CPAP PRO?

nanmykel · Post by **nanmykel** » Thu Apr 07, 2005 4:13 pm

Sorry if this has already been discussed but I just saw the info on it today and wonder if it is really comfortable. One of the testators said it was good but took him about 3 weeks to adjust to. Still looking for the best way to keep my daughter's mask on. What's the worst thing about it?

chrisp · Post by **chrisp** » Thu Apr 07, 2005 4:30 pm

It needs to be held in place by your teeth. Can your daughter tolerate a mouthpiece all night. It doesn't look too effective to me.

Cheers,

Chris

rustynail · Post by **rustynail** » Mon Apr 11, 2005 11:21 am

Hi!

I'm (still) just a guest here but have just started using this (for me) wonderful contraption. Got to get going right now (I'm on vacation and have lots to do and see...)

To make it easier go see my posting from the beginning of this month, subject title was simply No Mask. I was hoping to get a few responses, tips & tricks from people who have or are using it. I'll check in again as soon as I have a chance (think I already read something from you re: your daughter..... my 5 year old son (ok, almost 6!) has inherited
it from me and is on a monitor when he sleeps (since birth).....

Wishing you a successful solution and all the best.

rested gal · Post by **rested gal** » Mon Apr 11, 2005 12:16 pm

nanmykel, I went back to look at your first post about the dilemma of your daughter's mask coming off during the night (or her taking it off without realizing it.)

You had said she's wearing a full face mask:

"Any recommendations for attaching the ResMed Ultra Mirage Full Face Mask? My Downs daughter's mask keeps coming off during the night."

Before you try any other types of masks for her, you might want to check with her doctor or therapist, or make the observation yourself.... does she breathe through her mouth often? Especially, does she open her mouth while sleeping - possibly breathing through her mouth? That might be why a full face mask was prescribed for her in the first place - to let her still get treatment air while mouth-breathing inside the mask.

If she mouth breathes in her sleep, or even just lets her mouth hang open in her sleep, you probably are going to need to stick with a Full Face mask. She'd probably lose treatment air bigtime if you tried to switch her to any kind of mask that doesn't completely cover the mouth, too.

nanmykel · Post by **nanmykel** » Sat May 14, 2005 6:41 am

Thanks to those who responded. I got the best news possible when we returned for another appointment! Her test results that since losing weight she has no sleep apnea when lying on her side. So...she's off the CPAP and sleeps with tennis balls sewn onto the back of a t-shirt so she doesn't sleep on her back! Since losing weight (203 - 130) she has not needed an overnight oxygen machine nor CPAP!

I didn't know the condition was inherited? I do have it too. Thank goodness I made it through graduate school before it struck. Is there something in the environment that has been correlated with it?

Nan