Looking for advice, doctor not interested since I didn't buy the machine with them.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Dcmg1900
Posts: 6
Joined: Mon Mar 29, 2021 5:50 pm

Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by Dcmg1900 » Tue Mar 30, 2021 11:36 am

Context:
-I have had sporadic episode were I woke up to catch air, specially if I'm sleeping on my stomach. Snore very loud every night, feel tired every day, morning headaches, dry mouth, high blood pressure. IgaN Nephropathy diagnosed.
-My wife got a CPAP through a friend since they no longer needed, she also got a new mask and hose*
-Not many sleep clinics in my town (MX Caribbean), the one available is postponing my appointments since I didn't purchase the machine with him. Claim has no spots to do the complete study.

Questions:
-Can I put my life at risk by using this machine with out medical advise?, if not..
-If I setup the machine on Auto, with an initial level 4, will be the way to go?

Thanks again for your advice.


*DreamStation Auto CPAP with Cell Modem, Heated Tube, Humidifier by Philips Respironics (DSX500T11C)

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LSAT
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Joined: Sun Nov 16, 2008 10:11 am
Location: SE Wisconsin

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by LSAT » Tue Mar 30, 2021 1:04 pm

The machine will not hurt you...There are various other setting than pressure that can make the device more comfortable for you. What specific machine are you using.

Dcmg1900
Posts: 6
Joined: Mon Mar 29, 2021 5:50 pm

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by Dcmg1900 » Tue Mar 30, 2021 2:37 pm

LSAT wrote:
Tue Mar 30, 2021 1:04 pm
The machine will not hurt you...There are various other setting than pressure that can make the device more comfortable for you. What specific machine are you using.
Thanks Oscar, I have:
DreamStation Auto CPAP with Cell Modem, Heated Tube, Humidifier by Philips Respironics (DSX500T11C)
DreamWear Pillow Mask Phillips
Repironics Heated Tube

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Dog Slobber
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Location: Ontario, Canada

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by Dog Slobber » Tue Mar 30, 2021 2:53 pm

A lot of us self-manage *without* doctors or sleep clinics advising us.

Most here achieve better results because doctors simply can't (or are disinterested) fine-tune our settings.

And no, you're not going to cause yourself harm.
  • Yes, Auto-adjusting is the way to go. Though many feel air-starved on such a low pressure.
  • Put an SD Card in it
  • Download OSCAR
  • Post graphs and people can look at your results and advise you on your settings.
For your initial settings, I would suggest:
  • AFlex: 3 - This will help to exhale against the pressure
  • Minimum pressure: 6 - As stated, 4 is too low for most, and we want to be closer to your normal pressure any way
  • Maximum pressure: 15 - This is where I disagree with what many here advise. Many will advise to set to the machines maximum of 20, and let the machine go where it needs to go. The reason I like an *initial* lower maximum, is many people don't tolerate the higher pressures well when they are new. Our goal is to get you to tolerate CPAP. Then we can optimize.
  • Humidity 3, Heated hose 3: This is about midway, there are better people to advise on DreamStation Humidity than me.
Then after looking at your graphs, we can start moving the minimum pressure closer to where it wants to be, and increase your maximum so it can go higher should it need to.

Dcmg1900
Posts: 6
Joined: Mon Mar 29, 2021 5:50 pm

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by Dcmg1900 » Tue Mar 30, 2021 3:58 pm

Dog Slobber wrote:
Tue Mar 30, 2021 2:53 pm
A lot of us self-manage *without* doctors or sleep clinics advising us.

Most here achieve better results because doctors simply can't (or are disinterested) fine-tune our settings.

And no, you're not going to cause yourself harm.
  • Yes, Auto-adjusting is the way to go. Though many feel air-starved on such a low pressure.
  • Put an SD Card in it
  • Download OSCAR
  • Post graphs and people can look at your results and advise you on your settings.
For your initial settings, I would suggest:
  • AFlex: 3 - This will help to exhale against the pressure
  • Minimum pressure: 6 - As stated, 4 is too low for most, and we want to be closer to your normal pressure any way
  • Maximum pressure: 15 - This is where I disagree with what many here advise. Many will advise to set to the machines maximum of 20, and let the machine go where it needs to go. The reason I like an *initial* lower maximum, is many people don't tolerate the higher pressures well when they are new. Our goal is to get you to tolerate CPAP. Then we can optimize.
  • Humidity 3, Heated hose 3: This is about midway, there are better people to advise on DreamStation Humidity than me.
Then after looking at your graphs, we can start moving the minimum pressure closer to where it wants to be, and increase your maximum so it can go higher should it need to.
Great insight, this is what I was looking for, I will follow your advise.

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Chikorita
Posts: 346
Joined: Mon May 28, 2012 7:15 am
Location: Blue Mountains, NSW, Australia

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by Chikorita » Wed Mar 31, 2021 5:50 pm

I had exactly the same issue when I started in 2012.
My only advice and support was the lovely people here.
I had done a sleep study and had a prescription but hated my Dr and bought my machine elsewhere.
I am not knowledgeable enough to advise but I can report that the support here is very helpful

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: :: Breathing at night is my new hobby :: Pressure range 7-12cm :: APAP since 3/8/2012 :: OSCAR ::
________
Chikorita in Australia :: APAP since 3/8/2012
1 God, 1 husband, 2 kids, 2 dogs, 8 chooks, 5 ducks, 3 budgies and a bee hive
Equipment - ResMed AirSense 10 Autoset :: AirFit P10 Nasal Pillow :: Pressure range 7-12cm :: OSCAR

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Miss Emerita
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Joined: Sun Nov 04, 2018 8:07 pm

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by Miss Emerita » Wed Mar 31, 2021 6:49 pm

Just a word of welcome and a +1 to the advice from DS.
Oscar software is available at https://www.sleepfiles.com/OSCAR/

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chunkyfrog
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Location: Nowhere special--this year in particular.

Re: Looking for advice, doctor not interested since I didn't buy the machine with them.

Post by chunkyfrog » Wed Mar 31, 2021 7:10 pm

Dog Slobber wrote:
Tue Mar 30, 2021 2:53 pm
. . .
[*]Maximum pressure: 15 - This is where I disagree with what many here advise. Many will advise to set to the machines maximum of 20, and let the machine go where it needs to go.
. . .
I agree with DS on this.
For some wacky reason, my breathing lets the machine go way higher than it needs to.
I am fine putting a governor on it.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her