Big improvement in sleep apnea/asthma with moving?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
sickwithapnea17
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Big improvement in sleep apnea/asthma with moving?

Post by sickwithapnea17 » Wed Sep 05, 2012 6:44 pm

has anyone had a significant improvement in their sleep apnea or asthma moving to a different state or climate? I heard florida has some good asthma cities or maybe texas?
I have tried so many asthma meds and even prednisone and nothing works at all- I just have endless suffering from sleep apnea and asthma and constant exhale wheezing and possible heart problems, heavy fog, exhaustion...
18/14 bipap st

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greatunclebill
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Re: Big improvement in sleep apnea/asthma with moving?

Post by greatunclebill » Wed Sep 05, 2012 6:53 pm

the best thing you can do is post what your cpap problems are and try to get it working good for you. i have apnea, asthma and copd & know what your future is if you don't get the cpap working right. been there. you don't say where you want to move from. i don't see moving helping you.

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sickwithapnea17
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Re: Big improvement in sleep apnea/asthma with moving?

Post by sickwithapnea17 » Wed Sep 05, 2012 7:05 pm

by the way so what happened to you? I take dulera and singulair and xyfil now. yeah I heard you can have enlarged heart, my FEV1 and FVC is about 70 and I've heard also about terrible kidney damage.
I don't know what to do, I keep using the fit life mask with a resmed ASV but the pressures are high and I can't sleep through the night on the machine. the bipap autosv I have has a ramp but I don't know which settings on either machine to use.
I live in NY now and started wheezing on exhale in November and it's been endless suffering since then
I tried taking many courses of prednisone and it seemed to help a little but then I was really worried about brain/memory damage and I couldn't get the surgery UPPP in January
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VikingGnome
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Re: Big improvement in sleep apnea/asthma with moving?

Post by VikingGnome » Wed Sep 05, 2012 7:17 pm

Don't move to Florida or any other humid area. If your asthma is allergy related, you'll find a lot more in deep south where allergies run rampant. I had severe asthmatic bronchitis in Feb. I had two weeks of Medral-dose pack, antibiotics. But the wheezing remained once the coughing and fever left. Finally went to see an allergy/asthma specialist. He did a nebulizer treatment with major improvement. Put me on ADVAIR for twos. Wheezing finally went away. He said I had OSA wheezing, not asthmatic wheezing. My bronchitis has plugged up the small aveoli in my lungs. The nebulizer treat loosen it all up. He says he never puts anyone on oral steroids any more. The inhalers like ADVAIR and SYMBACORT have both a bronchodilator and a steriod in them and it's much better to put the steroids directly where it's needed and not take systemic steroids (prednisone) which messes with your entire body.

It is quite possible that you have OSA wheezing and not asthma. Were you an asthmatic before CPAP/OSA?

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sickwithapnea17
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Re: Big improvement in sleep apnea/asthma with moving?

Post by sickwithapnea17 » Wed Sep 05, 2012 7:24 pm

it all started the OSA/asthma/CSA at the same time 3 years ago. then November I started wheezing with a bad infection for 3 weeks- tried like 4 antibiotics, wheezing stayed.
so you take advair 500 discus twice a day and nebulizer? I can't exhale, it's like something is plugged up in my lungs/bronchii.

I just read florida has two of the best asthma US cities and this all started when I moved to NY from Indonesia (hot/humid jungle like area). anyone have any big improvement with surgery like tonsils or UPPP?
thanks!!!!
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Bons
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Re: Big improvement in sleep apnea/asthma with moving?

Post by Bons » Wed Sep 05, 2012 7:32 pm

My daughter is having much less of a problem with asthma since moving to the middle of nowhere in Alaska. Tundras mean no trees, which has lessened her allergies. She just had an upper respiratory infection (joy of teaching in a new location is that she gets exposed to all kinds of new viruses) and for the first time in ten years did not get bronchitis or pneumonia from the cold.

She hasn't said much about the cpap, except to say she's going through almost a tank of water every night due to the lack of humidity up there.

The only employment in her town is hunting or teaching (and one part-time post office/general store) so I don't think you'll be able to move there unless whaling or hunting is your thing.

sickwithapnea17
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Re: Big improvement in sleep apnea/asthma with moving?

Post by sickwithapnea17 » Wed Sep 05, 2012 7:44 pm

while I was Indonesia I didn't notice any big sleep apnea symptoms except sometimes waking up wheezing, and the climate there was pretty hot and humid, sometimes dry
then 3 weeks after returning to the US I have these terrible problems start with the apneas
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The Sheikh
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Re: Big improvement in sleep apnea/asthma with moving?

Post by The Sheikh » Wed Sep 05, 2012 8:06 pm

sickwithapnea17 wrote:I don't know what to do, I keep using the fit life mask with a resmed ASV but the pressures are high and I can't sleep through the night on the machine.

I'll tell you what worked for me... I was having panic attacks at night with the mask on - like I was suffocating and being waterboarded. I just could not lie there for more than ONE minute with the mask on. I even had a problem with those nasal strips on my nose. Talk about sensitive!

The solution was to put the mask on and run the system during the day when I was sitting upright in a chair. I put in a few hours a day doing this. And guess what... within a week I was able to sleep the whole night with the mask on. My brain has fully accepted the mask as its friend and a way to breath well all night. I have severe central apnea with up to 90 second periods of no breathing. This technique along with an Adapt ASV (exactly the one you have) has fixed the problem. AHI=0 most nights. It was well worth the effort. Give this day-session technique a try and see.

Here's hoping you the very best!

Tom

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Re: Big improvement in sleep apnea/asthma with moving?

Post by Guest » Wed Sep 05, 2012 10:29 pm

wow 90seconds, that is terrible! did you find the cause and have an MRI?
I had a cyst in my clivus but no other clues. I think the klonopin helps but may cause thinking damage long term, I'm not sure- I feel pretty terrible with heart stress every night when I don't sleep well on the machine it can cause enlarged heart

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Re: Big improvement in sleep apnea/asthma with moving?

Post by jennyjayhawk » Fri Sep 07, 2012 10:53 am

I have severe asthma and was having attacks 2-3 times a day, with no relief from medications. Finally, my doctor sent me in for a sleep study because I told him I was having periods of waking up at night not being able to breathe. He's prescribed a cpap machine and I hope I get some relief from it as well as the positive things it can do to help asthma. I'm going to try someone's suggestions of using the mask during the day to get used to it.

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Re: Big improvement in sleep apnea/asthma with moving?

Post by nanwilson » Fri Sep 07, 2012 11:09 am

Folks
Sickwithapnea 17 has been on the forum for about a year and posts questions concerning different drugs and has gotten a TON of advice from members. She/he NEVER picks up on the advice and just keeps on posting about taking many and differnt drugs to cure her/his apnea and asthma. This person is a troll and really likes it when there are new patients here that can be persuaded to add to the trolling. She/he has two threads going right now, but if you think I am being mean or just picking on this person....I would suggest you read all of this persons threads and you will get my drift. Don't waste your time on trolls. I am not trying to be bossy or tell you what to do but I would seriously look at this persons threads before you give her/him any more of your prescious time.
Cheers
Nan
Started cpap in 2010.. still at it with great results.

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greatunclebill
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Re: Big improvement in sleep apnea/asthma with moving?

Post by greatunclebill » Fri Sep 07, 2012 11:24 am

nanwilson wrote:Folks
Sickwithapnea 17 has been on the forum for about a year and posts questions concerning different drugs and has gotten a TON of advice from members. She/he NEVER picks up on the advice and just keeps on posting about taking many and differnt drugs to cure her/his apnea and asthma. This person is a troll and really likes it when there are new patients here that can be persuaded to add to the trolling. She/he has two threads going right now, but if you think I am being mean or just picking on this person....I would suggest you read all of this persons threads and you will get my drift. Don't waste your time on trolls. I am not trying to be bossy or tell you what to do but I would seriously look at this persons threads before you give her/him any more of your prescious time.
Cheers
Nan
thanks for this. also posted as cpap rental and guest per one of the replies on this thread. there should be a rule about one handle.

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First diagnosed 1990
please don't ask me to try nasal. i'm a full face person.
the avatar is Rocco, my Lhasa Apso. Number one "Bama fan. 18 championships and counting.
Life member VFW Post 4328 Alabama
MSgt USAF (E-7) medic Retired 1968-1990

sickwithapnea17
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Re: Big improvement in sleep apnea/asthma with moving?

Post by sickwithapnea17 » Fri Sep 07, 2012 8:48 pm

I'm barely surviving on the asv now and oxygen.
I have given up hope but it seems to help to have the O2 on 5 liters/minute. can tonsil surgery help a lot?
I'm getting unspecified apneas and hypopneas mostly on the resmed sleepyhead data card but no osa events??
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Re: Big improvement in sleep apnea/asthma with moving?

Post by chunkyfrog » Fri Sep 07, 2012 9:09 pm

Decades ago, people with asthma and allergies moved to arid locales like Phoenix to reduce their symptoms.
For years it worked, wonderfully. But so many people landscaped their yards with the same plants,
shrubs, and trees they loved in their old homes, and now there is VERY LITTLE DIFFERENCE.

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Re: Big improvement in sleep apnea/asthma with moving?

Post by -tim » Sat Sep 08, 2012 3:13 am

sickwithapnea17 wrote:
I just read florida has two of the best asthma US cities and this all started when I moved to NY from Indonesia (hot/humid jungle like area). anyone have any big improvement with surgery like tonsils or UPPP?
thanks!!!!
What cities would they be? Key west and Key Largo? The south end of Florida is covered in pollenating plants that get enough rain to keep them happy from the molds that are all over the place. When the wind blows over the Everglades, the pollen counts go sky high. The North end of the state ends up having weather and pollen counts just like southern Georgia or southern Alabama.

30 years ago some cities in Arizona were considered best but too many people moved in and brought their plants with them.

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