New VPAP user with a hitch

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
leonis
Posts: 1
Joined: Fri Sep 25, 2015 8:02 am

New VPAP user with a hitch

Post by leonis » Fri Sep 25, 2015 8:15 am

A bit of my story first: I've apparently been suffering from severe sleep apnea for a couple of years. At the prompting of my wife (who has to sleep next to my gasping and snoring), I went to see a doctor, who recommended a sleep study.

I ended up needing a total of three studies completed over six months to finally narrow down my specific issues. I have severe, complex apnea, which requires a Bilevel VPAP machine. (It took this long, and this many studies, partly because my insurance balked at paying up, so the doctor's office needed documentation out the wazoo to confirm that I actually needed what they say that I need. Without the required insurance negotiations, I probably would have received my machine sooner.)

But I finally got the thing, and I've been sleeping with it for two nights. The effects were immediate, I'm writing this post as the most "wakeful" I've been for several years. But there's a hitch.

Last night my wife was working late, so she dropped into bed after I was already asleep. Her comments this morning: 1. The variable noise of the machine is distracting, but she knows she'll be able to get used to it. But more concerning is 2. I twitch when I sleep. I know that's a normal symptom of apnea when I'm *not* wearing the mask, but this is different. It's like when you're half-asleep sitting up and trying not to fall fully asleep, and you twitch yourself back fully awake (so it's different than the normal limb-jerking that happens off the machine.) And she timed it -- it happens regularly, about 2 or 3 times a minute, and it seems to happen when the machine is at the higher level "pressure-forcing" mode. It's like my body is still being reminded to breathe -- only now it has a machine to force it, instead of a lack of oxygen to remind it.

Has anybody else experienced this? Is it normal, maybe just my body getting used to finally being oxygenated for a change? Will it go away?

User avatar
ChicagoGranny
Posts: 15286
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: New VPAP user with a hitch

Post by ChicagoGranny » Fri Sep 25, 2015 8:48 am

leonis wrote:I twitch when I sleep.
Was this not picked up on one of your "many sleep studies"? Ask your doctor?
leonis wrote:The variable noise of the machine is distracting
Some things that help with this small noise -

- Place your machine beside and slightly below the level of the top of the mattress.
- Buy or make a hose cover and use it - https://www.cpap.com/productpage/snuggl ... cover.html
- Have your machine sitting on a mouse pad. Sitting directly on a wooden surface is louder,
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

User avatar
ChicagoGranny
Posts: 15286
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: New VPAP user with a hitch

Post by ChicagoGranny » Fri Sep 25, 2015 8:49 am

BTW, are you taking note of your machine's data - particularly AHI and leak level?
"It's not the number of breaths we take, it's the number of moments that take our breath away."

Cuando cuentes cuentos, cuenta cuántas cuentos cuentas.

User avatar
Wulfman...
Posts: 6688
Joined: Mon Sep 01, 2014 6:41 pm
Location: Nearest fishing spot

Re: New VPAP user with a hitch

Post by Wulfman... » Fri Sep 25, 2015 12:42 pm

leonis wrote:A bit of my story first: I've apparently been suffering from severe sleep apnea for a couple of years. At the prompting of my wife (who has to sleep next to my gasping and snoring), I went to see a doctor, who recommended a sleep study.

I ended up needing a total of three studies completed over six months to finally narrow down my specific issues. I have severe, complex apnea, which requires a Bilevel VPAP machine. (It took this long, and this many studies, partly because my insurance balked at paying up, so the doctor's office needed documentation out the wazoo to confirm that I actually needed what they say that I need. Without the required insurance negotiations, I probably would have received my machine sooner.)

But I finally got the thing, and I've been sleeping with it for two nights. The effects were immediate, I'm writing this post as the most "wakeful" I've been for several years. But there's a hitch.

Last night my wife was working late, so she dropped into bed after I was already asleep. Her comments this morning: 1. The variable noise of the machine is distracting, but she knows she'll be able to get used to it. But more concerning is 2. I twitch when I sleep. I know that's a normal symptom of apnea when I'm *not* wearing the mask, but this is different. It's like when you're half-asleep sitting up and trying not to fall fully asleep, and you twitch yourself back fully awake (so it's different than the normal limb-jerking that happens off the machine.) And she timed it -- it happens regularly, about 2 or 3 times a minute, and it seems to happen when the machine is at the higher level "pressure-forcing" mode. It's like my body is still being reminded to breathe -- only now it has a machine to force it, instead of a lack of oxygen to remind it.

Has anybody else experienced this? Is it normal, maybe just my body getting used to finally being oxygenated for a change? Will it go away?
It would help if you would fill out your profile with the exact equipment and settings you're using.
And, if you're not already using software like "Sleepyhead", I'd strongly urge you to get it and see what it shows.


Den

.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05