Variable Breathing always 60%+ - Concerned

[-SWS]

She was having a problem picturing as a diamond in the rough, and you want her pictruring you practically peferct in every way???? I mean, do you want her hallucinating???
O.

I thought that was the purpose for the tea party on the ceiling. So you mean to say Mary Poppins and I don't have all that much in common after all? Well baffle me...

Browser, do you think there's any chance the lumps might be related to fibromyalgia?
http://www.arthritis-treatment-and-reli ... algia.html

I suggest we just keep forging ahead... in light of the psychologist's and echo's reluctance to embrace my finer aspects.

[ozij]

I thought she referred to the questionable outing of the other kind - reposting this image (from the previous page) that you may have missed as I was editing and you replying...


O.

[MrSandman]

She was having a problem picturing as a diamond in the rough, and you want her pictruring you practically peferct in every way???? I mean, do you want her hallucinating???
O.

I thought that was the purpose for the tea party on the ceiling. So you mean to say Mary Poppins and I don't have all that much in common after all? Well baffle me...

Browser, do you think there's any chance the lumps might be related to fibromyalgia?
http://www.arthritis-treatment-and-reli ... algia.html

I suggest we just keep forging ahead... in light of psychologist's reluctance to embrace my finer aspects.

I have read that exact article before and yes it sounds like it or even the Dercums. I now have pain in the left breast tissue and left rib cage and under left rib cage. I had a chest xray that they said was normal.

I don't know. I don't have time to be sick.

[-SWS]

Ozij's pic certainly proves what a jolly holiday our threads can be when we simply wish hard enough.

Thank you for posting that uplifting picture, ozij!


Browser, maybe you could ask your doctor to administer the easy 12-point pressure test to screen for fibromyalgia. If you happened to have fibromyalgia you would simply manage the symptoms, and things could conceivably improve versus having it undiagnosed and untreated.

Also, I was wondering about the sensory-stimuli trait way back on page one because you may be both intelligent and an HSP type (those two traits can genetically travel together). If you are sensitive to sensory input, then it's conceivable that mask leaks, high pressure, machine noise, smells, etc. may even cause more awakenings or arousals for you than someone with low sensitivities to stimuli.

[ozij]

Got it.
Forbearance is the hallmark of your creed
O.

[-SWS]

Now that you mention it Creed was one of the 10 music CDs I was going to pack for Marsha's suggested exercise in exile to a punitive desert isle.
viewtopic.php?f=1&t=35886&st=0&sk=t&sd= ... 15#p309362

[MrSandman]

Ozij's pic certainly proves what a jolly holiday our threads can be when we simply wish hard enough.

Thank you for posting that uplifting picture, ozij!


Browser, maybe you could ask your doctor to administer the easy 12-point pressure test to screen for fibromyalgia. If you happened to have fibromyalgia you would simply manage the symptoms, and things could conceivably improve versus having it undiagnosed and untreated.

Also, I was wondering about the sensory-stimuli trait way back on page one because you may be both intelligent and an HSP type (those two traits can genetically travel together). If you are sensitive to sensory input, then it's conceivable that mask leaks, high pressure, machine noise, smells, etc. may even cause more awakenings or arousals for you than someone with low sensitivities to stimuli.

Well one thing I have learned is there is intelligence and then there is emotional intelligence. I am intelligent but obviously lacking in the emotional intelligence area. I tested 18 on the HSP test. I do feel I have never slept good since sharing a bed with my wife. I don't mean that in any way negative towards her. I told her I need my own bed if not room and she doesn't take that so well. I just think sleep is very important to me and that I slept better alone.

Maybe the big word thing will not bother me so much if I keep hearing them here. I remember when they started using gravitas in the campaigns and I thought how ridiculous was it to use a word most voters don't even understand. I always think people use big words to sound important but maybe that isn't always the case. I don't know.

[jules]

-SWS suggested being checked for Fibromyalgia; this overlaps with MCS (Multiple Chemical Sensitivity) in many (I have both diagnoses myself). MCS is also called Environmental Illness. Unfortunately, many doctors do not recognize MCS and people get labeled with all kind of psychiatric disorders as a result (which they don't have). Also most people with Fibro have apnea. Fibro is accepted more often now by the medical community but there are many who think it is just psychiatric too.

Is it possible for you to see an alternative medical person for an evaluation? A main stream MD is probably not be the place to get help. At one time there was someone in St Joseph MO who had a good reputation; I don't know if that is the case anymore or not as my information is very old on that. If you wish, I can do some searching.

[stacia123]

I told her a couple months ago that she snores now and sometimes pretty bad and I don't know how she could sleep through my snoring because hers is driving me nuts while I try to fall asleep. Time to find a tape recorder cause she says she doesn't believe she snores or not very bad if she does. She doesn't seem to stop breathing.

Now that I don't snore much I hear my husband snoring all the time. It keeps me awake at times - no idea how he slept through my snoring! Breathe Right strips really helped him, though, so your wife might want to check that out.

As for trying a new bed, can you maybe try different sleep times or a larger bed? Maybe she can get to bed first and you could come in to sleep afterwards, or vice versa?

[MrSandman]

I told her a couple months ago that she snores now and sometimes pretty bad and I don't know how she could sleep through my snoring because hers is driving me nuts while I try to fall asleep. Time to find a tape recorder cause she says she doesn't believe she snores or not very bad if she does. She doesn't seem to stop breathing.

Now that I don't snore much I hear my husband snoring all the time. It keeps me awake at times - no idea how he slept through my snoring! Breathe Right strips really helped him, though, so your wife might want to check that out.

As for trying a new bed, can you maybe try different sleep times or a larger bed? Maybe she can get to bed first and you could come in to sleep afterwards, or vice versa?

Thanks for the suggestions - I was afraid to read when I seen a new post . I guess I fell asleep so fast before that I never noticed.

Thanks Again

[-SWS]

Browser, I agree with echo's earlier suggestion to eventually summarize your sleep issues---either here or in a separate thread.

Right now I think some of the more relevant issues/recommendations may be: 1) very high VB rates possibly reflect an unknown health issue, 2) autoBiPAP with BiFlex might offer more effective therapy (regarding both comfort and ability to extend to higher pressures on an as-needed basis), 3) improving sleep hygiene will probably help, 4) reducing caffeine (especially late-afternoon and evening caffeine) should help with sleep onset, 5) eliminating just as many intrusive or uncomfortable stimuli may result in fewer sleep arousals for any HSP type (e.g. eliminating noises, light, extreme temperatures, GERD eruptions, uncomfortable mattress, etc.).

Your own analysis and summary will undoubtedly be the most important.

[MrSandman]

I have an appointment tomorrow with my family doctor to have him schedule me for a sleep study at the most professional hospital I have been to as far as sleep labs are concerned. Unfortunately I couldn't get an appointment until January 2nd with the sleep doctor that read my first few studies and has been in the business since the beginning.

I am also going to mention the sore lumps again to my doctor. I will also broach the subject of variable breathing and how on a certain board a cross section of the people there are at a much lower percentage and the one who is as high as me has had heart issues. I will BS a little to give more weight to the posters like -SWS i.e.: a couple Dr's who post.... No names mentioned... Last time I brought up something on the Internet he said he thought I needed to spend less time on the Internet. It may be time for a new family doctor. You see what I have found is after you bring up several issues over a short period of time these doctors tend to blow you off. I have had to get angry and say to them that I know my body the best. It is frustrating.

Thanks

[MrSandman]

Browser, I agree with echo's earlier suggestion to eventually summarize your sleep issues---either here or in a separate thread.

Right now I think some of the more relevant issues/recommendations may be: 1) very high VB rates possibly reflect an unknown health issue, 2) autoBiPAP with BiFlex might offer more effective therapy (regarding both comfort and ability to extend to higher pressures on an as-needed basis), 3) improving sleep hygiene will probably help, 4) reducing caffeine (especially late-afternoon and evening caffeine) should help with sleep onset, 5) eliminating just as many intrusive or uncomfortable stimuli may result in fewer sleep arousals for any HSP type (e.g. eliminating noises, light, extreme temperatures, GERD eruptions, uncomfortable mattress, etc.).

Your own analysis and summary will undoubtedly be the most important.

Going to bed earlier I think would help. I have been staying up till around 2am because I am working 2pm to 10pm. So I am sure when the alarm goes off around 5am and then the kids get up running around later it is probably waking me more than I know. Since I got consistent on CPAP the firm mattress we have has been so uncomfortable! I have had 100% more back and side pain since being consistent on CPAP. Caffeine, my next habit to conquer! I quit smokeless tobacco (Skoal) 4 days ago.

Interesting, last night AHI around 5 and VB% approx. 40% and one of the lower nights in a while.

Although Snoredog went back and deleted all his advice in this post,he seemed to think that BIPAP wasn't really going to be the answer except maybe for the higher pressure it can produce. He didn't seem to think I would get any of the usual benefits of BIPAP like comfort or less aerophagia. Disappointing.

Thank You Again

[-SWS]

We have some posters with medical credentials but I'm certainly not of of them. SAG seems to take your VB as a medical hint warranting further investigation. And he has excellent R.R.T. and R.P.S.G.T. medical credentials in addition to managing a fully accredited sleep center (that's better certification than a sleep lab).

Also, a reminder to ask for that easy 12-point fibromyalgia pressure test if you are so inclined. Hope your doctor listens to what you have to say. Man is it frustrating to receive a deaf ear in any medical interview.

I still think auto BiPAP with BiFlex can offer some pressure relief on those two points I had mentioned (PS helps with WOB, and exclusive FL &/or H clusters buy you lower EPAP compared to ordinary APAP). I did like Snoredog's idea about eventually sleeping in a chair to see how/if position affects VB. If VB plummeted after an experiment like that you could guarantee another few pages of medical conjecture and discussion from us folks in the peanut gallery IMO. I also like Jules' idea about at least considering the possibility of MCS (just may want to research that possibility before mentioning it).

Good luck tomorrow!

[stacia123]

Last time I brought up something on the Internet he said he thought I needed to spend less time on the Internet. It may be time for a new family doctor.

My previous doctor was the same way. When I told him I had read something on the 'net, he got really snotty with me. Then he got embarrassed when I explained it was part of my medical transcriptionist training, but still said "I guess nobody needs doctors now that there's the Internet." My new doc loves the 'net, and I love that about him. Good luck tomorrow!