Six Month Anniversary

[jbn3boys]

Today marks six months that I've been on xPAP.

Sure wish I were a success story! But not so much.

I am still waiting on the results from my second sleep study (re-titration) that was done Monday night. I called this morning (Friday) and asked if the doctor had been able to read the results yet. I was told something about two weeks, and that she would read it today and call me. Not sure which she meant. It wasn't until after I hung up that I realized that she hadn't even asked my name!

I'm tired of waiting. That seems like the only thing I do with this doctor. I had to wait a month to get in to see her. I had to wait a week from the time I sent in my first report until I heard what she wanted to do. (I opted for changing pressure, since doing nothing didn't seem like a good option.) I waited only 10 days (not 2 weeks) before I sent in the next report. It took nearly a week to hear that time, too. Then had to schedule a sleep study...and wait for that to arrive. Then had to re-schedule the sleep study due to equipment failure (in a snow storm, none the less). And now it's been 5 days since my sleep study--it's Friday after 5pm--so it will be at least a week from the study to when I hear from her, maybe closer to two weeks.

And, no, I can't just find another sleep doctor. There are very few in this area. Unless I want to drive two hours one way.

I'm about ready to just give up. I have to wonder if this is doing any good for me. I have had no noticeable improvement of any kind. I'm tired of waiting. I'm tired of not feeling better. I'm just plain old tired.

[robysue]

jbn3boys,

My heart goes out to you.

If only there were an identifiable problem for you to work on, then at least you'd be able to focus on something. Battling the insomnia and beginning to get it under control has finally helped me start to feel at least as good as I did pre-CPAP in some ways. But five months (in my case) and six months in yours is a very long time to wait to feel better.

Remember to take time out for yourself just to relax and focus on something that makes you feel better emotionally---some time every day if possible. It's hard for us moms to remember to do this.

Keeping you in my thoughts and prayers and hoping some decent sleep comes your way soon.

[BernieRay]

My thoughts are with you as well. I haven't had any major troubles with my OSA, but my diabetes has caused me seemingly overwhelming problems the last couple of years. There are days when the only thought that keeps me going is the fact that if I give up today, I may miss the one thing that could turn things around tomorrow. I also remember a meditation thought from years ago: All of the darkness in the entire world is insufficient to snuff out the light of one, tiny candle.

Let me ask you a question - aren't you and your children worth the effort of not giving up? We don't need to know the answer but, either way, there are obviously people who do think you're worth it. As long as that is true, you have a very good reason not to give up.

I can't imagine the troubles you're having, but lack of sleep, for whatever reason, definitely leads to bad thinking and then bad decisions. Giving up, no matter how difficult things are, is not a good decision. It's simply another way to say that your sick and tired of being sick and tired. And that is most certainly, just being human.

[monarch22]

No giving up allowed! You've put six months worth of work into this and you can't turn back now!! Even though you aren't feeling better yet, you have to think about where you would be if you hadn't started cpap. I know it's frustrating and exhausting, but you can do it! I'm wondering with your user name, if you have 3 boys? Heck if that's the case you can get through this. Seriusly though, hang in there, get through the weekend and get back on the phone to the drs office on Monday morning. Keep calling. You will get where you need to be.

[newhosehead]

You are certainly having a rough time of it and I really, really hope that in six more months you will be posting your one-year anniversary and talking about how much better the last half of that year has been. Hang in there.

Jeanette

[jbn3boys]

I called my sleep doctor on Friday, looking for results from my sleep study. I got a vague answer of two weeks or today. Grrr..

So today, after two lousy nights (AHIs of 7.7 and 9.0/CAs of 3.8 and 4.6) I called AGAIN. This time, the nurse/receptionist actually took my name and all my information, and is forwarding a note to the doctor (or more likely her nurse) to give me a call back.

Time for phone tag.....

All I want to do is sleep better, and not have to wait SO long for every little thing!