UARS

christinepi · Post by **christinepi** » Tue Mar 01, 2011 10:19 pm

Does UARS receive the same CPAP treatment and can it "clear up" with it, or does it take a different strategy? I was diagnosed with OSA, but I'm wondering (as is my doc) whether I might have UARS. I have been on CPAP for almost 3 months, and not experiencing any relief, so even if I had UARS, wouldn't that be addressed at the same time?

Anybody out there who was diagnosed with UARS and what was it that worked to fix it?

SleepingUgly · Post by **SleepingUgly** » Tue Mar 01, 2011 10:24 pm

UARS is treated the same way as OSA. Is it the same doctor who diagnosed you with OSA who is now wondering if you have UARS? If your OSA is well treated, the only way I can see "UARS" being a problem is if you are still have Respiratory Effort Related Arousals (RERAs) on CPAP due to insufficient pressure. In other words, the CPAP pressure is sufficient to treat the OSA, but insufficient to completely eliminate all your sleep disordered breathing.

christinepi · Post by **christinepi** » Tue Mar 01, 2011 10:35 pm

Well that's what's so weird. From the get go my AHI's went from the original 18.8 to 0.1 to 0.3. And they've been there ever since. Yet I feel LOUSY during the day, just as always. That's why the same doc is thinking maybe I have UARS. So if I do because I have said RERA's (how do I know that I have them?), I'd need to raise pressure? Main problem is that I hit a serious brick wall at around 7.8cm, so I stay at 7.4 and no more. Any higher and my aerophagia interrupts my sleep so much I'm a wreck the next day.

I did a titration study last week (ca 3 months after the first study) and haven't gotten the results yet, but would RERA's be revealed in it?

SleepingUgly · Post by **SleepingUgly** » Tue Mar 01, 2011 10:38 pm

christinepi wrote:I did a titration study last week (ca 3 months after the first study) and haven't gotten the results yet, but would RERA's be revealed in it?

Only if that lab scores RERAs, and titrated you to eliminate them.

Do you have software for your machine? If so, you could look at your flow limitations (FLs). It won't tell you whether they are causing arousals, but it might give you an idea of how bad they are.

christinepi · Post by **christinepi** » Tue Mar 01, 2011 10:44 pm

Yes, I have the software, but since I depend on my husband to use it and print out stuff, it'll have to wait until tomorrow, but I will look for that.

What are "normal" FL numbers? Or is that painfully obvious on the chart?

I'll check with my doctor whether they scored RERA's during the study.

Thanks!

SleepingUgly · Post by **SleepingUgly** » Wed Mar 02, 2011 8:49 am

christinepi wrote:Yes, I have the software, but since I depend on my husband to use it and print out stuff, it'll have to wait until tomorrow, but I will look for that.

What are "normal" FL numbers? Or is that painfully obvious on the chart?

I'll check with my doctor whether they scored RERA's during the study.

Thanks!

You shouldn't print it out. You should look at it on the computer so you can manipulate the viewing time to get a sense of what the flow looks like. Resmed doesn't score the FLs with a number. It shows a graph labeled flow limitaton that ranges from a rounded mountain top symbol to a flat symbol. Flat is bad, rounded is good.

christinepi · Post by **christinepi** » Wed Mar 02, 2011 11:13 am

Will do. Once again I feel grateful for all the helpfulness and knowledge on this forum. I would be totally sunk without it. How did people deal with complicated medical issues before the internet???

Bright Choice · Post by **Bright Choice** » Wed Mar 02, 2011 5:58 pm

I'm following this post because I am trying to figure out UARS also. I also have AHI pretty well under control but have some days where I feel pretty crummy - brain fog big time. I have an oximeter and have been watching SPO2. MD said I should try adjusting pressure so that SPO2 drops to below 88% (I live at 6200 ft) are limited to a minute or less. I haven't been able to find a correlation between pressure and SPO2 - yet. But, I do know that when it is less than 88% for more than a minute (up to 5-6 minutes) I really feel crummy the next day. Under 1 minute and I feel quite good.

I really want to figure out what a "normal" or "good" FL graph should look like. When I look at my "flow graph" at 10 or 30 minute intervals, that line is quite flat. Do any of you know of any place where I could look at a "normal" graph? I could try to post one here - don't know what time interval would be best to use.

Thanks for letting me butt in.

christinepi · Post by **christinepi** » Sat Mar 05, 2011 12:10 pm

OK, so I immediately ran into the problem that my software doesn't reveal any Flow Limitations. There's only pressure, usage, leak and AHI. How do I find FL's?

Chivalry · Post by **Chivalry** » Sat Mar 05, 2011 12:51 pm

strange the S9 definatly shows flow limitations... maybe your older 3.7 software doesnt show it?

i think the latest revision is 3.13 ... i downloaded it today from somebodys sig on this site... uncle bob ...
Its in his sig on the first post on this page
viewtopic.php?f=1&t=52732&st=0&sk=t&sd=a&hilit=rescan

Lizistired · Post by **Lizistired** » Sat Mar 05, 2011 1:24 pm

Not sure about your version. Check to the right of the device serial number, for an icon with a graph and a check mark on it.
This will open graphing options; how many panes and which panes are displayed.

christinepi · Post by **christinepi** » Sat Mar 05, 2011 9:59 pm

I've successfully downloaded 3.13 (the latest version, I think) and still can't find info on flow limitations.

By device, do you mean the CPAP machine itself or something in the ResScan software? I'm assuming you mean in the software, but I can't find an icon or graph next to any serial number. Can you please be more specific about where with the software I would find this?

christinepi · Post by **christinepi** » Sat Mar 05, 2011 10:08 pm

OK, I found the little icon by the serial number and when I clicked it to bring up the Graphing Options dialog box it only lists the four graphs I mentioned earlier (AHI, Usage, Leak, Pressure) and Flow Limitations is not listed!!!

Where is the problem? I have a ResMed 9 machine - can someone confirm that this CPAP machine does indeed record Flow Limitations. And if the machine records it, why doesn't the latest software version give me the option to view it?

SleepingUgly · Post by **SleepingUgly** » Sat Mar 05, 2011 10:16 pm

Yes, the Resmed S9 Autoset definitely records FLs. I can't say why your software isn't showing it (I have 3.10 and it shows it)...

Pugsy · Post by **Pugsy** » Sun Mar 06, 2011 1:07 am

viewtopic.php?f=1&t=60870&st=0&sk=t&sd=a&start=15

Take a look at this thread above Tim was having trouble getting the flow limitation to show up in the list.
If you can understand what they are talking about it may help. I am totally lost. This might not be even the right thing.

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