How is it to be off the Machine temporarily?
How is it to be off the Machine temporarily?
I would like to hear from anyone with experience of not using his/her Machine for about a week or so,
say when having to travel abroad ; as a second opinion. I intend going abroad without the Machine.
In a daring mood, I skipped using the Machine for 14 days, to test for any signs health-wise. I did not
experience any untoward problems. I am 76 yrs. male, retired and otherwise healthy. My last apnea
count was 6 p.hr. as the Machine revealed. I have been 18 months on this.
say when having to travel abroad ; as a second opinion. I intend going abroad without the Machine.
In a daring mood, I skipped using the Machine for 14 days, to test for any signs health-wise. I did not
experience any untoward problems. I am 76 yrs. male, retired and otherwise healthy. My last apnea
count was 6 p.hr. as the Machine revealed. I have been 18 months on this.
Re: How is it to be off the Machine temporarily?
I went about a week without my machine. It was awful. I slept terribly, I felt worse than normal. I dreaded going to bed. My small improvements were that much more noticeable when I got my machine back.
Is there a reason you can't take it with you, or do just prefer not to?
Is there a reason you can't take it with you, or do just prefer not to?
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Started treatment Sept 14, 2010 |
_____________________________________________
Dx: Mod.OSA Aug. 2010
AHI:31.7/hr,60/hr in REM
SaO2 nadir 87%.
Desaturation index 16.5/hr.
AutoSet at 10-13
Dx: Mod.OSA Aug. 2010
AHI:31.7/hr,60/hr in REM
SaO2 nadir 87%.
Desaturation index 16.5/hr.
AutoSet at 10-13
Re: How is it to be off the Machine temporarily?
Do you enjoy playing Russian roulette?
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Re: How is it to be off the Machine temporarily?
I'm not a person yo want to hear from on this but you are going to hear from me! I have been on cpap for 8+ years and have only slept without the machine for part of a night when the power went off and I didn't have battery backup. I got battery backup pdq! Have never slept without the machine since diagnosis except for that 1 short time. That was enough!
When I travel, it goes with me.
I hope I never have to sleep without my machine. If it should happen, it will not be by my choice!
When I travel, it goes with me.
I hope I never have to sleep without my machine. If it should happen, it will not be by my choice!
_________________
Machine: DreamStation Auto CPAP Machine |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: DreamStation Heated Humidifier |
Additional Comments: Backups- FX Nano masks. Backup machine- Airmini auto travel cpap |
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Re: How is it to be off the Machine temporarily?
I can't find it right now, but there was a study that showed that the damage to the body by obstructive sleep apnea is reversed by using xPAP, and the healing continues for a short period of time even when the therapy is stopped.
I don't have a lot of symptoms from OSA, so the few times I have not used my machine, I really didn't notice any difference in my daily performance. I have no problem taking backpacking trips and going several nights without xPAP. I find the cold/hot, dry/wet, rocky/sandy, wild animal noises/natural noises tend to be more of an issue interrupting my sleep than OSA.
With that said, if you are still having problems after using xPAP therapy, stopping it will most likely make things worse. If you have noticed symptoms going away with therapy, they may return after stopping, but there also may be a delay in their return.
I don't have a lot of symptoms from OSA, so the few times I have not used my machine, I really didn't notice any difference in my daily performance. I have no problem taking backpacking trips and going several nights without xPAP. I find the cold/hot, dry/wet, rocky/sandy, wild animal noises/natural noises tend to be more of an issue interrupting my sleep than OSA.
With that said, if you are still having problems after using xPAP therapy, stopping it will most likely make things worse. If you have noticed symptoms going away with therapy, they may return after stopping, but there also may be a delay in their return.
_________________
Mask: Brevida™ Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Machine is an AirSense 10 AutoSet For Her with Heated Humidifier. |
SpO2 96+% and holding...
Re: How is it to be off the Machine temporarily?
A couple of years ago, I forgot my mask when I went to a conference. 5 days of torture. I don't think I absorbed anything after the first day. I suggest that you by yourself a plug converter for your machine and take it with you.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Encore Basic Software; Pressure >7 |
Howkim
I am not a mushroom.
I am not a mushroom.
Re: How is it to be off the Machine temporarily?
With an AHI of 6, you may not be experiencing all of the benefits the machine can give you, which might explained why noticed less of a difference when you did your experiment going without.
If I were you, I'd work on therapy effectiveness to get that AHI well below five (below 3, preferably). Then it will really be doing you more good, and you might notice the difference when you are NOT using it.
Apnea damage to your body is cumulative--a death of a thousand cuts. Every time you don't use it, you are causing damage. It may not seem like a lot but it adds up. An added danger of going without for two weeks is that it makes it all the harder to convince yourself to keep using it on your return.
In the end, you're an adult, and it's your choice. But you must be wanting some reassurance because you're asking--most of us have learned the hard way that going without CPAP for even a short nap is a very bad idea. Hopefully you don't have to learn this lesson the "hard way" too.
If I were you, I'd work on therapy effectiveness to get that AHI well below five (below 3, preferably). Then it will really be doing you more good, and you might notice the difference when you are NOT using it.
Apnea damage to your body is cumulative--a death of a thousand cuts. Every time you don't use it, you are causing damage. It may not seem like a lot but it adds up. An added danger of going without for two weeks is that it makes it all the harder to convince yourself to keep using it on your return.
In the end, you're an adult, and it's your choice. But you must be wanting some reassurance because you're asking--most of us have learned the hard way that going without CPAP for even a short nap is a very bad idea. Hopefully you don't have to learn this lesson the "hard way" too.
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: DreamWear Nasal CPAP Mask with Headgear |
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Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm
- BlackSpinner
- Posts: 9742
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Re: How is it to be off the Machine temporarily?
This week in the hospital while hooked up to a monitor I dozed off and saw that my oxygen levels dropped well below 80. Not even sleeping deeply. Never go without oxygen - it doesn't do much good for you.
Plus your AHI on the machine has no relationship to our AHI off the machine.
Plus your AHI on the machine has no relationship to our AHI off the machine.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: How is it to be off the Machine temporarily?
I once went a week without. I traveled by air and forgot a cord........ besides having an almost panic attack just over the thought of not being able to use it....
It was a very tough week on a trip that was supposed to be for pleasure without having enough sleep.... Now I check and double check as I never would dream of not using it. For me that is not an option ever.
It was a very tough week on a trip that was supposed to be for pleasure without having enough sleep.... Now I check and double check as I never would dream of not using it. For me that is not an option ever.
Brooke
Re: How is it to be off the Machine temporarily?
Janknitz, in my area if you got your pressures to low values and the rest of the indices to acceptable levels then a psychiatrist would take over and try to wean you from the da-mn CPAP for 6 months with some safe medications (Xanax is one).
_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: S9 Autoset machine; Ruby chinstrap under the mask straps; ResScan 5.6 |
see my recent set-up and Statistics:
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png
Re: How is it to be off the Machine temporarily?
I took a trip about a year ago and forgot part of my mask at home. I slept 3 or 4 nights without my CPAP until I was able to receive a replacement part. The first night I slept badly and was pretty tired the next day, but it wasn't terrible. But each successive night I was more and more tired. I was sleeping in a lot (like 10 hours) but I felt like I was sleeping 4 hours a night instead of my usual 8. By the time I got on CPAP again I was miserable. And I didn't recover from it right away. It took at least another week to feel back to normal. Basically, I felt pretty miserable for my whole 2 week trip. It was my first time meeting some of my new in-laws and I wonder what they thought of me because I'm sure I was walking around like a zombie most of the time.
_________________
Machine: IntelliPAP 2 AutoAdjust Auto CPAP Machine |
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Re: How is it to be off the Machine temporarily?
A week???? After 30 mins I feel like garbage, if you like headaches, sweats etc, go without.
Any landing you walk away from is a good one; if you don't break your airplane it's excellent.
Re: How is it to be off the Machine temporarily?
Huh?? This makes no sense at all... cpap doesn't cure anything... it manages the symptoms of apnea, but as soon as you stop using it, your AHI is back where it used to be and all of the horrible effects along with it.avi123 wrote:Janknitz, in my area if you got your pressures to low values and the rest of the indices to acceptable levels then a psychiatrist would take over and try to wean you from the da-mn CPAP for 6 months with some safe medications (Xanax is one).
_________________
Mask: Mirage Activa™ LT Nasal CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: ResScan 3.12, APAP 9 - 13, no EPR, ClimateControl 75F |
(yet another Jeff)
Re: How is it to be off the Machine temporarily?
I don't understand what you're saying here....are you saying that if someone uses a low pressure and has low AHIs then they should be weaned off of a cpap? Isn't Xanax used for anxiety? Are you making a connection between anxiety and the need for a cpap?avi123 wrote:Janknitz, in my area if you got your pressures to low values and the rest of the indices to acceptable levels then a psychiatrist would take over and try to wean you from the da-mn CPAP for 6 months with some safe medications (Xanax is one).
Just curious.....
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- NightMonkey
- Posts: 801
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Re: How is it to be off the Machine temporarily?
avi123 wrote:Janknitz, in my area if you got your pressures to low values and the rest of the indices to acceptable levels then a psychiatrist would take over and try to wean you from the da-mn CPAP for 6 months with some safe medications (Xanax is one).
This makes no sense whatsoever. Care to elaborate?
If by "my area" you are talking about Raleigh, I have lived in the Triangle area before and still frequently visit there and I know they have excellent doctors who would be appalled at what you wrote.
Now that is not to say there aren't some quacks practicing medicine there. If you look you can find quacks everywhere.
NightMonkey
Blow my oropharynx!
the hairy, hairy gent who ran amok in Kent
Blow my oropharynx!
the hairy, hairy gent who ran amok in Kent