dojiscalper wrote: ↑Thu May 23, 2019 1:11 pm
I'm inclined to agree with you all so far and thanks so much for your time and help this forum is awesome as a support group and no one can understand what we go through to get apnea's under control like this forum can.
To explain my symptoms is gonna be long and I'm going to go into detail because I have the time and I need the help, so you've been warned.
It took me over a year, but I did find a helpful doctor who's run every test from the brain out the other end and everything is coming back as normal, including MRI's, gastro, heart, the works. I got a CT coming up in a week or two. A nerve conduction study has shown some unexplained weakness in my leg motor neurons, the neurosurgeon didn't see a good reason for it and suggested exercise.
I'm 40 and like so many I was in sleep apnea denial my whole life. Looking back I was always the "not morning person" type and I've always just got along fine living my life in the late night hours. After about 6-7PM every day I would start getting energy and by 10PM I'd be totally buzzing with energy and if I wanted I could easily just stay up until 3-4AM sleep a couple hours and be mostly fine and go about my life like that. Most of the time I would force myself to go to bed at about 12:00AM just because people need to sleep
It finally started to get to me though after about 30-35 years so I got a sleep study which showed severe sleep apnea, however me being naturally suspicious and a cheap skate I just kept on going.
Except for being extremely hard to wake up and very hard to get doing well in the AM hours I've always been a very ambitious person with huge goals, dreams, and I have the self starter skills to boot. I'll work my butt off on anything I want to do and run circles around anyone else in my past jobs and my employers loved it and I loved it, it was life as I knew it.
I do have Epstein-Barr virus which flares up and makes me have mononucleosis symptoms if I over exert myself and can cause me to catch colds, etc easily, but I've also dealt with that my whole life as well and its not my issue though it doesn't help.
Now on to now:
I got another sleep study over a year ago and thought I would start to get myself help. That study also showed severe sleep apnea and I went through all the hoops and got a machine. With the help of this forum I got used to using it, got a better machine and am now doing what I think is very well in the apnea department, as I mentioned in the first post I sleep 7 hours per night with an AHI of about 1.5 and I now wake up at 6am very easily instead of sleeping past noon anytime I can. When I used to go on business trips I've been known to sleep from Friday after work to Sunday evening.
Now with those numbers and feeling rested, I'm having strange symptoms that I can't really describe and it seems to get bad when I eat. Doesn't really matter what I eat and I'll be going along mostly fine and get a drink of water and then BAM, I start feeling bad like something is wrong. Sorry its hard even for me to sit here and type it, but its just hard to explain. For physical symptoms I do notice my vision will get blurred, and I can have very sharp shooting pains through my toes and fingers. I've also lost the ability to walk fast, I used to be the fast walker in the group and now my slow walking wife has to be told to slow down. I'm not out of breath I simply cannot walk fast. It seems my legs don't like to bend over my ankles quick enough. Also leg weakness now is amazing and I find it very hard to climb stairs especially in the morning. Before all this I would have ran up stairs and wouldn't have thought anything of it.
At the same time I started a small company and luckily its taken very little effort for me to replace my old employed income. However I cannot work on this business like I should be or want to be due to just feeling bad and possibly in a depressive cycle from it all so now instead of doing anything I should do or want to do which to me was a huge part of my life before, I am now almost on bed rest with 1 to 5 hour trips out to do some work daily and there is nothing I hate more than watching TV and wasting time I could be spending on my interests.
I think this is causing depression, anxiety, irritability and I googled this one (feelings of impending doom) seem to come up. Luckily the doom thing hasn't happen for a few months, but it was odd especially for me, I'm the guy who you could put in a burning building and I would calmly make sure everyone else is gonna be safe and probably try to figure a way to fix the situation.
