huh?
My Therapy Thread
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
while i'm not dog slobber, i'll be happy to chime in until he gets here.jlsmithseven wrote: ↑Mon Dec 19, 2022 6:25 pm
Does this sound good Dog Slobber? Since everything seems to be pretty good just run these settings for a month or so, so we can collect some data?
Here are my setting changes and some stats as well..
you won't have to wait "a month or so". leave everything alone for one week, then let's see some charts.
we see by your statistics page that sir slobber was correct; too much of a rush to change things. but leaving things alone for a week should be sufficient.
another minor housekeeping point- try to form your daily charts like this-
your daily charts have too much information, making it harder to see.
good luck!
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
- Dog Slobber
- Posts: 3961
- Joined: Thu Feb 15, 2018 2:05 pm
- Location: Ontario, Canada
Re: jlsmithseven Therapy Thread
Good.
And yes, as Zonker said those charts are tough to read.
All we rrally are is the daily screen and at a resolution where we can read everything.
Your settings are pretty good, as far as treating your apnea. Let's leave things alone for week or so. This way we cn get a good baseline, and what I expect will happen you'll have some good nights and maybe some poor ones. But that's OK, that will re-enforce that the biggest variable isn't necessarily the machine, but the meatbag (palerider quote) at the end of the hose.
And yes, as Zonker said those charts are tough to read.
All we rrally are is the daily screen and at a resolution where we can read everything.
Your settings are pretty good, as far as treating your apnea. Let's leave things alone for week or so. This way we cn get a good baseline, and what I expect will happen you'll have some good nights and maybe some poor ones. But that's OK, that will re-enforce that the biggest variable isn't necessarily the machine, but the meatbag (palerider quote) at the end of the hose.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack |
Additional Comments: Min EPAP: 8.2, Max IPAP: 25, PS:4 |
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
Thanks again for calling me out, I think I needed that. Anyways , I had a good night last night with these settings again so I do think they are working very well compared to anything I’ve tried. I did wake up halfway through the night with some condensation in hose so turned humidity down 2 levels and that helped. Will keep it there unless I need to change, but woke up not too dehydrated. Still better than using auto climate control, it’s never enough. I will get back to this thread next week to show some charts. Appreciate it happy holidays.Dog Slobber wrote: ↑Tue Dec 20, 2022 7:14 amGood.
And yes, as Zonker said those charts are tough to read.
All we rrally are is the daily screen and at a resolution where we can read everything.
Your settings are pretty good, as far as treating your apnea. Let's leave things alone for week or so. This way we cn get a good baseline, and what I expect will happen you'll have some good nights and maybe some poor ones. But that's OK, that will re-enforce that the biggest variable isn't necessarily the machine, but the meatbag (palerider quote) at the end of the hose.
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
Just a quick update for this thread. I’ve been using the same exact settings since Monday …and this entire week (with the exception of maybe 1 night) I didn’t get good rest. That was mainly due to my food choices before bed I think. Anyways I will post charts sometime next week but thank you Dog Slobber for making light of my struggles to avoid changing settings. Only thing I changed was I dropped humidity down one night because of rainout.
On that note. My humidity is at lvl 5 with 84 degree tube temp. At level 6 I get rain out. I do wake up with a sore throat and headache sometimes but once I drink water I’m ok. Is my therapy going to be worse if I’m dehydrated during it or doesn’t that matter? I feel it’s still working fine, but I’d like to fix this issue if anyone has suggestions. Is it just the dry winter air causing it? Our humidity in our room isn’t bad…
On that note. My humidity is at lvl 5 with 84 degree tube temp. At level 6 I get rain out. I do wake up with a sore throat and headache sometimes but once I drink water I’m ok. Is my therapy going to be worse if I’m dehydrated during it or doesn’t that matter? I feel it’s still working fine, but I’d like to fix this issue if anyone has suggestions. Is it just the dry winter air causing it? Our humidity in our room isn’t bad…
Re: jlsmithseven Therapy Thread
I run a humidifier in the room as well.
Helps with humidity levels holistically and I don’t get rainout unless the tube gets very exposed to ambient air. We keep it cool in there and I run the hose along the pillow. Needless to say it was a COLD night last night but thankfully we are lucky to have a warm comfortable home.
Helps with humidity levels holistically and I don’t get rainout unless the tube gets very exposed to ambient air. We keep it cool in there and I run the hose along the pillow. Needless to say it was a COLD night last night but thankfully we are lucky to have a warm comfortable home.
_________________
Machine: AirSense 11 Autoset |
Mask: ResMed AirFit N30 Nasal CPAP Mask with Headgear |
Additional Comments: Newbie who loves her machine! |
Beware the schoolyard bullies, mean girls, and fragile male egos. Move along if you can’t be kind.
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
Night 01-
Night 02-
Night 03-
Night 04-
So as you can see all of the nights are very similar. Almost every day this week I woke up feeling more than good so I am very happy with these settings and my Dreamport mask. I did receive the Eclipse Halo mask last night and it was an epic fail (I made a new post about that; sorry Dog). I really hope they don't stop making Dreamports because they work amazing. I might stock up on them though. Anyways, Dog Slobber and RobySue1 I finally left my settings alone for a week and it's been fantastic. The only battle I'm dealing with now is humidity levels and the new Halos. If you have any recommendations on those it would be great. Thank you Happy
Holidays.
Edit: Only reason there is 4 nights is because I forgot to put my SD Card back in a few nights I was on vacation this weekend. But slept very good.
Night 02-
Night 03-
Night 04-
So as you can see all of the nights are very similar. Almost every day this week I woke up feeling more than good so I am very happy with these settings and my Dreamport mask. I did receive the Eclipse Halo mask last night and it was an epic fail (I made a new post about that; sorry Dog). I really hope they don't stop making Dreamports because they work amazing. I might stock up on them though. Anyways, Dog Slobber and RobySue1 I finally left my settings alone for a week and it's been fantastic. The only battle I'm dealing with now is humidity levels and the new Halos. If you have any recommendations on those it would be great. Thank you Happy
Holidays.
Edit: Only reason there is 4 nights is because I forgot to put my SD Card back in a few nights I was on vacation this weekend. But slept very good.
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
I am starting to get a little aerophagia with these settings now. Should I decrease the max a few at a time until it subsides? I almost feel looking at my charts that the pressure of 8 will more than suffice, but I could be wrong. It seems to go up to 8.6 then drop right away when no apneas are detected..Dog Slobber wrote: ↑Tue Dec 20, 2022 7:14 amGood.
And yes, as Zonker said those charts are tough to read.
All we rrally are is the daily screen and at a resolution where we can read everything.
Your settings are pretty good, as far as treating your apnea. Let's leave things alone for week or so. This way we cn get a good baseline, and what I expect will happen you'll have some good nights and maybe some poor ones. But that's OK, that will re-enforce that the biggest variable isn't necessarily the machine, but the meatbag (palerider quote) at the end of the hose.
- Dog Slobber
- Posts: 3961
- Joined: Thu Feb 15, 2018 2:05 pm
- Location: Ontario, Canada
Re: jlsmithseven Therapy Thread
I can't tell what you maximum is from the charts, they're too out of focus.
I would drop the maximum pressure by 0.2.
Then leave it there for a while. We *might* see your AHI go up a bit, especially if your pressure hits the max and wants to go higher.
I would drop the maximum pressure by 0.2.
Then leave it there for a while. We *might* see your AHI go up a bit, especially if your pressure hits the max and wants to go higher.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack |
Additional Comments: Min EPAP: 8.2, Max IPAP: 25, PS:4 |
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
8.6 is my max. shows up on my end. will lower it by .2Dog Slobber wrote: ↑Mon Dec 26, 2022 7:17 amI can't tell what you maximum is from the charts, they're too out of focus.
I would drop the maximum pressure by 0.2.
Then leave it there for a while. We *might* see your AHI go up a bit, especially if your pressure hits the max and wants to go higher.
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
Seems that aerophagia was only one night. Might have been due to something I ate earlier that evening. Anyways with these settings variations between level 8, my sleep has been as good as it’s ever been. Thank you Dog Slobber for the feedback and RobySue1 for the settings initially.
The only frustrating thing I’m dealing with now is my mouth being very dry in the morning. Tube temp at 84 and humidity level at 5 don’t understand it. Tried taping mouth last night it helped a little but I don’t get leaks so not sure why taping helps.
I’m definitely keeping these settings moving forward. Trying to figure out the Bleep Eclipse right now and humidity issues. I got a hose cover to see if it helps, so I will post back once I use that.
The only frustrating thing I’m dealing with now is my mouth being very dry in the morning. Tube temp at 84 and humidity level at 5 don’t understand it. Tried taping mouth last night it helped a little but I don’t get leaks so not sure why taping helps.
I’m definitely keeping these settings moving forward. Trying to figure out the Bleep Eclipse right now and humidity issues. I got a hose cover to see if it helps, so I will post back once I use that.
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
So my pressures being at 7 Ramp Starting, 8-8.6 APAP have been working great. 9/10 days though, I wake up with a headache/mouth dryness. I got a hose cover coming in the mail and I've just put my machine on the floor. I have Tube Temp at 84 and Humidity at 5. As soon as I put humidity on 6 I get rainout. So I'm trying to up the humidity as I make these changes to hose and AirSense 11 position on the floor.Dog Slobber wrote: ↑Mon Dec 26, 2022 7:17 amI can't tell what you maximum is from the charts, they're too out of focus.
I would drop the maximum pressure by 0.2.
Then leave it there for a while. We *might* see your AHI go up a bit, especially if your pressure hits the max and wants to go higher.
I have narrowed my dryness down to leaking of my mouth I guess. It could also be the dreamports leaking too much when they are in an awkward position. When I take a glass of water I wake up and feel great and rested so my pressure settings are ideal I think. I constantly get an AHI under 1.0 but if I leak somewhere it's between 1-3. I know AHI doesn't matter but it definitely has a relation to how I feel 6/7 times I look at it.
- Dog Slobber
- Posts: 3961
- Joined: Thu Feb 15, 2018 2:05 pm
- Location: Ontario, Canada
Re: jlsmithseven Therapy Thread
A leak can definitely cause dry mouth.
Some people have had success with xylimelts.
Some people have had success with xylimelts.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack |
Additional Comments: Min EPAP: 8.2, Max IPAP: 25, PS:4 |
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
I've tried them in the past, but never with this mask. I think my dreamports are actually causing the leak since it's so close to my upper lip area it probably gets a little cold from condensation or something there. Wasn't there a cozy or something I could get for the Bleep? I just don't want to block the exhaust holes.Dog Slobber wrote: ↑Sat Dec 31, 2022 8:39 amA leak can definitely cause dry mouth.
Some people have had success with xylimelts.
- jlsmithseven
- Posts: 257
- Joined: Mon Dec 20, 2021 6:18 pm
Re: jlsmithseven Therapy Thread
Thank you for this suggestion. The xylimelts have been helping me a LOT with my dry mouth in the morning, they work great. I wanted to give a little update on my therapy. So the settings Robysue suggested a little while back were working fantastic for a week, then it just stopped working that good. Then I tried messing with EPR and found myself in the same situation that Dog Slobber called me out on once again. I just can't help it. Anyways, I think the stress that all of this is causing me is definitely affecting my therapy more than I realize so it's not my machines fault.Dog Slobber wrote: ↑Sat Dec 31, 2022 8:39 amA leak can definitely cause dry mouth.
Some people have had success with xylimelts.
I try reverting to Robysue's settings and it just doesn't work anymore. There is always something new. I've never had to deal with leaks when I use the dreamports but now all of a sudden every mask I try to use leaks. So I've been trying to battle that and getting good therapy settings, it's just so frustrating that most nights I end up causing more harm than good.
So I guess my update here is to inform everyone that I did lose 10-15 pounds since the new year. I am trying to eat better. Generally this means lowering the pressure settings, but I found I need just as much pressure I believe. It's only like a 5% overall weight loss.
Also, I don't know what to try next. I am sick and tired of trying new masks, new pressure settings, new things that might help me sleep. I thought losing weight would help me sleep better but it seems it might be worse now. It's just all so very frustrating!