Large tongue is causing a problem. I’m so sleep deprived.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
ragtopcircus
Posts: 220
Joined: Mon Sep 09, 2019 11:55 am

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by ragtopcircus » Sun Sep 22, 2019 11:35 am

I think I have too much tongue for my mouth too. The Good Morning Snore Solution helped a lot, and I think it even helped with apnea. The catch is, I could never keep it on all night. Tongue curling is an issue - if you can curl your tongue (not everyone can), it will break the seal. On the plus side, it also helps you avoid mouth breathing and mouth leaks. I have tried wearing it with both pillow/nasal and full face masks. It works great while I can keep it on. It’s no panacea, but FYI ....

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack
Additional Comments: BiPAP VAuto 10-25 PS 4.4, and wherever my tempestuous turbinates take me ....

adesetisland
Posts: 13
Joined: Sun Sep 15, 2019 9:00 am

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by adesetisland » Sun Sep 22, 2019 2:46 pm

jimbud wrote:
Sun Sep 22, 2019 10:33 am
D.H. wrote:
Sun Sep 22, 2019 10:27 am
jimbud wrote:
Sun Sep 22, 2019 10:24 am
D.H. wrote:
Sun Sep 22, 2019 10:08 am
I fail to see a problem, at least according to numbers posted.

Am I to understand, that even though the numbers are good, you still feel lousy?

Try reading this. Large tongue is causing a problem. I’m so sleep deprived.
Post by adesetisland » Sat Sep 21, 2019 5:51 am


Does that help?
According to the stats, this person is sleeping almost enough hours. While (s)he's slightly under seven hours, it's not a severe shortfall.
Just because you have a mask on and a machine running does not mean you are sleeping well.

Does that help?
That has been my experience. My biggest issue is being jerked awake as I'm about to sleep. It was so bothersome last night, I hardly slept at all.

Those moments where I did manage to get some sleep, I don't believe they're deep sleep. I think part of it is that my tongue and tonsils leave a small enough airway for me to breathe accordingly, but I wake up a couple hours later at most. I don't know...maybe this is a combo OSA/UARS thing.

User avatar
ChicagoGranny
Posts: 15081
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by ChicagoGranny » Sun Oct 27, 2019 6:45 pm

ragtopcircus wrote:
Sun Sep 22, 2019 11:35 am
Good Morning Snore Solution
Note that you can get generic versions very cheap - https://www.amazon.com/Anti-snoring-Equ ... 21&sr=8-46

You can probably find one cheaper than that at walmart.com. Sorry, I don't have time to look at the moment.

User avatar
ragtopcircus
Posts: 220
Joined: Mon Sep 09, 2019 11:55 am

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by ragtopcircus » Sun Oct 27, 2019 7:10 pm

ChicagoGranny wrote:
Sun Oct 27, 2019 6:45 pm
ragtopcircus wrote:
Sun Sep 22, 2019 11:35 am
Good Morning Snore Solution
Note that you can get generic versions very cheap - https://www.amazon.com/Anti-snoring-Equ ... 21&sr=8-46

You can probably find one cheaper than that at walmart.com. Sorry, I don't have time to look at the moment.
I’ve tried that design and did not like it at all. It is very different from the GMSS. In particular, I did not like the flange pressing on the outside of my lips (GMSS is worn inside the lips, with only a small bulb protruding a little). Both do pull the tongue forward though.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack
Additional Comments: BiPAP VAuto 10-25 PS 4.4, and wherever my tempestuous turbinates take me ....

User avatar
ChicagoGranny
Posts: 15081
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by ChicagoGranny » Sun Oct 27, 2019 7:35 pm

ragtopcircus wrote:
Sun Oct 27, 2019 7:10 pm
I’ve tried that design and did not like it at all. It is very different from the GMSS. In particular, I did not like the flange pressing on the outside of my lips (GMSS is worn inside the lips, with only a small bulb protruding a little).
Were you sure to wear it properly? ------------>
Maximum comfort, placed in front of the teeth, behind the lips.

https://www.amazon.com/Anti-snoring-Equ ... 21&sr=8-46

User avatar
ragtopcircus
Posts: 220
Joined: Mon Sep 09, 2019 11:55 am

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by ragtopcircus » Sun Oct 27, 2019 8:10 pm

ChicagoGranny wrote:
Sun Oct 27, 2019 7:35 pm
ragtopcircus wrote:
Sun Oct 27, 2019 7:10 pm
I’ve tried that design and did not like it at all. It is very different from the GMSS. In particular, I did not like the flange pressing on the outside of my lips (GMSS is worn inside the lips, with only a small bulb protruding a little).
Were you sure to wear it properly? ------------>
Maximum comfort, placed in front of the teeth, behind the lips.

https://www.amazon.com/Anti-snoring-Equ ... 21&sr=8-46
It’s a knockoff of the Aveo TSD. See instructions on page 5 describing and showing it outside the lips. https://glidewelldental.com/wp-content/ ... -guide.pdf
However, I tried it both ways and didn’t like either. I also had trouble keeping it on for for than a few minutes. I could usually get partway through the night using the GMSS.

A weakness of both of those designs is that if you can curl your tongue (it’s apparently genetic - some can’t), it is very easy to break the seal by accident.

The GMSS is very thin and fairly comfortable between the lips and gum. There is a “Young Adult” size that is smaller, for those who find the original to be a mouthful.

Ymmv though. Both the Aveo and GMSS designs are compromises, and significantly different. Some may prefer the Aveo design.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack
Additional Comments: BiPAP VAuto 10-25 PS 4.4, and wherever my tempestuous turbinates take me ....
Last edited by ragtopcircus on Sun Oct 27, 2019 9:02 pm, edited 1 time in total.

User avatar
ragtopcircus
Posts: 220
Joined: Mon Sep 09, 2019 11:55 am

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by ragtopcircus » Sun Oct 27, 2019 8:18 pm

FWIW, the GMSS and Z-Quiet can be worn together. I did that for a long time before accepting that I really needed CPAP.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P30i Nasal Pillow CPAP Mask with Headgear Starter Pack
Additional Comments: BiPAP VAuto 10-25 PS 4.4, and wherever my tempestuous turbinates take me ....

Janknitz
Posts: 8494
Joined: Sat Mar 20, 2010 1:05 pm
Location: Northern California

Re: Large tongue is causing a problem. I’m so sleep deprived.

Post by Janknitz » Mon Oct 28, 2019 2:24 pm

My biggest issue is being jerked awake as I'm about to sleep. It was so bothersome last night, I hardly slept at all.
Sounds to me like you are experiencing hypnic jerks. "Hypnic jerks or sleep starts are benign myoclonic jerks that usually occur on falling asleep. Various factors like excessive caffeine intake, physical, and emotional stress can increase their frequency." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4481805/

Before CPAP, I had these frequently, a few times a night (because I was waking often due to apnea). I would just be falling asleep and . . . JERK. Then I was awake fully again. Ugh!

It took a while, but now I rarely have them--had one the other night and was surprised because it's been a long time since I've had one. (Under a lot of stress right now in a California Wildfire emergency).

Your chart looks good, it seems like you are getting very good treatment. But I wonder what your O2 levels do during the night. Can you get your hands on a recording pulse oximeter?
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm