Can someone give me an opinion?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
jeremiahchub
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Can someone give me an opinion?

Post by jeremiahchub » Sat Sep 17, 2011 1:56 pm

I feel ok using my cpap but some days I still feel tired. It's an PR System One Auto. Anyone willing to take a look at the download and let me know what they think the problem is? I can't get in to see the dr for 3 weeks

Thank you in advance for any help

Jeremiah
Jeremiah from Indiana
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ameriken
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Re: Can someone give me an opinion?

Post by ameriken » Sat Sep 17, 2011 2:06 pm

Jeremiah, if you want to post it here in the thread, you'll get some good replies. Also, if you change your equipment settings from 'picture' to 'text' it'll help folks see at a glance what you're using without having to click on each picture.

Good luck!
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moresleep
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Re: Can someone give me an opinion?

Post by moresleep » Sat Sep 17, 2011 2:12 pm

Did you try to attach a chart? Nothing showed up. Can you try again? Also, can you tell us more?

Without seeing the chart, I can say that mask and mouth leaks are one reason Cpap therapy may fail to work where it has worked before--very important to keep those under control. With a nasal mask, being able to breath through the nose is, of course, important; so, colds and congestion can also really screw things up some nights. Going to sleep at the right time, and avoiding certain foods and drinks in the evenings can also be important for some individuals, although, if sensitive to anything, that is usually something the user quckly finds out for himself. You have an Auto Cpap, so it should be able to adjust to meet different needs at different times. But, you generally want to use a fairly tight pressure range: setting the floor right under where you need the pressure 90% of the time, and the ceiling just a little above where the lab or trial-and-error determined that you need the maximum pressure. You don't want the machine to take too long to ramp up from the bottom, or, to "run away" at the top...

jeremiahchub
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Re: Can someone give me an opinion?

Post by jeremiahchub » Sat Sep 17, 2011 2:27 pm

jeremiahchub wrote:I feel ok using my cpap but some days I still feel tired. It's an PR System One Auto. Anyone willing to take a look at the download and let me know what they think the problem is? I can't get in to see the dr for 3 weeks

Thank you in advance for any help

Jeremiah

Ok here is the link for the summery. please keep in mind that I had a few issues with a road trip and not having a way to plug in the machine.
On September 6th-7th I was stuck in a 12 passenger van and didn't have a car adapter to be able to use my machine
September 8th I wasn't feeling good and I had it on till I got up to go to the bathroom, then forgot to put in on again... Yes I know, I always need to wear it, but I forgot that day... I'm sorry.
August 30th, stuck in same van but people were actually driving like they were supposed to.

http://jeremiah.iamnotsecondclass.com/c ... d-sum1.jpg
http://jeremiah.iamnotsecondclass.com/c ... d-sum2.jpg
http://jeremiah.iamnotsecondclass.com/c ... d-sum3.jpg

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robysue
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Re: Can someone give me an opinion?

Post by robysue » Sat Sep 17, 2011 3:17 pm

jeremiahchub wrote:I feel ok using my cpap but some days I still feel tired. It's an PR System One Auto. Anyone willing to take a look at the download and let me know what they think the problem is? I can't get in to see the dr for 3 weeks
The AHI numbers look good, but in spite (because?) of all your excuses about why you didn't use the machine a lot of the time, I think that's the real culpret. You've only managed to use the machine >= 4 hours on 70% of the days in the last month. That means that you've NOT used the machine or USED it less than 4 hours for 10 of the last 30 days. And that's simply too many days with too little or no use of the machine. CPAP is not a part-time therapy, alas.

Now for the excuses:
jeremiahchub wrote:please keep in mind that I had a few issues with a road trip and not having a way to plug in the machine.
On September 6th-7th I was stuck in a 12 passenger van and didn't have a car adapter to be able to use my machine
September 8th I wasn't feeling good and I had it on till I got up to go to the bathroom, then forgot to put in on again... Yes I know, I always need to wear it, but I forgot that day... I'm sorry.
August 30th, stuck in same van but people were actually driving like they were supposed to.
You've accounted for four of the "non-compliant" days here. And on three of them, the problem was not having an adapter for the car. (Hint: If you will be taking frequent car trips, get yourself an adapter; they are not expensive.) We'll give you an "excused absence" on those 3 days you were in the van; you also get a wet noodle whipping for not putting the mask back on when you went back to bed on 9/8 since you know you should have put it back on. But what about the other 6 days with less than four hours of mask time?

And on the days where you are wearing the mask more than four hours, are you wearing it all night long? In other words, the Average mask time on days with usage >= 4 hours is listed as 5:57. Do you sleep only about 6 hours a night on a regular basis? If so, then maybe that's the culprit: You might just need seven or eight hours of sleep every single day and you're trying to get by on six or less.

Now, it may be that if you posted some detailed daily data from nights where you slept all night with the mask on your nose that we'd see something in that data that might indicate why you're having problems. But right now, I'd say the reason you still feel tired on some days is just plain not sleeping with the mask every night, all night long and/or just plain not getting the seven to eight hours of sleep you need every night.

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jeremiahchub
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Re: Can someone give me an opinion?

Post by jeremiahchub » Sat Sep 17, 2011 5:41 pm

once in a great while i can sleep over 6 hours.. but most of the time it's 6-8 hours avg. I know I need to use it more but how do you sleep longer when you wake up and just can't go back to sleep?
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jamiswolf
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Re: Can someone give me an opinion?

Post by jamiswolf » Sat Sep 17, 2011 5:51 pm

Jeramiahchub wrote: but how do you sleep longer when you wake up and just can't go back to sleep?
I listen to really boring talking books. Works like a charm...
Jamis

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Re: Can someone give me an opinion?

Post by jeremiahchub » Sat Sep 17, 2011 6:01 pm

jamiswolf wrote:
Jeramiahchub wrote: but how do you sleep longer when you wake up and just can't go back to sleep?
I listen to really boring talking books. Works like a charm...
Jamis
LOL I could listen to political debates LOL
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STL Mark
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Re: Can someone give me an opinion?

Post by STL Mark » Sat Sep 17, 2011 10:59 pm

jeremiahchub wrote:Can someone give me an opinion?
Grape juice is better than orange juice.

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Re: Can someone give me an opinion?

Post by Pugsy » Sat Sep 17, 2011 11:10 pm

I will reaffirm what Robysue said. You need more hours using the machine all night, every night to even have a chance to see the improvement you wish for. If you are waking up middle of the night and yielding to the temptation to sleep the rest of the night without it...bad habit to start.

If you don't feel you can go back to sleep and this happens often you may be getting bit of insomnia. Take a look at RobySues' signature above...she has links to her blog on it and quite a bit of information about insomnia is there.

Can you post a single night's daily detailed graph? One with all the lines on it...not the summary. The report for one single night only. Pick one with at least 5 hours of data.

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jeremiahchub
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Re: Can someone give me an opinion?

Post by jeremiahchub » Tue Sep 20, 2011 3:09 am

Pugsy wrote:I will reaffirm what Robysue said. You need more hours using the machine all night, every night to even have a chance to see the improvement you wish for. If you are waking up middle of the night and yielding to the temptation to sleep the rest of the night without it...bad habit to start.

If you don't feel you can go back to sleep and this happens often you may be getting bit of insomnia. Take a look at RobySues' signature above...she has links to her blog on it and quite a bit of information about insomnia is there.

Can you post a single night's daily detailed graph? One with all the lines on it...not the summary. The report for one single night only. Pick one with at least 5 hours of data.
Yep I can do that... I'll post that later today.. I just woke up... went to bed at around 9:30 last night woke up at 4:05am...
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robysue
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Re: Can someone give me an opinion?

Post by robysue » Tue Sep 20, 2011 6:33 am

jeremiahchub wrote: .. I just woke up... went to bed at around 9:30 last night woke up at 4:05am...
That's a 6 1/2 hour long "time in bed" window for sleep. How much sleep do you think you got?

Six hours or more? In that case you could just be waking up because your body feels like it's gotten enough sleep---not all of us need seven or eight or nine hours of sleep each night.

If you often sleep more or less soundly from 9:30pm to 4:00 am, and you simply want to sleep a bit later in the morning, you might try moving that bedtime back to 10:00 or 10:30. That might let you more naturally sleep until it's closer to 5:00 am.

But if you managed to get no more than five hours of sleep in that 6 1/2 hour "time in bed" window, can you help us out by telling us when you felt like you were sleeping during that time frame? And when you felt like you had the most problems getting or staying asleep? Did did you wear the mask all night long?

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jeremiahchub
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Re: Can someone give me an opinion?

Post by jeremiahchub » Tue Sep 20, 2011 7:04 pm

Here is the pic from 9-19-2011 with all the graphs. Let me know. http://jeremiah.iamnotsecondclass.com/c ... 9-2011.jpg
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Alshain
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Re: Can someone give me an opinion?

Post by Alshain » Tue Sep 20, 2011 9:28 pm

jeremiahchub wrote:Here is the pic from 9-19-2011 with all the graphs. Let me know. http://jeremiah.iamnotsecondclass.com/c ... 9-2011.jpg
No high leaks (I think, if I'm reading that right, my machine would call that high but I think ResMed does it differently), AHI is low, events are short lived. Your numbers are just about as ideal as they come.

You need to iron out the lack of sleep/compliance problems though.

This day looks good, I see you took a mid-day nap. Hopefully when your therapy gets more settled you won't feel the need to do that anymore. It will also help you to sleep longer at night without waking up. Most importantly though, you need to be consistently using the machine for all sleeping, all night or nap long. This trumps all other goals. You need to get over that sleep debt and your not going to put a dent in it until you can achieve that. Sleep is sleep, so if you need to take a nap, that still counts toward your hours of usage... as long as the machine is on.

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Re: Can someone give me an opinion?

Post by Bookbear » Tue Sep 20, 2011 10:00 pm

Jeremiah, good sleep hygiene is something that needs to be worked at. Google it, and you will find out a number of things you can do to train your body to sleep more readily and efficiently. http://www.umm.edu/sleep/sleep_hyg.htm is a particularly good website for information on sleep hygiene.

I would agree with the others that indicated that the sleep times your stats show most likely aren't enough sleep under the best of conditions.

Good luck!

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