anyone on a lower pressure than titration?

sharon1965 · Post by **sharon1965** » Tue Apr 22, 2008 2:27 pm

hey all
i had been titrated at 6cm jan. 2007, but increased my pressure to 8.5 in sept....
then i had a new study done in january 2008, where they settled on 10...
doc. said to try 9.5 for a while, which i did...
i've been feeling like hell since january...at the study i was mouth leaking, which hadn't been an issue at 8.5 cm...
since i increased to 9.5 i've been mouthleaking like crazy...so i've been trying fullface masks, with no success so far...but i'm about to trade my fp431 in one of these days (when i get up the energy to go to the dme, lol)...
since i was still feeling so rotten, i changed my pressure to 10, but after a week on 10 i was feeling worse than ever, pretty close to my pre-cpap condition, and mouth leaking even more (been trying to make a chin strap work, but it's just so uncomfortable after a year on the headrest which is like going commando )...
so last night i reduced the pressure to 9 cm, and my numbers were great this morning (ahi 0.9) with a great leak line, and no mouth leaking at all; i know i have to give it a week or two, but this seems encouraging...
so whaddya think? anyone have success with a lower pressure than the study suggested?
thanks
sharon

LyleHaze · Post by **LyleHaze** » Tue Apr 22, 2008 2:57 pm

My original titration was CPAP at 11 cm. I managed to get an auto
and my pressure has settled between 8 and 9.
I tried CPAP at eleven, as prescribed, but the aerophagia was horrible.
Lucky I'm not taking the prescription as an absolute reference, or I would have given up long ago.

LyleHaze

sharon1965 · Post by **sharon1965** » Tue Apr 22, 2008 3:03 pm

hey thanks lyle
that's just the kind of input i was looking for!
unfortunately i don't have an auto, but i do have data collection and i think i might be on the right track for once

Wulfman · Post by **Wulfman** » Tue Apr 22, 2008 3:36 pm

Sharon,

You KNOW I was.......titrated to 16......doctor prescribed 18......and I started myself out at 10......am now at 12. AHI has been essentially identical between 10 and 12, but the snore index is lower at 12.

Den

travismcgee · Post by **travismcgee** » Tue Apr 22, 2008 4:12 pm

I was titrated at 12, the aerophagia was unbearable to the pointy that I would wake up with severe cramping. After enduring this for a week I called my dr and he prescribed an auto machine. My settings are between 8-12 I have never hit 12 and only hit 11 once for about 6 minutes one night. My AHI ranges between 3.5 and 0.5.

sharon1965 · Post by **sharon1965** » Tue Apr 22, 2008 4:14 pm

Wulfman wrote:Sharon,
You KNOW I was.......titrated to 16......doctor prescribed 18......and I started myself out at 10......am now at 12. AHI has been essentially identical between 10 and 12, but the snore index is lower at 12.
Den

hi den
in my sleep deprived condition with my addled brain, i'm unable to recall what everyone else's pressure is
i barely know what I'M doing these days, never mind anyone else
thanks

Catnapper · Post by **Catnapper** » Tue Apr 22, 2008 4:20 pm

Hi Sharon,

I started at a pressure of 15, begged to have it dropped, so it went to 13. Begged for an auto, and found that my 90% was sometimes 11 sometimes 12, and the lower limit was 7 and I was there a lot. Managed to convert to auto bi-pap with pressures of 9/12. I get 0.0 AHI several times a week like that. The bi-pap makes it easier for me to breathe. That 9 feels like no pressure at all and it keeps the apneas away and almost all hypopneas.

Just goes to show you that when you are home you sleep differently than you do in the sleep lab.

If you can get the data, you should be able to judge for yourself how it is working over time. How you feel is definitely part of it.

Good luck. You can always find help here.

Catnapper - Joanie

roster · Post by **roster** » Tue Apr 22, 2008 4:27 pm

A trick answer, I was titrated, accurately I believe, at 18 and am now using 8.5 and getting AHI near zero.

The trick? I am wearing a backpack to force myself to sleep on my side where the pressure requirements are much lower.

When a sleep lab titrates someone at such a high pressure (18 in my case), why would the doctor fail to suggest you might need a much lower pressure if you slept on your sides?

Thank goodness for home data capability and software.

BarryKaraoke · Post by **BarryKaraoke** » Tue Apr 22, 2008 4:54 pm

I am still trying to dial-in the best pressure, but I have already found that my numbers are much better at 14 than my titrated 15.

goose · Post by **goose** » Tue Apr 22, 2008 10:07 pm

Hey Sharon,
I was titrated at 5 and am now at 10.....with reading all the posts over the past year, I've kind of come to the conclusion that the titrated pressure may be right may be wrong and reality is what the data and your body tells you.....I tried it higher but 10 seems to work best for me.....
If you feel a whole lot better at 9 -- yee ha!!! But you're right. Keep it there for at least a week and evaluate then (I do it for a month unless there is something terribly wrong)......
It sounds like you're on a good track!!!! That's great!!!!

Great new avatar by the by.......

take care!!
cheers
goose

Snoredog · Post by **Snoredog** » Wed Apr 23, 2008 3:17 am

[quote="sharon1965"]hey all
i had been titrated at 6cm jan. 2007, but increased my pressure to 8.5 in sept....
then i had a new study done in january 2008, where they settled on 10...
doc. said to try 9.5 for a while, which i did...
i've been feeling like hell since january...at the study i was mouth leaking, which hadn't been an issue at 8.5 cm...
since i increased to 9.5 i've been mouthleaking like crazy...so i've been trying fullface masks, with no success so far...but i'm about to trade my fp431 in one of these days (when i get up the energy to go to the dme, lol)...
since i was still feeling so rotten, i changed my pressure to 10, but after a week on 10 i was feeling worse than ever, pretty close to my pre-cpap condition, and mouth leaking even more (been trying to make a chin strap work, but it's just so uncomfortable after a year on the headrest which is like going commando )...
so last night i reduced the pressure to 9 cm, and my numbers were great this morning (ahi 0.9) with a great leak line, and no mouth leaking at all; i know i have to give it a week or two, but this seems encouraging...
so whaddya think? anyone have success with a lower pressure than the study suggested?
thanks
sharon

ozij · Post by **ozij** » Wed Apr 23, 2008 3:49 am

[quote="sharon1965"]hey thanks lyle
that's just the kind of input i was looking for!
unfortunately i don't have an auto, but i do have data collection and i think i might be on the right track for once

sharon1965 · Post by **sharon1965** » Wed Apr 23, 2008 5:41 am

Snoredog wrote:
Try this setting for 1 night:

Auto:Min pressure =6.0
Auto:Max pressure =9.0

You could optionally try Auto:Min=6.5 so Cflex/Aflex was enabled (those are disabled below 6.5 cm pressure).

Note: the Auto:Max pressure suggested is critical for this test, if you are not going to drop it down to "limit" pressure exposure, don't bother with the test. Remstar will probe above that setting by 1 cm anyway.

If you feel a little bit better the next day, you may want to lower the Auto:Max=8.0 (again Remstar will still probe 1 cm above that).

_________________

hey snoredog
thanks for the guidance; unfortunately i don't have an auto

Flying_Norseman · Post by **Flying_Norseman** » Wed Apr 23, 2008 7:07 am

I was Titrated at 10 cm but I have my Auto on a tight range of 10 to 12. I am at 12 cm most of the time. My average AHI for the last few months has been about 1.7 so I am happy even though the pressure is a bit higher.

Snoredog · Post by **Snoredog** » Wed Apr 23, 2008 7:59 am

sharon1965 wrote:
Snoredog wrote:
Try this setting for 1 night:

Auto:Min pressure =6.0
Auto:Max pressure =9.0

You could optionally try Auto:Min=6.5 so Cflex/Aflex was enabled (those are disabled below 6.5 cm pressure).

Note: the Auto:Max pressure suggested is critical for this test, if you are not going to drop it down to "limit" pressure exposure, don't bother with the test. Remstar will probe above that setting by 1 cm anyway.

If you feel a little bit better the next day, you may want to lower the Auto:Max=8.0 (again Remstar will still probe 1 cm above that).

_________________

hey snoredog
thanks for the guidance; unfortunately i don't have an auto

anyone on a lower pressure than titration?

anyone on a lower pressure than titration?

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