CPAP determines "level of care".

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Janknitz
Posts: 8494
Joined: Sat Mar 20, 2010 1:05 pm
Location: Northern California

CPAP determines "level of care".

Post by Janknitz » Fri Aug 02, 2024 3:27 pm

I just learned that needing CPAP changes the "level of care" a developmentally disabled individual needs in determining placement under state licensing. My clients have finally found a great place for their daughter, and she may not be able to stay there if it turns out she needs CPAP.

How frustrating!!! This place really matches her functional level well, while the next level of care often has people with much more medical dependence, who often have mobility issues, they need a lot of physical assistance, they cannot communicate or interact as easily. She's very independent physically and very social, and this placement is especially good because she has friends who live there too. :cry:

The retired OT in me thinks she could totally learn to manage her own CPAP, do the cleaning and maintenance with some supervision. Sometimes life stinks.

Before you declare that "all group homes are terrible," I don't agree. Our state has a pretty good system for individuals who are developmentally disabled, and most of the group homes do a good job at fostering independence and engagement in a clean, safe, and supervised environment. I've seen the opposite when aging parents fail to plan for their adult developmentally disabled family member, and this often results in terrible abuse and neglect of the individual. My clients are still able to participate in choosing the best setting for their daughter, supporting and advocating for her needs, and they get to see that she is thriving in this setting. This will make it much easier when a sibling has to take over the advocacy role for them.
What you need to know before you meet your DME http://tinyurl.com/2arffqx
Taming the Mirage Quattro http://tinyurl.com/2ft3lh8
Swift FX Fitting Guide http://tinyurl.com/22ur9ts
Don't Pay that Upcharge! http://tinyurl.com/2ck48rm