bipap, trilogy or diaphragm pacing system
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Nannette RC
- Posts: 1
- Joined: Tue Sep 24, 2013 10:36 am
bipap, trilogy or diaphragm pacing system
I just found this site and I have a question. I just received a message that I passed the sniff test for a diaphragm pacing system. I was diagnosed with ALS in June 2012. I am trying to look at my options. I use my bipap 7-8 hours every night. I don't know whether to have the pacing system put in or would I be better off using the trilogy when breathing becomes more difficult. Has anyone had this decision to make before? What are your thoughts?
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BlackSpinner
- Posts: 9742
- Joined: Sat Apr 25, 2009 5:44 pm
- Location: Edmonton Alberta
- Contact:
Re: bipap, trilogy or diaphragm pacing system
Hunt up member "Madalot" and send her a private message. She uses the trilogy and has similar physical issues.
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| Machine: PR System One REMStar 60 Series Auto CPAP Machine |
| Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
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Paula b
Re: bipap, trilogy or diaphragm pacing system
My husband was diagnosed with ALS in May of 2012. Had the pacer put in in October of 2012. Paces nearly all the time. Uses a bipap at night. Is going to get the trilogy too.
Re: bipap, trilogy or diaphragm pacing system
Definitely talk to Madalot - she's the resident expert on that stuff (and is extremely nice to know :0).
4 posts
• Page 1 of 1