Interesting new web site

rested gal · Post by **rested gal** » Sat Nov 25, 2006 5:14 pm

The ASAA simply wants every patient to get the best possible treatment available. If you aren't happy with your doctor or DME, try another until you find one that will work with you to ensure that you are getting the best possible care, including having you push the buttons if they are comfortable with that. We all know the frustration of needing immediate and adequate treatment and not being able to get it. And we encourage people to use multiple sources for their information. We have links (and link to) other apnea forums including the commercial site CPAPtalk.com on a regular basis. (bold emphasis mine)

That paragraph, written by one of the ASAA moderators (Vicki) was on page 2 in a topic on the ASAA's apneasupport.org message board:

http://www.apneasupport.org/viewtopic.p ... 4&start=15

Apparently the ASAA's policy of not allowing direct links to stores like cpap.com doesn't preclude allowing links to a support forum (cpaptalk.com) that happens to be sponsored by that store. Seems reasonable enough.

The manufacturers like Respironics, Fisher & Paykel, Puritan Bennett, etc. don't sell directly to the public, so links to their sites are allowed by the ASAA.

Every message board has its own rules for what can and can't be posted. I have no problem with that. I just prefer the more open, laissez faire policy for what can be posted on this board.

Back to Mr. Grandi's announcement of the children's book about snoring... I was glad to see that. The more awareness the general public (and doctors!) receive about what kind of symptom snoring can be, the better. Even if they receive the info from their kids!! Out of the mouths of babes....

Oh, and yeah -- I sent an email to contactus@mydaddysnores.com suggesting they add cpaptalk.com to their website's list of message board forums. Will be interesting to see if that happens.

dllfo · Post by **dllfo** » Sat Nov 25, 2006 6:01 pm

I can't bring the site up on Netscape 7.2 or Mozilla1.7+

Is it gone now or is it an IE only website?

EDIT: I am on IE browser, it works ok there.

wading thru the muck! · Post by **wading thru the muck!** » Sat Nov 25, 2006 9:48 pm

rested gal wrote: Every message board has its own rules for what can and can't be posted.

I know they do... I'm just pointing to the fact that the policy of the ASAA is hypocritical. Scholastic books sells directly to the public... I know... my kids backpacks are loaded with their solicitations. The ASAA seems to be just fine with promoting a commercial venture when it suits their desires.

As we all know the SA care industry is frought with entities whose motivations are other than what's best for the SA patient. We are all aware of how MedRes thinks "our best interests" are served by charging us significantly more for our equipment. LOL!

It just seems to me that the ASAA is more interested in serving the needs of these entities than the needs of us folks needing the treatment. That's not what I expect of an organization claiming to represent my disease.

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CPAPopedia Keywords Contained In This Post (Click For Definition): resmed

-SWS · Post by **-SWS** » Sun Nov 26, 2006 12:54 pm

Absolutely no offense, my good "meet-for-lunch-friend", Wader. I too prefer the "laissez faire" approach of cpaptalk.com. I barely have enough time to post on one message board, let alone two or three. That's pretty much the only reason I don't post at ASAA. However, I personally view what the ASAA and mydaddysnores.com do for sleep apnea as being a very positive thing.

And I personally don't think that mydaddysnores.com was contrived as a cash cow. Disease awareness literature, in general, has never been a lucrative industry. Rather the web site up for discussion, mydaddysnores.com, appears to me as a viable spin-off of what has been the ASAA's primary objective all along: raising apnea awareness.

The fact that the ASAA has elected to work with established medical and manufacturing channels doesn't make their objectives any less noble in my mind. I am one of those hoseheads who very strongly prefers that the battle of apnea awareness and research be fought on as many different fronts as possible. To that end I consider ASAA just as much my ally as I do cpaptalk.com, TAS, academic research teams, and even well-behaved entities within the corporate sector.

My personal congratulations on the opening of the new apnea-awareness-raising website called http://www.mydaddysnores.com!