Why your sleep study night will be an awful night of sleep

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Shore Snorer
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Why your sleep study night will be an awful night of sleep

Post by Shore Snorer » Sun Aug 04, 2013 4:45 pm

I recently had my fourth sleep study. (Why so many? I'll explain in a bit.) This time, I walked in with well-calibrated expectations: whether or not the sleep study was a "success," I was not going to have a good night's sleep.

You won't, either. You should go anyway.

It doesn't matter if your sleep study is at home or in a sleep center. It doesn't matter if you're going in for a diagnostic sleep study ("Do you have sleep apnea, and if so, how bad?") or a titration study ("What pressure should we set your CPAP machine for?"). During your sleep study, you'll have over a dozen wires glued to different parts of your head and body. You'll also have a band strapped around your chest. You'll have a pulse oximeter clamped and taped to one of your fingers. What's all that add up to? If you've ever worn an uncomfortable, poor-fitting piece of clothing ... this is far worse.

Does this sound uncomfortable to sleep in? Try going to the bathroom in it. At a sleep center, this will involve getting the technician's attention, getting unhooked, being given the wire harness (probably on a loop around your neck), and getting out of bed and walking to the bathroom with all of the above. If you're a guy and remain standing throughout the entire performance, you'll have to do everything one-handed; the other hand will be dedicated to keeping the wires out of the way.

At a sleep-center-based study, you may be hooked up to a CPAP machine for your very first time. This will not make you more comfortable. The CPAP mask is held in place with two straps that go around your head. Think of it as a small plastic version of the face-hugger monster from the movie Alien. (At least it won't incubate into a chest-ripper.) You may need to try on multiple masks, because the first mask may not work well. (I could barely breath with the nasal mask I was fitted with. "Keep breathing through your nose," the technician encouraged me. "If you need to, try breathing deeply." I did so, if "deeply" meant "with all your physical might and all your willpower." It was exhausting and terrifying. "I guess you're a mouth breather," the technician explained, fitting me with a mask that covered both my nose and my mouth. I was able to breath through my nose with that mask; I still don't understand why.)

Once you get a well-fitting mask, will you sleep well? No. The point of a titration study is see what pressure your CPAP machine will need. This means the sleep center technician will set the CPAP machine to a setting labeled "too low," and gradually increase it.

If you're lucky, your visit to a sleep center will be a "split night" study. After a few hours, the technician will come into your room, wake you up, announce that you've been successfully (?) diagnosed with sleep apnea, apply the face-hugger, and tell you to fall back asleep. If you're unlucky -- for example, if for some reason you haven't gotten enough sleep early enough in the sleep study night -- the technician will tell you there's isn't enough time remaining to do a titration study. Congratulations; you've just won a some-expenses-paid trip back to the sleep center. (That's how my first two sleep studies went.)

Finally, at a sleep center, you'll get woken up too early. At least for me, the studies were each done in one technician's shift. That's maybe nine hours to get there, wait for the technician to hook up someone who arrived before you, get hooked up, and go through everything described above. You can't do all that, and get seven or eight hours of sleep, in the time allotted. At the end of my most recent sleep study, one of the final questions was "If we'd let you, could you have slept longer?" I choked back my first thought (too rude) and simply said, "Yes, absolutely."

My first two sleep studies went from bad to worse. All I learned from the first study was, "You got no deep sleep; you need to come back." All I learned from my second study was, "You need a CPAP machine." (No, they didn't tell me if my deep sleep was any better with the CPAP.) I'd had two terrible nights and gotten really no data. I blew it off for four years.

My third sleep study, at home this time, was much more helpful. It wasn't being able to sleep in my own bed, or the lack of a face-hugger; it was the data! The home sleep study report included total apnea-hypopnea index (AHI), broken down by type of event. My total AHI was 46.8 events per hour, which scores as "severe." (It's probably understated. That number was computed against eight hours in bed, not the six hours of sleep my Zeo reported. Six hours is also consistent with my memory of waking up and not being able to fall back asleep for two hours. I'll talk about my soon-to-be-lamented Zeo some other time.) Here's how the data broke down by type of event:
  • Obstructive sleep apneas: 3.5 per hour in bed; not bad.
  • Mixed sleep apneas: 0.4 per hour in bed; no problem.
  • Central sleep apneas: 17.7 per hour in bed, on the very low end of moderate; worrisome.
  • Hypopneas: 25.2 per hour in bed (33.6 per hour of sleep, severe even if I had no apneas); uh-oh.
Okay, now I'm a believer.

I just had my fourth sleep study (in a sleep center, with a CPAP machine). I knew I wouldn't get a good night's sleep. I didn't have to work the next day, so I also knew I'd have an opportunity to go home and fall back asleep, or at least take a nap during the day. I wrote a letter requesting data, gave a copy to my doctor to attach to my sleep study prescription, faxed a second copy to the sleep center's office, and brought a third copy with me to the sleep study and included it with all the paperwork I gave to the technician. It's too early to see how much it helped, but it couldn't have hurt. (My letter was based on the CPAP Talk article "Insurance, DMEs, getting the data-capable machine you need.")

I haven't gotten the report yet. (It'll take about two weeks.) I did get some informal feedback from the sleep center technician: "We were able to find a pressure that led to no respiratory events." (Or words to that effect; if that sounds fishy, I may be mis-quoting.)

I feel optimistic. I got an awful night's sleep during the sleep study. It'll be a few weeks before I can get a CPAP machine. I'll have to live with a face-hugger on my head and a pump by my bed. I won't get a magic "burst of energy" my first night as as hosehead (see the CPAP Talk article "Newbie would like to hear success stories, please"). But I've got a chance.

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LSAT
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Re: Why your sleep study night will be an awful night of sleep

Post by LSAT » Sun Aug 04, 2013 5:04 pm

Because you had a bad experience doesn't mean everyone will. I had 2 sleep studies without any problems . I slept through both. Reading your post it sounds like you "knew" it wouldn't be good before you went. You need a positive attitude if you are to be successful with CPAP treatment. You will not be successful if you insist on being negative.

xdman911
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Re: Why your sleep study night will be an awful night of sleep

Post by xdman911 » Sun Aug 04, 2013 5:06 pm

I suggest being overly-tired when arriving.


My sleep study story:

viewtopic.php?f=1&t=91047&p=837913#p837913

hyperlexis
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Re: Why your sleep study night will be an awful night of sleep

Post by hyperlexis » Sun Aug 04, 2013 5:52 pm

Very true. Long story but yeah that's what its like.

I had mine at home and they sent a tech to do all the wiring and computer set up. It was quite a production. However, even in my own bed I still had terrible insomnia and they only got 3 hours of rem sleep out of me. They couldn't do a split night and I have still never had a titration as a result.

What I should have done was to ask my MD for a tranquilizer beforehand. That would have been immensely helpful and reduced my anxiety and let me sleep. The next study I do that's what I will do first.

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zoocrewphoto
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Re: Why your sleep study night will be an awful night of sleep

Post by zoocrewphoto » Sun Aug 04, 2013 6:54 pm

My sleep study was great. I only woke up once during the Diagnosis for the bathroom. After 2 1/2 hours, they put the mask on me. I rolled over and slept 5 hours straight. First time in several years. I really wanted my machine after that.

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ughwhatname
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Re: Why your sleep study night will be an awful night of sleep

Post by ughwhatname » Sun Aug 04, 2013 7:16 pm

zoocrewphoto wrote:My sleep study was great. I only woke up once during the Diagnosis for the bathroom. After 2 1/2 hours, they put the mask on me. I rolled over and slept 5 hours straight. First time in several years. I really wanted my machine after that.
I think due partly to stress about the test, along with nocturnia (sp?), I got up every two hours to pee. I hated asking for help getting uphooked, and apologized profusely every time. They said they were used to it. I didn't understand why until I found this place. Had no idea that I was experiencing those symptoms due to the apnea.

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Julie
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Re: Why your sleep study night will be an awful night of sleep

Post by Julie » Sun Aug 04, 2013 7:33 pm

Hi - I am so angry! There are people out there who are already afraid of what will take place (on one night, in a bed, in a laboratory in a medical facility - not on a 'rack' on a desert island with no one around), and we all have gone through it and try hard to encourage and reassure newbies that it's really not a big deal, and then along comes you, as negative minded as anything I could ever imagine.

This is life and death to people - so you had an unpleasant few hours, a couple of annoyances, but so what? Those people need to know it's no more than annoying (whatever your level of tolerance to such things). There's no invasive surgery, with or without anesthesia, and if all you have to complain about is some noise, a few wires, bathroom inconvenience and whatever else, you're very lucky, because you're being tested (and eventually treated) for a medical problem half the world doesn't even know about let alone deal with, but they end up having rotten lives because of OSA and eventually a (likely) earlier death.

I wonder if you'd consider changing the title of your note so it won't put off newbies before they even get started.
Last edited by Julie on Mon Aug 05, 2013 3:38 am, edited 1 time in total.

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chunkyfrog
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Re: Why your sleep study night will be an awful night of sleep

Post by chunkyfrog » Sun Aug 04, 2013 7:38 pm

The lab was MUCH cooler than I am used to. If ever I have to go back, it's MY quilt and MY pillow.
Otherwise, it was interesting; but not horrible. I did sleep during both studies--much better during titration.
Then, I actually awoke with NO HEADACHE! WHOA--this is significant!

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Bill44133
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Re: Why your sleep study night will be an awful night of sleep

Post by Bill44133 » Sun Aug 04, 2013 8:17 pm

So sorry to read that you were so negative with your sleep study experience. Mine was extremely restful. I had immediate results.

Two and a half hours into my first study CPAP and Bilevel PAP titration was initiated. I slept like I had not slept in years. The tech wanted to end my study at 5:30 am. I begged her to let me sleep an extra hour. She agreed to allow me to sleep and I couldn’t believe how good I felt. I actually could drive and not fall asleep at the wheel. I should mention that my study was done at the Court Yard Motel by Marriott. This past Wednesday 7/31 I had my second sleep study because they could not solve my snoring during the first study because of “un-controllable leaks”. I expect my results tomorrow or Tuesday. Again, I had no issue during my study at all.

This is a condition that erodes your health over time, it is so important that this gets taken care of.

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ughwhatname
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Re: Why your sleep study night will be an awful night of sleep

Post by ughwhatname » Sun Aug 04, 2013 8:20 pm

chunkyfrog wrote:The lab was MUCH cooler than I am used to. If ever I have to go back, it's MY quilt and MY pillow.
Otherwise, it was interesting; but not horrible. I did sleep during both studies--much better during titration.
Then, I actually awoke with NO HEADACHE! WHOA--this is significant!
I asked about that, and they said that they keep the room cooler to avoid having patients sweating the leads off. I actually really liked it because when I had untreated apnea, one of the symptoms was night sweats which weren't related to menopause. Now, if I were to go, I don't know that I would appreciate it as much since that symptom is 100% gone. Yes!

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xdman911
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Re: Why your sleep study night will be an awful night of sleep

Post by xdman911 » Sun Aug 04, 2013 8:28 pm

Julie wrote:Hi - I am so angry! There are people out there who are already afraid of what will take place (on one night, in a bed, in a laboratory in a medical facility - not on a 'rack' on a desert island with no one around), and we all have gone through it and try hard to encourage and reassure newbies that it's really not a big deal, and then along comes you, as negative minded as anything I could ever imagine.

This is life and death to people - so you had an unpleasant few hours, a couple of annoyances, but so what? Those people need to know it's no more than annoying (whatever your level of tolerance to such things). There's no invasive surgery, with or without anesthesia, and if all you have to complain about is some noise, a few wires, bathroom inconvenience and whatever else, you're very lucky, because you're being tested (and eventually treated) for a medical problem half the world doesn't even know about let alone deal with, but they end up having rotten lives because of OSA and eventually a (likely) earlier death.

Did you never learn "If you can't say anything good, say nothing at all"? This would be the time to remember it. At least change the title of your note ('edit' button), so it won't attract and frighten newbies.
Isn't this forum here so people can share stories and experiences. So obviously one person isn't going to ruin it for all. Google search Disney World and read the reviews. Does someone elses review mean your not going to enjoy yourself. NO. Thanks for sharing your story and sorry that Julie practically bashed you for doing so. Hopefully the remainder of the comments will be advise to help you have a better sleep study experience the next time you have to have one.


My word of advise. Make sure your good and tired when you go; go to bed late the night before and get up early in the morning.

Thanks for sharing your story.

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Julie
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Re: Why your sleep study night will be an awful night of sleep

Post by Julie » Sun Aug 04, 2013 8:34 pm

I have no problem about sharing anything, and many people have complained about studies before this. I was very surprised though to see the subject title line like that - really set me off (which may be my problem I suppose), and another one would have been less blatant. Sorry.

xdman911
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Re: Why your sleep study night will be an awful night of sleep

Post by xdman911 » Sun Aug 04, 2013 8:38 pm

I agree with the title, it could be more blunt to say. Not trying to start a "this-sucks" war lol

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Re: Why your sleep study night will be an awful night of sleep

Post by zoocrewphoto » Sun Aug 04, 2013 9:33 pm

ughwhatname wrote:
zoocrewphoto wrote:My sleep study was great. I only woke up once during the Diagnosis for the bathroom. After 2 1/2 hours, they put the mask on me. I rolled over and slept 5 hours straight. First time in several years. I really wanted my machine after that.
I think due partly to stress about the test, along with nocturnia (sp?), I got up every two hours to pee. I hated asking for help getting uphooked, and apologized profusely every time. They said they were used to it. I didn't understand why until I found this place. Had no idea that I was experiencing those symptoms due to the apnea.


Same here. I was so embarrassed when I woke up about an hour into the study. I didn't want to ask for help. I think the sleep tech is so used to it that she made an excuse to come in which allowed me to ask. Then when she woke me an hour and a half later for the titration, she asked if I needed the bathroom while I was up. That sounded good.

It wasn't until later that I learned how common that is. And they must be very used to it.

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Re: Why your sleep study night will be an awful night of sleep

Post by Papit » Sun Aug 04, 2013 11:44 pm

No, Shore Snorer, it doesn't have to be an awful night at all: -- Especially If you show up very tired, so wake up a couple or three hours earlier than usual on the day of your lab test.

Here are a few more ideas that can be helpful. -- Take a couple of very long walks during the day of the test. --Realize in advance that they will be pasting a dozen or so wires to your head, chest and leg and accept that. That's how they collect the necessary sleep data. -- Remember to take your favorite mask and main air tube with you and, if you want, a favorite pillow. -- Take your cell phone with you for the comfort of simply having it right there. (Use it if you want to before you mask up. I also took my laptop and nobody there had any objections.) --If you have a script for sleeping pills, take them along with a cup of water so you have a backup plan if needed or, if not, ask your doc for a pill to calm you or for sleep to use as and if needed. It's allowed if you have a script. -- Plan ahead to watch some tv in bed after you get wired up if there's a favorite program on early that night or bring a magazine or good book. -- If the room is a bit too cool or too warm, just ask them to adjust the temperature the way you want. It's a quick, easy adjustment for them to make. -- Ditto with the room lighting and an extra fan can be turned on if you would like. -- Don't hesitate to push the call button at your test bed if you need to go to the bathroom at any time(s) during the night. They have an easy "quick release" connector tied in to all the wires on you so they won't have to undo or redo any of the wires pasted onto you when you need either to go to the restroom or even just to take a walk in the corridor if you like. That's what I did when I felt a little restless and wanted to get up and amble around. It's really a no-pressure environment.

There's nothing at allpainful involved in the entire procedure and the data collected will be the key to setting your xpap machine close to your ideal settings for best treatment. Have at it. All the best to you, Shore Snorer.

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