Still Tired?

[sybert1ger]

I've been on CPAP for 6 months now. My AHI averages under 2.0. My leak rate is well within normal for my Swift. I sleep through the night with little interruption.

I am still tired!

I was relieved with the apnea diagnosis. I thought I'd finally start feeling better. I didn't want to be a hose head for the rest of my life but if I felt better it'd be worth it.

I didn't have any trouble adjusting to wearing it but now it's starting to wear on me. Without feeling better why should I put up with the hassle?

I saw my sleep doc a few weeks ago, showed him my Encore print outs. He agreed that everything appeared to be working and wanted me to go in for another sleep study to see if there's no something else going on.

Thanks for letting me let off some steam. It's frustrating because I really want this to be working.

[Sergey45]

[quote="sybert1ger"]I've been on CPAP for 6 months now. My AHI averages under 2.0. My leak rate is well within normal for my Swift. I sleep through the night with little interruption.

I am still tired!

I was relieved with the apnea diagnosis. I thought I'd finally start feeling better. I didn't want to be a hose head for the rest of my life but if I felt better it'd be worth it.

I didn't have any trouble adjusting to wearing it but now it's starting to wear on me. Without feeling better why should I put up with the hassle?

I saw my sleep doc a few weeks ago, showed him my Encore print outs. He agreed that everything appeared to be working and wanted me to go in for another sleep study to see if there's no something else going on.

Thanks for letting me let off some steam. It's frustrating because I really want this to be working.

[oceanpearl]

My guess is that there is something else going on. Are you under a lot of stress?

[sharon1965]

hey sybert1ger



i also started cpap six months ago, on jan. 4...was off for one month for septoplasty to correct deviated septum, but have been back on since may 3rd...have been 100% compliant other than that and have yet to feel better myself...i don't have the advantage of having my data as my RT sold an uneducated, naive person a bare bones machine, so who knows what could be going on through the night...but, i've tried many interfaces, do all the tricks and fixes i can find on these boards and try to maintain a good attitude about it all; it's certainly getting harder instead of easier since i don't see any appreciable results...i do wish i had a data capable machine so i would know better what the problem is

He agreed that everything appeared to be working and wanted me to go in for another sleep study to see if there's no something else going on.

i do have pretty severe periodic limb movement disorder and that was waking me very frequently, so now i'm on requip to manage the plmd and restless leg syndrome, but other than cpap, surgery and meds, i really don't know what to do (i know, i know, without the data capability there's no way of knowing) so i definitely hear ya...hope you can figure it out, though, since we both know just how very important this therapy is...let us know what happens if you go for another study

best of luck
sharon1965

[Wulfman...]

Are you getting ENOUGH sleep? How much?

Den

[oceanpearl]

Are you getting ENOUGH sleep? How much?

Den

Same question that Goofproof asked me and I found that I wasn't. This week I have been sleeping in the den where we don't get early sunlight I have been sleeping a couple of hours longer. We are going out this weekend to get some room darkening shades. It's either that or go to bed earlier. I think I will get the shades.

[andyomega]

your machine cannot detect spontaneous awakenings. No home machine can, only a PSG can. Half of my problems are waking up for reasons not known.
I am hoping the next time I see the doctor he will actually know something when I ask him about sleeping aids. I am doing my own research now.
So far, I think Ambien CR might be good to take care of those awakening.

[Oh_2get_some_sleep]

I'm in the same boat. Saw the sleep doc today after 45 days of CPAP. He said the numbers look great and I should feel rested. But i don't. I wake up 6 times or so each night. I fall back to sleep, but can not stay asleep.

He wants me to take Trazadone. I'm not to keen on that.

I use the swift II, and I think that small leaks are waking me up (the data showed zero large leaks). I'm going to switch to the mask I got when i did my titration study and see if that helps.

If I can't isolate it to my mask waking me up, well, I guess I'm stuck with the drugs (unless y'all have other suggestions?).

I'm getting 7+ hours a night. It is the constantly waking up that makes me tired.

Any Thoughts?

Thx

[Guest]

My husband has been on the cpap for about 4 years and he doesn't sleep well either. I feel he was frightenned into using this thing. It's obvious to me that it does nothing for him. He wakes up about 6 -10 times every night and he wakes me up also (even though I have no problem sleeping).
I recently moved to another bedroom. What a joy not to have to listen to that machine every night. It was like living in an intensive care ward. I'd be willing to make the sacrifice if it actually helped him! But it doesn't!

Can you take a poll on this board to see how many cpap users actually benefit from the use?

[ozij]

My husband has been on the cpap for about 4 years and he doesn't sleep well either. I feel he was frightenned into using this thing. It's obvious to me that it does nothing for him. He wakes up about 6 -10 times every night and he wakes me up also (even though I have no problem sleeping).
I recently moved to another bedroom. What a joy not to have to listen to that machine every night. It was like living in an intensive care ward. I'd be willing to make the sacrifice if it actually helped him! But it doesn't!

Can you take a poll on this board to see how many cpap users actually benefit from the use?

My husband has had a cpap machine for 3-4 years. He sleeps fitfully every night. I recently had to move to another bedroom because he wakes me up all night also. The noise of the machine I can handle, but not his waking up all night.Anyway, I thought the cpap machine was supposed to keep you asleep. He is only 175 lbs , not the usual cpap user.

I feel he has been "scared" into using this machine. It clearly does nothing for him.

Any comments or suggestions?

[Wulfman...]

My husband has been on the cpap for about 4 years and he doesn't sleep well either. I feel he was frightenned into using this thing. It's obvious to me that it does nothing for him. He wakes up about 6 -10 times every night and he wakes me up also (even though I have no problem sleeping).
I recently moved to another bedroom. What a joy not to have to listen to that machine every night. It was like living in an intensive care ward. I'd be willing to make the sacrifice if it actually helped him! But it doesn't!

Can you take a poll on this board to see how many cpap users actually benefit from the use?

My husband has had a cpap machine for 3-4 years. He sleeps fitfully every night. I recently had to move to another bedroom because he wakes me up all night also. The noise of the machine I can handle, but not his waking up all night.Anyway, I thought the cpap machine was supposed to keep you asleep. He is only 175 lbs , not the usual cpap user.

I feel he has been "scared" into using this machine. It clearly does nothing for him.

Any comments or suggestions?

Premature death and a host of medical problems DOES have a way of motivating a person to use this therapy. If it feels like "intensive care" now......the REAL THING could become a reality without successful treatment.

If he's been having these problems for this long, obviously he isn't receiving "successful treatment".
There's something wrong and it needs to be corrected.

If he wears a nasal mask, he could be leaking therapy air out of his mouth.
Improper mask fitting. (wrong size/type)
Possibility/probablility of the wrong pressure.
A machine with exhale relief - C-Flex or EPR - can help.
Other medical "issues".
The list is almost endless, but the the problem needs to be determined and solved.

A poll on this forum would probably reveal that the vast majority of users benefit from the therapy. WHY? Because they came here to get help to resolve the issues they were having. It's the ones who DON'T find their way to the forums that run the risk of giving up because they couldn't or didn't resolve their problems.

"Giving up" should NOT be an option!

Den

[tangents]

Ozij, I'm not sure what point you were trying to make. I think the two posts you quoted were from the same person, right?

Confused,
Cathy

[sybert1ger]

Thanks for the comments.

I sleep 7-9 hours a night and rarely wake up. I hope they see something the next sleep study.

[ozij]

Ozij, I'm not sure what point you were trying to make. I think the two posts you quoted were from the same person, right?

Confused,
Cathy

So do I.

O.

[BrianRT]

A thought....

Get hold of a pulse ox and wear it with the PAP. It's possible your SpO2 is dropping even with events treated. This can contribute to feeling crummy too.