please sign in if you were never tired or sleepy before cpap

[elena88]

Im just trying to find some mates like me who were never tired or sleepy during the day before cpap..

people we would score zero on that epworth sleepiness scale.. people who were vibrant, energetic and could work ten hour days..


and didnt know they even had sleep apnea....


maybe someone that doesnt even snore?


How many of you are out there? I need some buddies!


(now watch the thread fall slowly to the bottom like a spot of squid in a fish bowl )

[Bons]

Sorry,
Really tired before pap, really really tired with pap (but not waking up as much the past couple of nights....).

[elena88]

Hi Bons!

Im sorry you are still tired with the cpap, but Im glad you are sleeping a little longer thru the nights.. maybe soon you will

sleep through an entire night without waking up!

_______________________________________________________________



<Peering in the distance to see if any mates are on the horizon .....................>


I know Im not the norm, but there have to be others? No snoring? No sleepiness? No tiredness? No symptoms?

[robysue]

elena88 writes:

Im just trying to find some mates like me who were never tired or sleepy during the day before cpap..

people we would score zero on that epworth sleepiness scale.. people who were vibrant, energetic and could work ten hour days..

Count me in: I had enough energy and was seldom tired and never sleepy during the day before CPAP (except if I stayed up all night grading to meet a deadline). Could easily work 10 hour days. Every Thanksgiving my hubby and would drive all night from Buffalo to NJ and then I'd get up the next morning with 3 hours of sleep to cook the Turkey Day Dinner without any problems.

But I did snore and my husband kept telling me that he would occasionally see me stop breathing at night in my sleep.

The stress of going to bed is what's getting to me during my adjustment period: Somehow my brain is starting to associate Put CPAP mask on with Time to WAKE UP instead of Go to sleep. I've struggled for a couple of hours almost every night just to get to sleep. But at least I'm not pulling my mask off in my sleep and my numbers do look good so far: AHI's ranging from 0.3 to 1.0.

[Zeke351]

Same here!!! Not tired, able to work 10 - 12 hours a day. Never napped, etc.etc. Thats why it was so hard to believe when I was told I stop breathing 59 times an hour. I will admit though after 4 months I fell healthier.

Zeke351

[elena88]

oh thank goodness! you exist!!!

Its so nice to know some other folks who never had the usual symptoms.... wow, thanks for replying!

HI Zeke! I guess you were pretty shocked to be told you were so severe, I was too..

everyone said I would feel better on cpap, but its had the opposite effect for me.. so its all assbackwards.. I cant function at all if I wear it all night.
My sleep doctor is consulting with another sleep doctor. I decided to quit about two weeks ago.. and I took my nose pillows off at three am, and
said, IM DONE! Then I went to sleep for four hours and woke up feeling like a million bucks.. so I started a half and half plan, and so I didnt end
up quitting all the way..

Im so glad at the four month mark you started feeling healthier.. good for you!

Its kind of freaky to be told you wont be tired anymore when you were never tired before.. yep, tweleve hour days too, without missing a beat..
I could go from morning till midnight! Actually, I am doing that again, now that I take my apap off after four hours, and sleep for three
or four without it , Im back to normal in the morning.. Im wondering if I didnt wear it all, if I would really even have a ton more energy..


HI Robysue!
I have been following your threads, and I know what a struggle it is to get started... but you are doing really well... that is a tough time though, that
two hours of waiting to go to sleep.. I hated that.. now I just wait till I start rubbing my eyes before I go to bed.. when I used to put my mask on
at bedtime, I might log three or four hours awake, and it made my graphs look so perfect! I guess you wont know if you "feel" any better
for awhile, because of the big adjustment period..
Anyway, its sure nice to meet some folks who were never tired before cpap.... ..
I wonder if there are any who werent tired before, but were exhausted and useless after cpap? I hope Im not the only one..

[greg-g]

I'll join your group, I gave myself a score of 1 on the epiworth scale.
I didn't ever feel very tied, and had no trouble with daytime sleepiness.
But.
I was occasionally having major night time sweats (A strong indicator on sleep apnea).
I did wake occasionally with a pounding heart.
I did snore, but not enough to worry my wife.
I was having some minor medical issues that my GP couldn't explain.
After extensive googling I started to suspect sleep issues and purchased a CMS-50F. This showed I was regularly desaturating to about 85 several times a night.
I then purchased a night vision camera, and could see major suction on my neck at times of desaturation.
My GP eventually decided to send me to a sleep specialist, and the resulting sleep study showed about 35 apneas/hr.
From my studies I new what the problem was that I had to adapt to sleeping with a machine.
After 3 months I haven't looked back
My blood pressure is down from 140 to 125.
I've lost about 6 Kg, down to about 81 Kg, even though I'm probably eating more.
I'm sleeping less, but probably feeling a bit more refreshed even though this was never an issue.
My Chronic Subjective Dizziness (CSD), has gone and I'm off medication.
I now require about 1 less blanket at night than my wife.
I now can't imagine not going to bed each night without ResMed (What a horrible thought as I don't like their business practices).
Luckily I'm a nose breather, and with my hose management system and air diffuser (see my other posts) I can toss and turn all night, and sleep on my front with no problems.
Thats my story.
How many others are out there with undiagnosed medical problems caused by sleep apnea.

[djr1215]

I didn't have the sleepiness and tiredness until January though I did snore.
End of Dec, and throughout January I had several health issues and among all that got sent for a sleep study and diagnosed with OSA. Didn't start cpap until May though.
I don't have a problem with the mask, my therapy is "appropriate" according to the sleep doctor (AHI under 2 most of the time and O2 sats are normal), but the sleepiness and tiredness haven't gone away.
Just had A1C, TSH, CBC, CMB, etc checked and all okay (except cholesterol).
Now investigating whether the BP med I'm taking is causing the sleepiness/tiredness - my GP says the most common complaint about that med is fatigue.

[Guest]

elenna88 wrote:

I hated that.. now I just wait till I start rubbing my eyes before I go to bed..

That's basically what I'm doing now: Not going to bed until I'm reasonably confident that I'm really and genuinely sleepy. But that's not happening until 2 hours after my usual bedtime.

Last night was a better one for sleeping and less good on the AHI: At midnight (my pre-cpap late-normal bedtime), I was not sleepy and could tell that I had a lot of stress in my body. (Dreading bedtime, perhaps?). So I did the dishes, cleaned up the kitchen, and then did some yoga. About 40-50 minutes into the yoga, I started to yawn, get real relaxed, and feeling sleepy. So I went back to the bedroom at that time (about 2:10) and was able to fall asleep with the mask on in my more usual time frame of about 30 minutes. Slept until 7:30 when the alarm went off, but then dozed/semi-slept for another hour with the mask on. But my AHI was up to 1.3 last night---highest it's been on CPAP. Go figure.

[robysue]

Don't know why that my last post showed up as a "Guest" post. But at anyrate, it's mine (robysue)

[sister]

Im just trying to find some mates like me who were never tired or sleepy during the day before cpap..

people we would score zero on that epworth sleepiness scale.. people who were vibrant, energetic and could work ten hour days..


and didnt know they even had sleep apnea....


maybe someone that doesnt even snore?


How many of you are out there? I need some buddies!

Hey, let me jump in there too, I was never tired before c-pap either, always kept going all day and half the night,hardly ever sat down, that was just me.
I had surgery in 2006 and the anesthesia people told me upon waking up in recovery room' you need to see a dr, you have sleep apnea!
Well! At that time I had no earthly idea what sleep apnea was. I said' I have what?
I have tried since then to use the c-pap without much luck,but I am reading the forum every day and trying everything I read about that i think might help.
I too am tired all time,I was not that way before c-pap.The person I am now is just not me!

(now watch the thread fall slowly to the bottom like a spot of squid in a fish bowl )

[Slartybartfast]

Me too. I recently drove for 19 hours without a break from southern California to Seattle with no sleepiness at all, if that tells you anything. Scored a 3 on the Epworth Sleepiness Scale. I wasn't sleepy during the day. But after getting a sleep study and pulmonary function test to try to find out why I kept getting bronchitis, it turned out I was having 76 events/hour.

My first night on CPAP changed me forever. I'm more alert, more energy, mental fog is gone, feel no need for a nap on weekends. Several folks have said out of the blue that I look years younger, my color is improved, I'm not grouchy, GERD is gone, and my wife says I have better endurance, whatever that means.

[williamco]

elena88 :

it is kind of freaky but is it possible to videotape your self sleeping with the CPAP and another time not sleeping with CPAP and see if you sleep deeply enough with CPAP, which means not being restless, tossing and turning (just fast forwarding the tape till a moment you move and count time of moves per the 2 hours)

because there is a possibility that while CPAP treats apnea yet it doesn't allow you sleep deeply enough and keep you in a shallow light sleep
that might cause your tiredness, and it might be then a matter of time till you get used to sleeping with it or a matter of taking a relaxant with it

[elena88]

elena88 :

it is kind of freaky but is it possible to videotape your self sleeping with the CPAP and another time not sleeping with CPAP and see if you sleep deeply enough with CPAP, which means not being restless, tossing and turning (just fast forwarding the tape till a moment you move and count time of moves per the 2 hours)

because there is a possibility that while CPAP treats apnea yet it doesn't allow you sleep deeply enough and keep you in a shallow light sleep
that might cause your tiredness, and it might be then a matter of time till you get used to sleeping with it or a matter of taking a relaxant with it

I have a friend who is a photo journalist, maybe I can ask him to set up a camera for me, good idea! this morning I woke up and felt horid, and realized
I logged 7.2 hours on the machine, and only wanted to do four.. I could never get back to sleep to do my "recovery after wearing cpap) so now my day
is ruined. I wake up feeling like I never went to sleep, and have this electric buzzing feeling, that really weird feeling from not sleeping.. but I sleep
with it, but someting is really disturbing me while Im sleeping, and I dont know what it is.. I think its the pressure.. Maybe I should try an experiment
and just put it on cpap at four all night and see what happens..

Me too. I recently drove for 19 hours without a break from southern California to Seattle with no sleepiness at all, if that tells you anything. Scored a 3 on the Epworth Sleepiness Scale. I wasn't sleepy during the day. But after getting a sleep study and pulmonary function test to try to find out why I kept getting bronchitis, it turned out I was having 76 events/hour.

My first night on CPAP changed me forever. I'm more alert, more energy, mental fog is gone, feel no need for a nap on weekends. Several folks have said out of the blue that I look years younger, my color is improved, I'm not grouchy, GERD is gone, and my wife says I have better endurance, whatever that means.

Well, thats good you were not tired before, what a drive! and I am so thrilled even though you didnt know you had it, you are really improving, thats
great!

Hey, let me jump in there too, I was never tired before c-pap either, always kept going all day and half the night,hardly ever sat down, that was just me.
I had surgery in 2006 and the anesthesia people told me upon waking up in recovery room' you need to see a dr, you have sleep apnea!
Well! At that time I had no earthly idea what sleep apnea was. I said' I have what?
I have tried since then to use the c-pap without much luck,but I am reading the forum every day and trying everything I read about that i think might help.
I too am tired all time,I was not that way before c-pap.The person I am now is just not me!

aha, so not tired before cpap and exhausted afterwards, THATS ME TOO! "the person I am now is just not me" Oh, how that resonates with my
experience... I could go all day and night before cpap, and then it turned my life upside down.. seven months of total exhaustion, couldnt do anything..
I felt disabled I was so tired.. quality of life so bad, just felt like there was nothing I could do.. until I decided to quite the cpap one night, and felt
so good the next morning! Have you tried wearing it half the night, and not the next half? Its totally working for me.. if I have several hours of normal
sleep to recover, Im just like I used to be.. Im thinking wearing it half the night is better than quitting the therapy all together.. so given those
two choices, Im picking half the night..

That's basically what I'm doing now: Not going to bed until I'm reasonably confident that I'm really and genuinely sleepy. But that's not happening until 2 hours after my usual bedtime.

Last night was a better one for sleeping and less good on the AHI: At midnight (my pre-cpap late-normal bedtime), I was not sleepy and could tell that I had a lot of stress in my body. (Dreading bedtime, perhaps?). So I did the dishes, cleaned up the kitchen, and then did some yoga. About 40-50 minutes into the yoga, I started to yawn, get real relaxed, and feeling sleepy. So I went back to the bedroom at that time (about 2:10) and was able to fall asleep with the mask on in my more usual time frame of about 30 minutes. Slept until 7:30 when the alarm went off, but then dozed/semi-slept for another hour with the mask on. But my AHI was up to 1.3 last night---highest it's been on CPAP. Go figure.

That two to four am used to be when I could finally fall asleep too, but it gradually got better. I have no trouble sleeping with the mask on now at all.
I hope when you get used to it, that you actually FEEL better in the morning and dont have my experience of feeling worse..

I didn't have the sleepiness and tiredness until January though I did snore.
End of Dec, and throughout January I had several health issues and among all that got sent for a sleep study and diagnosed with OSA. Didn't start cpap until May though.
I don't have a problem with the mask, my therapy is "appropriate" according to the sleep doctor (AHI under 2 most of the time and O2 sats are normal), but the sleepiness and tiredness haven't gone away.
Just had A1C, TSH, CBC, CMB, etc checked and all okay (except cholesterol).
Now investigating whether the BP med I'm taking is causing the sleepiness/tiredness - my GP says the most common complaint about that med is fatigue.

So you werent tired before cpap... but now are tired starting in january... is that when you started the bp meds?
My husband is on some, and we ran out a couple days ago.. I noticed that he was not falling asleep every where he sat the days we didnt have that
bp med, so Im going to ask his doctor about that.. since he works at home, he can get away with doing that, but I know he would much prefer not
falling asleep all the time.. If the cpap is making you better, but the meds are making you tired, it will be hard to tell how refreshed you would
have been because the cpap was doing its job..

I'll join your group, I gave myself a score of 1 on the epiworth scale.
I didn't ever feel very tied, and had no trouble with daytime sleepiness.
But.
I was occasionally having major night time sweats (A strong indicator on sleep apnea).
I did wake occasionally with a pounding heart.
I did snore, but not enough to worry my wife.
I was having some minor medical issues that my GP couldn't explain.
After extensive googling I started to suspect sleep issues and purchased a CMS-50F. This showed I was regularly desaturating to about 85 several times a night.
I then purchased a night vision camera, and could see major suction on my neck at times of desaturation.
My GP eventually decided to send me to a sleep specialist, and the resulting sleep study showed about 35 apneas/hr.
From my studies I new what the problem was that I had to adapt to sleeping with a machine.
After 3 months I haven't looked back
My blood pressure is down from 140 to 125.
I've lost about 6 Kg, down to about 81 Kg, even though I'm probably eating more.
I'm sleeping less, but probably feeling a bit more refreshed even though this was never an issue.
My Chronic Subjective Dizziness (CSD), has gone and I'm off medication.
I now require about 1 less blanket at night than my wife.
I now can't imagine not going to bed each night without ResMed (What a horrible thought as I don't like their business practices).
Luckily I'm a nose breather, and with my hose management system and air diffuser (see my other posts) I can toss and turn all night, and sleep on my front with no problems.
Thats my story.
How many others are out there with undiagnosed medical problems caused by sleep apnea.

Wow, thank goodness you found out, and got diagnosed.. this is wonderful news, after three months you are getting such fabulous results..
This is fantastic, so glad you are doing so well!

[Bons]

Elena said "someting is really disturbing me while Im sleeping, and I dont know what it is.. I think its the pressure.. Maybe I should try an experiment"

Since I switched to auto, I find I wake up once the pressure gets high (my CPAP was set at 9, and since my auto has no parameters set for this three-week home titration it's been hitting as high as 14); I think the fluctuation brings me to partial alertness. Instead of setting it at 4, which is pretty darn low, why not try experimenting with it set closer to your usual setting, and turn off the expiration relief?

On the positive side, your unintended 7 hours on the pap shows your body must be getting used to it and you didn't wake up enough to disconnect!