Davileet wrote: ↑Wed Oct 16, 2024 7:14 pm
Hello all. The whole process of getting an APAP machine and the excitement of the idea to get a good nights sleep to remediate the brain fog, morning headaches, etc has led to frustation. I have tried to use the APAP machine for about a week now, but after laying in bed wide awake gasping at the occaisonal catch up breaths, and just the discomfort of the mask, I toss it aside and go back to sleeping without the machine. I am becoming discouraged.
Part of your problem was unrealistic expectations: While a few people are capable of putting on a CPAP mask for the first time and sleeping through the night and waking up feeling much better, most of us have to actually work (hard) at learning how to sleep with the dang hose attached to our nose. We have to learn how to fall asleep with the machine blowing air at us. And we have to learn how to keep the mask on every night, all night long. And even then, it can take several weeks to a few months for our body to really heal from all the damage that was done by years of bad sleep caused by the untreated OSA.
I have tried to use the APAP machine for about a week now, but after laying in bed wide awake gasping at the occaisonal catch up breaths,
Now we can start troubleshooting your problems.
When you say you are "gasping at the occasional catch up breaths", exactly what do you mean? I ask because people use this kind of language to describe a variety of problems which have
different solutions.
So do you mean:
A) There's too much air coming into the mask for you to exhale comfortably and completely and the "catch up breaths" are your attempt to not inhale until you want to.
B) There's not enough air coming into the mask for you to inhale comfortably and completely and the "catch up breaths" are your attempt to get a really good, deep satisfying inhalation.
C) You have EPR turned on and the machine's changing pressure on each and every inhalation/exhalation is not in sync with your own breathing. In other words, you feel like the machine is encouraging/forcing you to inhale before you are ready to inhale. Or you feel like the machine is encouraging/forcing you to exhale before you are ready to exhale.
So which of these three things is the best description of what you are trying to convey when you say you are lying in bed wide awake and gasping at the occasional catch up breaths? Tell us that and we'll be able to make solid suggestions of things to try.
and just the discomfort of the mask
The mask itself should not be uncomfortable. Make sure you do not over tighten the headgear. And consider contacting the DME and asking for a replacement mask to try.
It would also help us help you if we knew what mask you are using and whether you think you are a mouth breather.
Since I am having troubles getting to sleep and/or staying asleep, I haven't been able to get a lot of chart information, and I'm not sure if I should even be trying to make informed decisions with the information I do have.
Until you've got more data from a
whole night's sleep the data is not very meaningful. As soon as you rip the mask off your nose and go back to sleep without the machine, your apnea comes back and you're right back at your untreated AHI of 16. And that's also part of why you're not feeling any better (yet): Most of your sleep is still apnea-filled because most of your sleep is without the machine.
My current pressure settings are 10-20cm of pressure with EPR of 3 full time, and no ramp time. Even though I am comfortable with the inhale at 10cm, the exhale is uncomfortable. After a couple minutes of breathin on the APAP, I find myself feeling that I am just not getting enough oxygen and have to take huge breaths in to get satifisfied which I think is leading to some anxiety towards the whole thing.
The italicized statement would indicate using a bit less pressure at the start of the night would be a useful experiment to try. Perhaps reducing your min pressure to 8cm would help with the exhalation problem. Or perhaps turning the ramp on with a beginning ramp pressure of 7cm might help.
But the bold faced statement indicates that using a bit more pressure is what's needed to fix the problem that you are describing.
And then there's the anxiety issue, which is making everything worse. As hard as it sounds, what you need to do is find a way to concentrate
less on your breathing while you are trying to get to sleep.
It sounds counter-intuitive, but what I would recommend is this: Give yourself what feels like about 15-20 minutes to fall asleep with the mask. DO NOT WATCH THE CLOCK during this time---just go by what "feels like" about 15 or 20 minutes. If you are NOT asleep after 15 or 20 subjective "minutes" OR if you find yourself getting anxious about the breathing, take the mask off and
get out of bed. Go to a different room and do something quiet until you settle yourself down and feel
sleepy enough to try going to sleep with the machine again. Only at that point go back to bed and put the mask back on and turn the machine on before trying to get to sleep.
Yes, at the beginning you may have to get out of bed multiple times before finally falling asleep.
If you get really anxious about how much time you are spending out of bed instead of lying in bed (not sleeping), it is worth considering asking your doctor for a short course of sleeping medication. Sometimes using sleeping pills for a couple of weeks is all that's needed for a person to learn to sleep with the machine all night long. Sometimes using sleeping pills on an "as needed" basis for several months is what's needed for a person to learn to sleep with the machine all night long.
My thoughts on the charts below is that I am having treatment-emergent central sleep apnea as they weren't present in the study. My question is, is it normal for APAP to create central apnea for newcomers onto APAP? Should I be looking into an ASV for CA or BiPAP machine for comfort of exhale? Or do I suck it up and keep on fighting with APAP and see if my body turns it around? Thanks
Personally I think you are overreacting to the CAs in your data. A quick cursory look at your data indicates that many of the CAs scored are most likely
post arousal "events". Meaning there's a high probability that the CA was scored while you were
awake, and these would not be scored on an in-lab sleep test with EEG data available. Or they're normal sleep transition centrals that occur as the control of your respiration is handed off to the autonomous nervous system and the CO2 trigger for inhalation is reset to higher level. Those kind of centrals are also not scored as sleep disrupted breathing problems on an in-lab sleep test with EEG data available.
Yes, there are a small minority of new CPAP users who develop treatment emergent centrals after starting CPAP. But a diagnosis of treatment emergent central sleep apnea is not going to be made until a person is sleeping
all night long, every single night with the CPAP and the person is getting boatloads of centrals all night long. And by boatloads, I mean dozens and dozens---enough to trigger a CAI > 5.0 in at least 4 or 5 hours of sleep and every single night over an extended period of time.
It's worth pointing out that the usual approach to treating treatment emergent centrals is cautious waiting: Most of the time the problem resolves itself in a few weeks to a couple of months and there is literally no need to put the patient on a much more expensive machine.
It's also worth pointing out that ASV machines are usually much more difficult for people to get used to sleeping with than simpler CPAPs: An ASV machine can aggressively increase IPAP pressure whenever it thinks there is something that indicates a string of CAs may be getting ready to start---but this means that it can aggressively increase IPAP pressure when you are
awake if your wake breathing is sufficiently ragged in just the right way to trick the machine. No xPAP machine can reliably tell when you are actually asleep, and they will all misread certain normal wake breathing patterns as sleep disrupted breathing patterns and then do what their algorithm says to do about that particular sleep disrupted breathing pattern.
Finally, I'll add this: I think that what is happening when your machine is scoring CAs is this: You're stuck in what we call "sleep-wake-junk" (SWJ) around here. In other words, you're bouncing back and forth between a groggy/tired "wake" stage and a very light "sleep" stage, but because you are now also more keenly aware of---and focusing on---your own breathing patterns, every time you almost transition to a real sleep and a normal sleep transition central occurs, your brain is aware that you just stopped breathing for a few seconds and it wakes you right back up. In other words, you're getting stuck in the transition to sleep. That's not a sleep disrupted breathing problem per se; it's an indication that the conscious part of your brain is not yet fully willing to trust this crazy thing on your face to keep working once you fall fast asleep.
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