APAP experience after 3 weeks

Sleepless on LI · Post by **Sleepless on LI** » Sun Dec 04, 2005 10:00 pm

This is to the horrible and nasty creature who wrote me a PM that I will save indefinitely who finally admitted why I get questionable replies under their screen name from many of my posts and it was unconscionable. Stop hiding behind the guest posts and let the rest of the site know who you are. You ought to be ashamed of what you wrote to me in private. I have a good mind to share it with everyone here so they know what they're dealing with when you write your concerned but oh so hypocritcal replies. YOU ought to be ashamed of yourself. And for you to insinuate I will be responsible for anyone's death who surmises from my posts that they should stop their use of their machines because I claim a cure from something I never had? My stomach is sickened. You are a coward and an insult to this site. Like I said, you should be ashamed of yourself. It's cowards like you that make people sick, myself at the top of that list.

CollegeGirl · Post by **CollegeGirl** » Sun Dec 04, 2005 10:02 pm

(((((((((((Lori))))))))))))) I can understand your annoyance. Anyone else think this guest may be the same one that said Sleep Apnea was a made up disease? If you're not, guest, your logic ranks right up there with that.......person. (I'm having to refrain from committing a personal attack, here).

Lori has suffered the same hell as the rest of us. Even if she HAD only had a 4 AHI, she's still been through the same torture. As fellow apnea, sufferers, it is so important that we support each other instead of tearing each other down and trying to invalidate one another's suffering.

Just because you're suffering with a 95 AHI doesn't make your suffering any more valid than someone with a 5 AHI. Apnea is apnea. Let's all try a little harder to get along, please (especially you, anonymous guest).[/b]

Sleepless on LI · Post by **Sleepless on LI** » Sun Dec 04, 2005 10:02 pm

[quote="Anonymous"]With 3 events for the night, how could you possibly have an AHI of 7.3? Look at the definition of AHI. It is the number of Apneas + Hypopneas / number of hours. The ONLY way that you could get a 7.3 is if they stayed at that pressure for less than 10m and it guessed the rest of the hour. Which is basically bad math. Where is the rest of the study with the total events for the evening? It should have the AHI for the entire night.

Sleepless on LI · Post by **Sleepless on LI** » Sun Dec 04, 2005 10:05 pm

[quote="CollegeGirl"](((((((((((Lori))))))))))))) I can understand your annoyance. Anyone else think this guest may be the same one that said Sleep Apnea was a made up disease? If you're not, guest, your logic ranks right up there with that.......person. (I'm having to refrain from committing a personal attack, here).

Lori has suffered the same hell as the rest of us. Even if she HAD only had a 4 AHI, she's still been through the same torture. As fellow apnea, sufferers, it is so important that we support each other instead of tearing each other down and trying to invalidate one another's suffering.

Just because you're suffering with a 95 AHI doesn't make your suffering any more valid than someone with a 5 AHI. Apnea is apnea. Let's all try a little harder to get along, please (especially you, anonymous guest).[/b]

Guest · Post by **Guest** » Sun Dec 04, 2005 10:05 pm

Sleepless on LI wrote:I, too, have dreams but am suffering from pretty bad sleep apnea..

Lori,

That was your first post. Where is the "pretty bad sleep apnea" ? You had 3 events all night. Where is your non titrated study?

Sleepless on LI · Post by **Sleepless on LI** » Sun Dec 04, 2005 10:11 pm

Anonymous wrote:
Sleepless on LI wrote:I, too, have dreams but am suffering from pretty bad sleep apnea..
Lori,

That was your first post. Where is the "pretty bad sleep apnea" ? You had 3 events all night. Where is your non titrated study?

Sign in and I'll talk to you. Till then, gth. Maybe you can figure out that acronym. You sneaky coward...I know who you are. Maybe I'll just share it with everyone if you continue to keep this up. YES, I WANTED TO BE ON CPAP. YES, I'M CRAZY AND MADE UP ALL MY SYMPTOMS.

Ask DeltaDave. He had my sleep studies in full and analyzed them for me. Guess he's a stupid jerk, too. Right? Step up and let the world know how you are before I do!!!!

another cpaper · Post by **another cpaper** » Sun Dec 04, 2005 10:12 pm

[quote="CollegeGirl"](((((((((((Lori))))))))))))) I can understand your annoyance. Anyone else think this guest may be the same one that said Sleep Apnea was a made up disease? If you're not, guest, your logic ranks right up there with that.......person. (I'm having to refrain from committing a personal attack, here).

Lori has suffered the same hell as the rest of us. Even if she HAD only had a 4 AHI, she's still been through the same torture. As fellow apnea, sufferers, it is so important that we support each other instead of tearing each other down and trying to invalidate one another's suffering.

Just because you're suffering with a 95 AHI doesn't make your suffering any more valid than someone with a 5 AHI. Apnea is apnea. Let's all try a little harder to get along, please (especially you, anonymous guest).[/b]

Sleepless on LI · Post by **Sleepless on LI** » Sun Dec 04, 2005 10:50 pm

I have told the ill person who has identified herself to me IN PRIVATE that if she continued to write these multiple guest personality insults to me on this thread, I would identify her. Amazingly coincidentally, the guest posts seem to have stopped.

I am keeping her letter and am debating whether to share with this site what she wrote to me because, as another member suggested, it's not fair that the rest of the members here not know what we're dealing with and they should see it for themselves. I am debating whether to air the letter.

In the meantime, I apologize for the rest of the site having to be in the middle of what was a horrible and sickening display here on this thread. I apologize to the author of the topic, too, for having this go way off topic. Hopefully the "guest" (ahem) posting will stop now.

Oh, and if by chance what she said in my PM is true, which I cannot believe after all the other trash I read in it, she mentioned that other long time posters are going to leave this site because of me, that's really sad to hear but it's been nice. Hope you enjoy your new site. I'm not leaving.

Guest · Post by **Guest** » Sun Dec 04, 2005 11:01 pm

Lori,
Have you thought about a medical malpractice suit? Someone besides the DME's should get rich off of this

Sleepless on LI · Post by **Sleepless on LI** » Sun Dec 04, 2005 11:03 pm

[quote="Anonymous"]Lori,
Have you thought about a medical malpractice suit? Someone besides the DME's should get rich off of this

neversleeps · Post by **neversleeps** » Mon Dec 05, 2005 1:43 am

I would hate, hate, hate to think that any PM I ever sent would be made public on the forum for all the world (well, 2900 people in the world) to see. I use PM because it is just that: a private message. Following Lori's example in supplying the definition of the word 'guest', I'd like to provide the definition of 'private':

pri·vate - Secluded from the sight, presence, or intrusion of others. Designed or intended for one's exclusive use. Of or confined to the individual; personal. Not available for public use, control, or participation. Not for public knowledge or disclosure; secret.

When I send or receive a PM, I honor that definition and fully expect any other mature adult who sends or receives a PM will honor it as well. If we start getting into this type of situation--threatening one another to expose a private message, then we have truly sunk to a new low. No one, aside from the two parties involved in the private message, should ever even be made aware it has transpired.

Regarding the whole brouhaha with posting, again I want to reiterate, Lori, the posting issue is a personal choice on your part. If you feel uncomfortable posting (and you constantly indicate that you do), then don't post. It's that simple. Your friends will support you no matter what you decide to do. When you've moved on, no one's going to angrily say, "How could Lori have left this place?" No. Of course not. Instead they will say, "Good for her!" Because, if only we could be in your shoes, we would do the same.

I'm sure we're all tiring of this penchant for drama and the degradation of this entire exchange. It is sophomoric and I, for one, feel embarrassed for the entire forum.

One last thing. The administrators of cpaptalk have made it clear it is their intention anyone who wants to post as "Guest" is free to do so. The forum administrators are the ones who make that decision, not the members of the forum. So, all you "Guests" out there, please do not get the wrong impression and do not be discouraged from posting. Based upon what was written in the preceding posts I know it may not seem like it, but you are truly welcome here. Honest.

rested gal · Post by **rested gal** » Mon Dec 05, 2005 4:36 am

Well said, neversleeps. My sentiments exactly.

Mikesus · Post by **Mikesus** » Mon Dec 05, 2005 4:47 am

A lot of folks have stated 5 as a hard number, it really isn't.

This study for example uses 10 as a definition of Sleep Apnea.

Link

SA was defined by an apnea-hypopnea-index (AHI) ≥10/hour

The problem is that mild sleep apnea is very misunderstood at this point, and they keep redrawing the line for the gray area.

Here is another link that suggests that mild only starts at 10.

Link

As there is a continuum of possible AHIs from trivial to severe, defining the presence of clinically significant sleep apnoea is somewhat arbitrary. It is generally agreed that the AHI should exceed five to be considered significant, with some advocating an AHI of 10 or more. It has been suggested that an AHI of five to 15 represents mild sleep apnoea, 15-30 moderate and greater than 30, severe.4 However, the magnitude of associated symptoms and hypoxaemia also need to be considered when severity is determined.77

And this is the reason why there is so much discrepancy

No standard definition of an hypopnoea exists. It is usually defined as a reduction in airflow or respiratory effort for more than 10 s accompanied by a desaturation of 3% or more and/or electroencephalographic evidence of arousa

Deltadave pointed out once that hypopnea's as indicated by software, might or might not meet the above requirement, as oxygen desats are not recorded!

All of this "gobbledegook" just means that *IF* you are on the fence like that, you might want to talk to the doc and see if a lifestyle change could improve your situation. (AHI right near 5) As in Lories case it appears to have. For the rest of us that are much higher, we still need to wait for something better than the gold standard of CPAP. (I know RG is gonna throw her GREAT pillar/Tap link in here )

Sleepless on LI · Post by **Sleepless on LI** » Mon Dec 05, 2005 5:57 am

Thanks, Mike.

PS: Neversleeps, I am not at all embarassed by what went on. And if you were the one in my shoes, trust me, you wouldn't feel or say what you did. It was a vicious attack and she named others on this site and told me they felt the same as she. She is someone who is responsible, I'm sure, for the guest posts and now I see the link to them all. But no one has the right to know what they're dealing with. Okay.

JimmyKSenior · Post by **JimmyKSenior** » Mon Dec 05, 2005 9:48 am

In my very strong, and not so humble, opinion, guests should not be allowed and they should crawl back in their holes until they see their shadow, which they never will, because they lack the courage of conviction. They need something to hide behind. They defeat the purpose of the forum! I personally ignore guests and respect those who admit right after they post, that they were the guest sender and either forgot to or thought they signed-in. 90% of the guest posts seem to be either poorly thought out or just want to attack or disagree. The guest on College Girls birthday is a great example. If they don't want to read a post then hit 'back' and move on. That's why we provide a subject line, in case you were confused. The guests on this thread are gutless and are not contributing anything except negativity. I belong to other forums from baseball to fishing and guests are not allowed to reply to posts. They can ask a question (create a post) but they are not allowed to drag down those who post and listen within the rules and the spirit of the forum. Most forums require you you to join if you are going to actively participate. My vote is to change the rules because these "guests" are driving valuable contributors away!!!!!!!!!!!!!!!!!!!! I personally respect and accept Lori's feedback in the manner and spirit in which it is given - to be of help to others. These guests are not guests, but members who are afraid to stand up and be counted. This should not be allowed.

JimK