My kid has mouth leaks--what can I do?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
SleepingUgly
Posts: 4690
Joined: Sat Nov 28, 2009 9:32 pm

My kid has mouth leaks--what can I do?

Post by SleepingUgly » Thu Oct 13, 2011 9:11 pm

I've tried posting on ASAA's pediatric site, but it's routinely pretty slow around there. I know this isn't the place for pediatric questions, but does anyone have a clue what would be a good chinstrap for an 8-year-old? The problem is that even if we keep his chin up, he leaks through his mouth. I have the same problem and the only things that have worked for me are strapping an Ace around my mouth, tape, and the Ultimate Chinstrap. I am not taping his mouth under ANY circumstances. I think he'll hate the Ace around his mouth, and it leaves terrible marks. And I'm ambivalent about whether the Ultimate Chinstrap is OK to use in a kid. If feels "wrong" to put something over his mouth. Course right now he has the Ruby chinstrap over his mouth, and he's blowing right through it and when he wakes up, it will be wet with slobber, which he'll hate. The Ultimate Chinstrap can be pulled down and held down in front to expose the mouth, but it can't be removed in one fell swoop by pulling it over the head because it's not elastic. To remove it, you have to undo two velcros--one behind the neck and one on top of the head. He would have no problem doing it. I just feel weird about covering his mouth... Should I? On the other hand, his sleep is so disturbed by leaks that it's reaching the point that I think he'd be better off sleeping without CPAP. Every few seconds it's disturbing him.

Anyone else have any ideas for a chinstrap for a kid or a method?

BTW, I'm not looking for a FFM for him at this point because (1) I think the doctor would prefer nasal and (2) the one we tried (the Quattro in an Extra-Small) was too big and (3) I'm trying to get away from masks pressing on his face. We just switched him from a Micro to Swift FX for Her with X-Small pillows, and I think that it will press less on his face and seal better than the Kids Micro, which is too big (it's the same as a size Small). But the mouth leaks are the issue.
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly

Sunshine Lady
Posts: 4
Joined: Tue Feb 15, 2011 7:11 pm

Re: My kid has mouth leaks--what can I do?

Post by Sunshine Lady » Thu Oct 13, 2011 9:31 pm

I tried the blue masking tape for a while but it made my face sore. Now I am using POLIGRIP denture adhesive strips. They come 40 strips to a box. Easy to use. Get the lips wet and put the strip on the lower lip and bring the upper lip down. It holds good but does not hurt to remove it. Just get the strip wet and it easily comes off. For me works a lot better than tape.

User avatar
M.D.Hosehead
Posts: 742
Joined: Thu Jun 24, 2010 7:16 pm
Location: Kansas

Re: My kid has mouth leaks--what can I do?

Post by M.D.Hosehead » Thu Oct 13, 2011 10:10 pm

Just a thought--do they make child sized boil-n-bite protectors?

I wouldn't like the idea of covering my child's mouth, either. And taping would be out of the question.

I'm sympathetic because I, too, have never achieved a really comfortable setup for myself. But as an adult, I can weigh for myself how much discomfort I'm willing to bear each night. No one is making me do anything I don't choose to do. Deciding how much discomfort my child has to bear for what benefit is different and much harder. How he feels about it is pretty important.

But I don't see any value in making his life miserable while not solving a problem. I'd want him to know that, in the benefit to risk/discomfort calculus, I take the latter seriously. I believe I would not insist he use CPAP until I found a plausible solution for him to try. I'm hoping for some useful idea from others.

_________________
Mask: Forma Full Face CPAP Mask with Headgear
Additional Comments: MaxIPAP 15; MinEPAP 10; Also use Optilife nasal pillow mask with tape

User avatar
gulfpearl
Posts: 218
Joined: Mon Oct 03, 2005 1:29 am

Re: My kid has mouth leaks--what can I do?

Post by gulfpearl » Fri Oct 14, 2011 2:20 am

Can you ask your dentist to make him a mouth guard to use at nite with the cpap. I had one made years ago after I had my braces removed. It might help.

User avatar
Riorican
Posts: 53
Joined: Tue Mar 15, 2011 10:24 pm

Re: My kid has mouth leaks--what can I do?

Post by Riorican » Fri Oct 14, 2011 3:45 am

They do make youth sized boil n bite mouth guards. I use that instead of adult size. What about the chin-ups? If you get his mouth sealed tightly do you think he'd blow through the lips?

_________________
Mask: Swift™ FX Bella Nasal Pillow CPAP Mask with Headgears
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: pressure range 8.8 - 12, Cervical collar instead of chinstrap, HoZer Hose Hanger, PadACheek barrel cozie, Sleepyhead Software

User avatar
Perrybucsdad
Posts: 834
Joined: Mon Sep 12, 2011 7:09 am
Location: Northeast Ohio

Re: My kid has mouth leaks--what can I do?

Post by Perrybucsdad » Fri Oct 14, 2011 6:23 am

You can always go to the sporting goods store and buy a youth football mouth guard. Not sure how good it would work, but it's worth a shot.

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: ResScan v5.9; Sleepyhead v1.0.0-beta

nanwilson
Posts: 3463
Joined: Tue Apr 13, 2010 10:35 am
Location: Southern Alberta

Re: My kid has mouth leaks--what can I do?

Post by nanwilson » Fri Oct 14, 2011 10:31 am

SU
I use a youth size clear boil & bite mouth guard and it seems to keeep my yap shut. You can get a upper and lower in one mouth guard, perhaps that would help.............I'm thinking cheap solution here since its a trial thing to see if it works for him....cost me $5. You can tell him its what hockey and football players wear .
Good luck.
Started cpap in 2010.. still at it with great results.

User avatar
Meowser
Posts: 96
Joined: Wed Sep 21, 2011 10:32 am
Location: North Carolina

Re: My kid has mouth leaks--what can I do?

Post by Meowser » Fri Oct 14, 2011 10:42 am


_________________
Mask: Swift™ FX For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Also using the ClimateLine heated hose
Meow!
"You can have the most precise questions, but if you do not ask the right person, you will not get the right answers." – Frederic Premji

User avatar
Bright Choice
Posts: 596
Joined: Fri Jan 14, 2011 5:17 pm

Re: My kid has mouth leaks--what can I do?

Post by Bright Choice » Fri Oct 14, 2011 12:26 pm

If it works, the b&b could be great for him. I'd think it might be more acceptable to him than some of the other options. Yes, an adult can be more discerning, knowing what is tolerable vs putting up with what parents are asking him to do.

And yes, taping or too much binding could be spooky.

Good luck!

_________________
Mask: Mirage™ FX For Her Nasal CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: S9 VPAP Adapt, CompSA, RLS/PLMD, Insomnia, started 12/30/10 Rescan 3.14

User avatar
SleepingUgly
Posts: 4690
Joined: Sat Nov 28, 2009 9:32 pm

Re: My kid has mouth leaks--what can I do?

Post by SleepingUgly » Fri Oct 14, 2011 1:05 pm

I forgot about the boil and bite option... When I made myself one, it killed my jaw. I think it's really hard to "bite" in a very neutral position and then leave your teeth clamped in that position all night and now have a sore jaw, but apparently others have succeeded where I've failed. This may be tricky with my son for a number of reasons... First, how to get it boiled and bitten in the "right" position... Second, how to not mess with his bite (presumably a bit if not all of his problem is attributable to jaw issues, so I hate to inadvertently screw it up further)... Tolerance for having a big thing in his mouth. But it's a thought.
Never put your fate entirely in the hands of someone who cares less about it than you do. --Sleeping Ugly