Hello all y'all

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
damac100
Posts: 59
Joined: Fri Dec 09, 2005 11:45 pm
Location: California

Hello all y'all

Post by damac100 » Sat Dec 10, 2005 4:44 pm

I'm new here, of course...also new to the hosehead world of CPAP.

I've known for at least 2 decades that I had sleep breathing problems but...stoopid me, had no clue there were treatment options and never considered bringing the issue up to my GP Doc.

I've had my "breathing machine" for about a week now.

Anyhoo, I did the sleep study. They didnt share any info with me, it all got piped to my assigned "sleep doc". I've only spoken with his nurse assistant since so I have no real clue on data. All I can share is what I heard in passing which was "..about 80 eppisodes an hour.." and I have a prescribed preasure of 15.

Problems I've had so far
1. It's impossilbe to fall asleep with the mask on unless I dope up with 50 mg of Ambien
2. I tend to take the mask off in my sleep
3. Nose itch and tickle
4. Drool puddles in my mask
5. Leaks

I've addressed the problems so far with:
1. No help for this so far except to dope up with Ambien. Will speak to doc on possible alternative med that's less prone to addiction and or adverse effects from long term usage
2. & 5. I've made suplmental straps from strips of old tee shirt. The rig is kinda complex but it's now snug and wont come off unless I wake up and work at it. To use the tiolet during the night I have to unplug the hose from the machine and keep the mask on. It takes a couple minutes to unsecure it all and remove from face.
4. I take a 2 square lenght to toilet tissue and roll it tightly into a wick. I insert this wick into the groove made by the face mask gasket so that it runs along the botttom and sides of the mask and secure the ends with a bit of surgical tape to keep them from flapping against my nose during the night. So far, this seems to soak up enough drool so that I no longer get cold puddles of the iky against the side of my face or running back into my mouth. This also seems to help the mask gasket form a better seal along the bottom of the mask.
3. Since this is the issue I figured had me taking off my mask in my sleep in the first place..I've tried a series of fixes.
I first tried a coat of vasaline on the outisde nostrils and a smear of the same on cuetips along the inside of the nose entrance...no joy.
Then I tried using tape to remove the little hairs along the outside of my nostrils..assuming that it was those being stirred by the air preasure and causing the itch...no joy.
Then I tried shaving the sides of my nose..no joy
Then (last night) I tried a strip of surgical tape placed accross the front of my nose, from cheek, accross the nostrils and top of the nose to the other cheek. Also applied small amount of oragel to inside edges of nostrils with a quetip swab. I did not wake up fighting against my mask in a desperate attempt to scratch my nose last night...so, so far, JOY.


Edited to add: Forgot to say, I'm learning lots and lots reading here..THANKYOU!! All y'all!!

and any suggestions for fixes greatly appreciated.
_________________

CPAPopedia Keywords Contained In This Post (Click For Definition): hose, CPAP, seal


smyles
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Joined: Wed Nov 30, 2005 12:46 am

Hang in there!

Post by smyles » Sat Dec 10, 2005 6:22 pm

damac100,

We've all dealt with "breaking-in" ourselves to the "land of the hose heads". It sounds like you simply have the wrong mask! I went through three masks to find the one that fits my face adequately. A few suggestions, get to your DME/Sleep Doc and have them fit you for a new mask. Do not accept NO for an answer. As for pulling of the mask. That phenomena lasts about 2-3 weeks then seems to go away. You may want to consider getting a chin strap. It will help keep things in place.

At a pressure of 15, I've noticed that masks tend to begin "riding" on your face. Consider keeping your straps tight.

Hang in there! In a few more weeks you'll be sleeping like a baby!

Good Luck,

smyles


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rested gal
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Post by rested gal » Sat Dec 10, 2005 6:23 pm

damac, you're a lab rat, for sure. You're gonna do well!! Strips of cloth. Toilet tissue wicks. Warmed my heart to read what you're doing!!

Only suggestion I'd have at this point is...the Aussie heated hose from sleepzone.com.au. Does an excellent job of controlling rainout in most situations.

Please keep posting how you're doing and what fixes you come up with to make it all work better.

damac100
Posts: 59
Joined: Fri Dec 09, 2005 11:45 pm
Location: California

Post by damac100 » Sat Dec 10, 2005 6:34 pm

I'm continuing my education here on this site and already noticed something I have been doing wrong.

I've been wearing the mask (flexifit 431 ff mask) improperly. I've been trying to wear the mask for fit just over the mouth and nose and have been alternating between the medium and small gaskets for this.

After reading here and the product discripts on Cpap.com I've learned that the mask is designed to fit under the chin and over the nose.

Gonna cut off all the tee shirt strips and try with the large gasket and proper possitioning tonight.

_________________

PS anyone have any suggestilons for long term use sleep assist meds I can talk to my Doc about? I hate going in blind...and insomnia has alwase been as much a prob for me as the apnea.

CPAPopedia Keywords Contained In This Post (Click For Definition): cpap.com


damac100
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Location: California

Post by damac100 » Sat Dec 10, 2005 6:39 pm

Thanks for the encouragment and suggestions

I'll look into that heated hose thing for sure but I'm a cheap ****** and will be saving up for that card reader/software package deal first, probably.

And I'm gonna keep working this face mask issue until I get it right..or get the right one


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LDuyer
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Post by LDuyer » Sat Dec 10, 2005 6:43 pm

Damac,

You mentioned not having a copy of your sleep study report.
I recommend asking your sleep doc or his office for a copy, insist on it.
It has good information to help you understand your condition.
I was glad I did, because although my doc went over the numbers with me and showed me a copy, my mind was mush. All I could think of at the time was, "What do you MEAN I have sleep apnea???" My doc was hesitant to give me a copy, but I insisted. It is your right. ...... Just a thought.


Linda

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Ric
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Post by Ric » Sat Dec 10, 2005 7:06 pm

Couple of technical comments. As for mask size, have you visited the cpap.com webpage to find the sizing chart? If you click on one of the masks, for example the one you are using, it will wake up a page that tells you how to measure your face and tell you what size of mask you should have. If that one won't fit your face, they will tell you what will. My DME sold me one that simply did not fit. I ended up buying several (out-of-pocket) that DID fit, and I am actually getting used to wearing some of them. I actually think I LIKE one or two of them.

The nose hair thing can be @#$%^&* annoying. Are you aware of trimmers that are made EXACTLY for that sort of thing, they have a small cone-shaped trimmer that is amazing efficient. Plan to spend a good 5 or so quality minutes "mowing the lawn". It takes just one hair to flap in the breeze and ruin your whole night. Panasonic makes a good one. Sharper Image. Quite a few out there. The other choice is to let them grow long, then braid them. (not a good choice).

As for getting to sleep, there is a website http:\\www.americaninsomniaassociation.org that is just bubbling with suggestions for getting to sleep. Click on "Treatment Options", it describes medications and "natural" ways to help get to sleep, including long-term effects of some of these. I found it quite useful. (NOTE: that's .ORG, not .COM)

Lduyer is correct, Federal Law says that you are entitled to a copy of your sleep report. They can only charge you for the cost of copying it. Don't take no for an answer.

He who dies with the most masks wins.

damac100
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Location: California

Post by damac100 » Sun Dec 11, 2005 3:10 pm

the ff fit sans tee shirt parts didnt go well at all lol.

From continued reading I've learned so far that..

I need to shave regularly. I had been growing a beard in the belief that it would help keep my face from becomming irritated by repeated direct skin contact with the gasket. Now, thanks to y'all, I understand that clean skin helps make a good seal and that's what's important.

I need a card reader and software. This is probably the coolest thing I've learned so far I'm looking forward to actualy having day to day (or night to night) info on what's going on with my breathing.

I've got a bit of a shopping list started already.
*Baby shampoo and a gallon of vineger...sometimes I'll be in the mood to hand wash the stuff...sometimes I'll want to throw it in a bucket and let it soak its own self clean...might as well have both stuffs
*A ruler to measure my face with. I WILL get a good fitting mask dang it!! some how some way!
*nose hair trimmer..this goes in the double doh!! column. I knew these existed...never crossed my mind to use one for this prob.
*heated hose..because it exists. I dont have a rainout prob yet...but why wait for the prob to start?
*card reader and software.

Im still reading, still learning, still fiddle farting around with my face mask

I cant blame my DME for the mask. She had several double samples in her office..one of each mask was afixed to a syrofoam head to show how it fit and how the head gear worked...another was loose for me to handle and "dry fit"
I picked the flexifit 431 because it came with 3 sizes of gasket and seemed the safest bet for starting.

My DME even went so far as to have me hook my mask to the same CPAP I took home and put in on and use if for a few mins so she could make sure I wasnt forcing exhalations too hard and the preasure wasnt going to hurt my inner ear areas.

That's another thing I've learned...I'm lucky when it comes to the DME issue


damac100
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Location: California

Post by damac100 » Sun Dec 11, 2005 5:19 pm

Strike the ruler from the shopping list! My mask fits!

I just finished a wear test on the medium gasket and ..now that I'm clean shaved and know where the mask is supposed to be on my face, it fits like a dream!

I tested it in bed as if sleeping. I layed on my side, it fit fine. I layed on my belly with my face turned mostly into the pillow so that my nose was resting against the inside of the mask and no leak..wasnt real comfortable due to the other side of the mask being mashed into my cheek but no leak

I tried layin on one side for awhile, then rolling to the other side without touching or adjusting my mask...and no leak, no discomforting shift of the mask or anything.

I dont even have the straps uncomfortably tight.

I also tested finger insertion..lots of leak while the finger was in the mask of course..but it sealed up good once the finger was withdrawn. During some of the finger insertion tests the gasket would crimp a bit and be less comfortable but that was fixed by a simple wiggle of the mask by hand..the kind of movement wouldnt be any more disruptive that brushing your face with your hand while sleeping.

I also discovered something useful to me. If I stick my chin all the way into the mask, it does a pretty good job of holding my mouth shut. If I set the bottom edge of the mask against my chin..or have my chin just inside the mask edge, it does a pretty good job of holding my mouth open.

This is useful to me cause I tend to suffer from stuffed up nose alot..and when that's the case I can still mouth breath and get some relief..and when my nose is clear I can be fair sure of my yap keeping shut and getting the full nasal benifit.


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tomjax
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ambien

Post by tomjax » Sun Dec 11, 2005 5:52 pm

I hope you made a decimal point error with your Ambien.
Looks like you indicated FIFTY mg instead of FIVE mg.

You should be careful.
FIFTY is not very good.
Just how long have you been taking Ambien and what is your dosage history?

tom

damac100
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Joined: Fri Dec 09, 2005 11:45 pm
Location: California

Post by damac100 » Sun Dec 11, 2005 6:05 pm

DOH!!

Good catch tomjax. I had to check the script bottle to be sure and sure'nuff I was way off on the dosage. The tabs are 5mg each (#30) and I take 2 of em to do any good. One seems to have zero effect.

Dosage history to the best of my recollection is...very occasionally in the past. I have alwase had the script available but usually tried to just ride out insomnia until I was wiped out enough to sleep unmedicated.

So generally speaking...I'd dose up maybe 4 or 5 times a year.

Starting approx 6 months ago I began having sever sleep issues. Every time I'd start to nod off I'd stop breathing. I'd spend a few days at a time in a fugue not only unable ..but afraid to try to go to sleep until I just fell out and crashed where ever I was doing what ever it was I was doing at that moment.
Then I'd get a few hours of sleep and start the process all over.
Now, I have constant chest pains, headaches my nerves feel like I'm burning all over..and I'm gonna sleep..no matter what it takes I'm gonna get me some sleep.

So I dose up..but never more than 3 nights a week and never more than 2 nights in a row...and that's been for just the last 3 weeks.

Since I've gotten my CPAP breathing machine I'm not afraid to try to go to sleep so I am getting some sleep..even on the really bad days. That's helping alot.


damac100
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Location: California

Post by damac100 » Mon Dec 12, 2005 3:20 pm

Update.

tried the mask last night with no addtions to straps, restraints or supports..just the head gear as sold.

went to bed usual time. Did not set machine on ramp, just standard force for this sleep test.

Used no sleep meds

Fell asleep fast enough to be considered a win on that issue. Slept well excpet for a few times of forceing a finger up under the works to scratch an itch and repeated leaks from around the chin area.

It seems my chin retreats during sleep like a glacier lost in the tropics :/

I will try again tonight with the bottom straps tighter.

I used straight pass over humitify, no heat. Mouth, nasal/sinus, throat all felt fine upon awakening. No middle ear issues yet. Eyes felt slightly protrubant and out of focus for approx 20 mins after getting up..as if someone had pushed em out from behind but that's cleared up quick enough and might be a "one off".

I did, as carefully as I was able, trim off approx 1/8 inch around the inside flaps of the silicone gasket. They tended to flap against my face and cause tickles enough to wake me up on previous nights. Did not experience "flap tickle" issues last night..just standard skin itchies around the nose nad upper lip.
Gonna try lotion on those parts tonight to see if that helps.

I now know I can sleep with this setup and sleep reasonably well. Slept (with some wakeups) for approx 5 and a half hours, awoke for a few mins then went back to sleep for another hour or so with mask still on. Gonna call last night a win.

I've decided on naming my mask "Snuggie" and my machine "Windy". We're gonna be good friends.


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neversleeps
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Post by neversleeps » Mon Dec 12, 2005 3:31 pm

damac100 wrote:I now know I can sleep with this setup and sleep reasonably well. Slept (with some wakeups) for approx 5 and a half hours, awoke for a few mins then went back to sleep for another hour or so with mask still on. Gonna call last night a win.
Yea!!!!!!!!! Another success story. Man vs. machine and man wins!!!!!!!

damac100
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Location: California

Post by damac100 » Tue Dec 13, 2005 1:56 pm

Update:

Did the shopping..bought the stuff...forgot to get vinegar..oh well, there's alwase next month's list.

3 issues currently being fix tested.
1. seal
2. chin fall back
3. face itches

Anyhoo, got razors with 3 blades..why not be trendy? they might even cut a bit closer and help get a seal, right?

early evening I did my shave. My beard doesnt grow all that fast and I wanted some time to let the skin recover.
I washed my face before shaving and rinsed well after to make sure soap was off to prevent itchy later. I lotioned up my face after shaving and masaged my face for about a min to possibly improve blood flow.

I did a major nose hair trim job and then did a nasal rinse.

Approx 6 hours later, to prepair for bed I did a second nasal rinse (these were my first ever rinses so I figured it needed it) washed my face with the baby shampoo to clean skin for a good seal. I had previously washed my gaskets in the shampoo and allowed to air dry.
I then applied lotion to my nose and upper lip since those areas tend to attract itch demons mostest.

When putting on my mask for the night, I pushed my chin in as far as it would go, then wiggled it in a bit more. I pulled the staps as tight as they could be pulled and sealed up as hard and tight as I could.

Nose itched. had to loosen the staps cause a finger could not fit under the gasket. Scratched nose and retightend...nose itched again....did this 3 times then figured...nose is just gonna have to itch, deal with it..and I did..and I fell asleep after approx an hour...which is still pretty good for me.

Woke up with really bad nose itch. removed mask in a near rage...rubbed nose nearly raw...put mask back on. Noticed this time that the mear act of putting the mask near my face made my nose itch. decided to just deal with it again..ignore it..maybe it'll go away.

Strapped mask on as tight as it would go with chin pushed as far in as it would go. Went back to sleep.

Woke up with bad face pain. Mask was too tight DUH! loosened it up some..scratched nose again...decided it was lack of blood flow from mask too tight that was causeing itches and went back to sleep.

Woke up approx 6 hours later. chin still in mask. Nose still clear (forgot to put in above that I'd rummaged up an old nasal spray due to my sinuses closing up again).

Now, a side effect of having an open nasal airway and having spent the night breathing filtered air. I noticed when I woke up and took off my mask...my house stinks.

Never noticed it before but...I'm really glad I'm not a social tyep person that has visitors and such...or I'd be embarrased.

So, I seem to have a choice. I can either pull up my carpets and replace em..and buckle down and scrub the heck out of everything..or I can stay on the CPAP and mask 24/7.

So, question...do they make a 50 foot, self recoiling hose for CPAP?


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Wulfman
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Post by Wulfman » Tue Dec 13, 2005 2:07 pm

Stick with it!

Sounds like you're going to get the hang of this yet.

Best wishes,

Den
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
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