My journey to treat Upper Airway Resistance (and bruxism)

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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AnnieLA
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My journey to treat Upper Airway Resistance (and bruxism)

Post by AnnieLA » Wed Apr 24, 2013 7:44 pm

Good day ladies and gentlemen!
I'm new here and to cpap in general. I'm sure I can learn a lot from your wisdom and experiences. So I decided to start a journal describing my attend at a better sleep (and better health).

Apparently I may suffer from Upper airway resistance syndrome, but I'm not sure (it's hard to find a consensus on what upper airway resistance syndrome really is!).
But here's my symptoms:
  • Sleep bruxism
    Fatigue all day long despite sleeping 8 to 9 hours
    High blood pressure
    Frequent awakening during the night
Keep in mind, I don't smoke nor drink. I'm fit, active physically and eat very healthy.

I bought a pulse oximeter and audio recorder to record my sleep. It turns out may times during the night, I get small drops in blood oxygen (from 98% to 95%). Then my jaw muscles and pulse would get activated. And five seconds later, I wake up, take a deep breath, change position and fall back asleep.

So far I have been using my auto cpap for three days. It did record about 2 apnea events per night at a pressure of 6. Is that good? Or do you consider a cpap treatment successful only when you get zero apnea event?

I know I have a lot of testing to do ahead of me, especially if my problem is not apnea event but upper airway resistance.
On a side note, I first bought the Quattro FX full face mask because I was normally breathing a lot from my mouth. But it turns out that with the cpap pressure, I'm now a nose breather! The resistance is gone. That's the good news.

The bad news is that the full mask was giving me a lot of pimples around my mouth and on my nose. I normally have oily skin on my face, and my guess is the added humidity and heat probably helped my skin to develop more pimples. And I got a bleeding bruise on my nose bridge on the third night!! Was it a pimple that got destroyed by the mask? I don't know but it sure makes wearing a full mask too painful now. Too bad, I slept very well on the first two nights.

But since I'm not using my mouth to breathe any more, I went ahead and bought the Swift FX nasal pillow today. I hope I won't open my mouth during sleep. Is there any easy way to detect if you opened your mouth while looking at cpap data on your PC?

Thanks for reading. I know it's a lot of questions, but hopefully one day I'll be able to answer yours.

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Todzo
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by Todzo » Wed Apr 24, 2013 8:17 pm

AnnieLA wrote:Good day ladies and gentlemen!
I'm new here and to cpap in general. I'm sure I can learn a lot from your wisdom and experiences. So I decided to start a journal describing my attend at a better sleep (and better health).

Apparently I may suffer from Upper airway resistance syndrome, but I'm not sure (it's hard to find a consensus on what upper airway resistance syndrome really is!).
But here's my symptoms:
  • Sleep bruxism
    Fatigue all day long despite sleeping 8 to 9 hours
    High blood pressure
    Frequent awakening during the night
Keep in mind, I don't smoke nor drink. I'm fit, active physically and eat very healthy.

I bought a pulse oximeter and audio recorder to record my sleep. It turns out may times during the night, I get small drops in blood oxygen (from 98% to 95%). Then my jaw muscles and pulse would get activated. And five seconds later, I wake up, take a deep breath, change position and fall back asleep.

So far I have been using my auto cpap for three days. It did record about 2 apnea events per night at a pressure of 6. Is that good? Or do you consider a cpap treatment successful only when you get zero apnea event?

I know I have a lot of testing to do ahead of me, especially if my problem is not apnea event but upper airway resistance.
On a side note, I first bought the Quattro FX full face mask because I was normally breathing a lot from my mouth. But it turns out that with the cpap pressure, I'm now a nose breather! The resistance is gone. That's the good news.

The bad news is that the full mask was giving me a lot of pimples around my mouth and on my nose. I normally have oily skin on my face, and my guess is the added humidity and heat probably helped my skin to develop more pimples. And I got a bleeding bruise on my nose bridge on the third night!! Was it a pimple that got destroyed by the mask? I don't know but it sure makes wearing a full mask too painful now. Too bad, I slept very well on the first two nights.

But since I'm not using my mouth to breathe any more, I went ahead and bought the Swift FX nasal pillow today. I hope I won't open my mouth during sleep. Is there any easy way to detect if you opened your mouth while looking at cpap data on your PC?

Thanks for reading. I know it's a lot of questions, but hopefully one day I'll be able to answer yours.
Hi AnnieLA!

Upper Airway Resistance Syndrome (UARS) appears to me to be more about breathing effort and a fight against resistance than Apnea or Hypopnea, indeed you may never have an apnea or hypopnea and yet still have UARS.

Many mention a hyper-active nervous system. It does seem to be about nerves.

I am suspicious that carbon dioxide maintenance issues are also involved. When my nerves become over activated due to Post Tramatic Stress (PTS) I use EERS[1] to deal with the tendency to blow off too much carbon dioxide. There may be better treatments to come[2].

I have also found it useful to do the following:

1. Reduce the stress load in my life. Stress seems to be the major factor to cause the kind of ventilatory instability that causes the arousals and awakenings. It also seems to set my breathing reflexes (chemoreflexes) toward hypocapnic.
2. Raise the head of my bed a couple of inches. Tends to reduce swelling in the upper airway so less restriction to fight about. May help with acid reflux if that has a part in forming the obstructions. I think helps to prevent the rostral fluid shift often noticed with OSA.
3. Spend some quality time with my CPAP during the day. Time in bed learning to breath quietly. Time at the desk. Time listening to music. Time watching light TV. With being fully awake I think you build better breathing reflexes.
4. Move toward an active lifestyle. So far today I have walked 2214 steps (none aerobic yet) and have cycled about a mile. My goal is 10,000 for this day so will take a walk a bit later. I hope to start running since I read it is good for the brain. I think that the time I spend at 85% of my maximum heart rate is particularly good for developing good breathing reflexes, which I think are part of breathing well at night and so not breaking into ventilatory instability and its arousals.
5. Eat in an anti-inflammatory way.

Have a great week!

Todzo

[1]: Gilmartin G, McGeehan B, Vigneault K, Daly RW, Manento M, Weiss JW, Thomas RJ.
Treatment of positive airway pressure treatment-associated respiratory instability with enhanced expiratory rebreathing space (EERS).
Source: J Clin Sleep Med. 2010 Dec 15;6(6):529-38. Division of Pulmonary, Critical Care and Sleep Medicine, Beth Israel Deaconess Medical Center, Boston, MA, USA.
Link: http://www.ncbi.nlm.nih.gov/pubmed/21206741

[2]: Dynamic CO2 therapy in periodic breathing: a modeling study to determine optimal timing and dosage regimes
Yoseph Mebrate, Keith Willson, Charlotte H. Manisty, Resham Baruah, Jamil Mayet, Alun D. Hughes, Kim H. Parker and Darrel P. Francis
J Appl Physiol 107:696-706, 2009. First published 23 July 2009; doi: 10.1152/japplphysiol.90308.2008
Link: http://www.ncbi.nlm.nih.gov/pubmed/19628721
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archangle
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by archangle » Thu Apr 25, 2013 2:58 am

Good luck with the Swift FX. When I switched, I would use the Swift until my nose got irritated, then switched back to my other mask. I'd keep increasing the use. Now Swifty is my best buddy.

Many people find Lanisnoh HPA Lanolin from the baby supply section helps keep the irritation down. I adapted without it and have no irritation.

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NotLazyJustTired
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by NotLazyJustTired » Thu Apr 25, 2013 6:35 am

Hello and welcome to the forum. I also have UARS and have had to do a lot of research to start to understand it. There are a lot of very knowledgeable people here that can help you. We will need some more information. Did you get a sleep study? If so, did they score RERAs? What was your RDI and/or AHI from the sleep study?

Can you put your equipment in your profile? If we know more about that we can suggest some software to look at your data and get some ideas if there is anything that needs fixing.

On the surface it is not clear to me whether you are having sleep fragmentation due to arousals from just the bruxism, or if sleep breathing is also an issue. Your data may help us sort that out.

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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by NotLazyJustTired » Thu Apr 25, 2013 7:25 am

Mea culpa! It looks like you already had your machine listed!
I am a ResMed user, but I believe that machine does record efficacy data. You can use an open source program called Sleepy Head to view your data. And I think you can use Encore Basic as well, but I am not familiar with that one. Sleepy Head can be downloaded here:

http://sourceforge.net/projects/sleepyhead/

In my case my UARS appears to be related to Flow Limitation and a high occurrence of RERAs, hence the questions about your sleep study. My original prescription was for APAP range of 5cm to 15cm. From careful observation of my flow rate and flow limitation graphs I have found that I am getting better results by raising my minimum up to 7cm. I have my follow up with the doc in a couple weeks and we will discuss if this is a good range or whether I should raise it more. My basic point here is that the data can really give some good pointers if you know what to look for. And trust me, there are lots of folks here who have been through this and know what to look for!

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Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: SleepyHead software; Pressure 7-15
"So oftentimes it happens, that we live our lives in chains, and we never even know we have the key."
...from The Eagles, "Already Gone"

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Pugsy
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by Pugsy » Thu Apr 25, 2013 8:38 am

AnnieLA wrote:I hope I won't open my mouth during sleep. Is there any easy way to detect if you opened your mouth while looking at cpap data on your PC?
Usually it can be spotted on the leak line graph as a larger than usual leak that goes on for several minutes.
Sometimes it goes into large leak territory (with the PR S1 machine large leak territory is somewhere around 90 L/min)
and sometimes it stays below large leak territory.
It normally gives the appearance of sort of a plateau on top for several minutes as opposed to brief spike leaks.

For me if I don't spend much time in large leak territory...I don't care if I am mouth breathing leak or whatever leak as long as the leaks don't disturb my sleep. Leaks (even small ones) from whatever cause that disturb sleep are unwanted but more because they disturb sleep than because they impact therapy.

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AnnieLA
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by AnnieLA » Thu Apr 25, 2013 8:46 am

Thank you all for your answers. I went ahead and installed SleepyHead.
My clinical sleep study was negative for sleep apnea, but I had so much trouble falling asleep with all the gear on me that I don't think it was representative of a normal night for me. So my doctor gave me the prescription for a cpap based on my symptoms only. That's why I'm not 100% sure what I'm suffering from.

Here's the data from last night according to SleepyHead:
  • 2 clear airway apnea events
    1 flow limitation event
    2 hypopnea
    1 obstructive apnea
I don't have any problem with my new Swift FX so far. But based on the data, I'm thinking of increasing the minimum pressure to 7. What do you guys think?

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Learn more about bruxism (teeth grinding) here:
http://www.cureyourbruxism.com/

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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by Pugsy » Thu Apr 25, 2013 2:28 pm

AnnieLA wrote: based on the data, I'm thinking of increasing the minimum pressure to 7. What do you guys think?
Your data is not remarkable at all. To be honest I doubt that a change in pressure is going to change the data all that much.
We don't sleep the same each night anyway...You had less events all night than a lot of us have per hour.
That's good in a way but the other side of it is that you aren't likely going to see much variation in data because that kind of goes along with UARS a lot of the time.

You are probably going to have to go a lot by how well rested you feel because the data itself is not likely going to be real exciting one way or the other.

So when you do change your pressures to see if it makes you feel any different..allow at least a week with each change so that you can have a better idea how you feel in general.
Don't go changing things nightly based on the previous night's reports. They would likely change from night to night even if you didn't make any changes.

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AnnieLA
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by AnnieLA » Thu Apr 25, 2013 3:55 pm

Pugsy wrote: when you do change your pressures to see if it makes you feel any different..allow at least a week with each change so that you can have a better idea how you feel in general.
Thank you, that's great advice.

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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by NotLazyJustTired » Thu Apr 25, 2013 6:12 pm

Yeah, your apnea numbers are really not going to help you much with UARS. You can have an AHI below 5 and still have a crappy nights sleep. The best I can offer you is this thread from about a month ago: viewtopic.php?f=1&t=87783&st=0&sk=t&sd=a
I hope this helps. There was a lot of good discussing in there.
Also search the archives for UARS. There were some pretty good discussions a few years back on the subject.

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"So oftentimes it happens, that we live our lives in chains, and we never even know we have the key."
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by squid13 » Thu Apr 25, 2013 7:36 pm

Click on this thread and scroll down till you come to Falcon 1 post. He talks about taking claritin before you go to bed. viewtopic.php?f=1&t=36483&st=0&sk=t&sd=a&start=15 Falcon 1 is a Doctor

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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by Linus » Fri Apr 26, 2013 12:31 am

Check out the Tap Pap mask. I am on my second night tonight. It may help with the bruxism. I too used the swift fx. I had the same symptoms and diagnosis (UARS). Same low events too. I rarely go above 5 or 6 on the pressure. Sometimes that is all you need to open the upper airways. It sure will feel better for you soon. Be careful on higher pressure sometimes that may dump air into your stomach. A lot of doctors have the machine set up for 5-20. All it takes is a leak, and the pressure will climb. Once the leak is closed by turning your head, the pressure is too much without the leak. That can result in a stomach full of air. a good fit of the nasal pillows is essential.

I hope odor the best. Sleep better.

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archangle
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by archangle » Fri Apr 26, 2013 2:29 am

Sometimes the numbers don't tell the whole story.

I find I feel better if I increase my minimum pressure even if it doesn't change my numbers significantly.

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Please enter your equipment in your profile so we can help you.
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by NotLazyJustTired » Fri Apr 26, 2013 6:51 am

Here are some other threads I had bookmarked here on the forum. Some great discussion if you have time to read through it all:

General UARS Discussion viewtopic.php?p=349759#p349759

Questions for UARS collected wisdom viewtopic.php?f=1&t=85840&p=781451&hili ... it#p781334

Flow limitation questions (ResMed S9 Autoset) viewtopic/t83692/Flow-limitation-questi ... ml#p759020

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Additional Comments: SleepyHead software; Pressure 7-15
"So oftentimes it happens, that we live our lives in chains, and we never even know we have the key."
...from The Eagles, "Already Gone"

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AnnieLA
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Re: My journey to treat Upper Airway Resistance (and bruxism)

Post by AnnieLA » Tue May 21, 2013 7:42 am

So far no restful sleep... I feel soooo tired!

I tried different kind of allergy medications, since I always have a nostril blocked (not always the same one). But it didn't change a thing.
I tried inclining my bed. No difference.

I read an interesting article on central apnea and bilevel:
http://journal.publications.chestnet.or ... id=1083869
I'm going to try cpap without the A-Flex to see if it will help.

I'm getting desperate. Next step is convincing my dentist to make a mandibular advancement device. I read many studies showing it helped reduce sleep bruxism:
http://www.ncbi.nlm.nih.gov/pubmed/?ter ... ent+device

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Additional Comments: SleepyHead Software
Learn more about bruxism (teeth grinding) here:
http://www.cureyourbruxism.com/