jnk... wrote: ↑Fri Feb 01, 2019 3:08 pm
Arlene1963 wrote: ↑Fri Feb 01, 2019 2:35 pm
"
However, no association was noted between severity of sleep-disordered breathing and presence of daytime sleepiness, measured with the
Epworth sleepiness scale."
Before I was diagnosed and was still untreated, I didn't feel at all sleepy during the day, nor did I have fatigue.
I felt wired most of the time, verging on anxiety/easily upset/irritated. (oh who am I kidding I was a b*(&) at times, why does my husband love me being on CPAP so much I wonder??)
So yes, the ESS might not be useful for many of us.
I had other symptoms such as nocturia, night sweats, waking up with a racing heart and vivid dreams. These all resolved with CPAP and that is why I will never stop using it, so I am quite lucky because I have very obvious benefits and incentives.
Thank you for sharing all of that.
Well said. Helpful words for many.
Nice thread, thank you… learned a lot ...
Concerning Epworth I very much agree with Arlene1963. Only night workers would admit to be sleepy during the day. Spanish siesta is simply not acceptable in Hypnolaus - Land.
I think that Arlene1963 clearly nailed the symptoms that should be addressed in respect to OSA. Anxiety, fear induced insomnia, irritability …
I thought I should let you know that I was not a HypnoLaus guinea pig in 2015. They simply must have forgotten me.

.
Isn't it odd that
“29% of HypnoLaus participants declined to have polysomnography". Why did so many bale out ? They all knew it was the point of the study no ? Were they honest to Epworth and got scared away ? Did they lay to Epworth ??? And got depressed ?
"in our study, almost every individual had some degree of sleep-disordered breathing"
Well that is comforting. Maybe I am normal considering I live in Lausanne ? Could my 39 AHI just be acceptable ? No ??? Hmmm, maybe not …
"our results emphasise the importance of dedicating health care resources to individuals at high risk of complications rather than initiating treatment based on an apnoea-hypopnoea index threshold."
Well said … , to tell you the truth they still base their treatment on AHI. I am THAT guinea pig now...
I got hit Feb 2016 and landed strait in Hoseland. And thanks to many here I got lots of help, advise and the sanity to keep my CPAP alive. I got a split night PSG Oct 2018 as the aerophagia monster was having too much fun with me. Well, the outcome was clear. My sleep is much better with VPAP than without period.
And I love their final conclusion :
“A progressive association between severity of sleep-disordered breathing and cardiovascular, metabolic, and psychiatric diseases will be hard to define.” They are not kidding ? Wouldn’t the mixing up of that many parameters logically come up with such a conclusion ?
Oh, boy ! Should I give up chocolate ? check my heart ? eat more Effexor, less Lamictal, and what about the Ritalin for my ADD ?
If only Zeus could talk to my CPAP El Nino I sure would love Hoseland. Or is it all that nice French red wine in my belly that is able to call for El Nino ???
