » Mon Feb 07, 2022 3:09 pm

I wore the mask with the machine on while streaming a video. It helped me acclimate myself to the system.

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ChicagoGranny
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Re: Newbie having really frustrating experience

Post by ChicagoGranny » Mon Feb 07, 2022 3:58 pm

Sounds like the OP is throwing in the towel - https://www.cpaptalk.com/viewtopic.php? ... 0#p1405250