Doctors treating UARS. any suggestions

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
tiredintenn
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Joined: Tue Nov 02, 2010 2:35 pm

Doctors treating UARS. any suggestions

Post by tiredintenn » Fri Aug 28, 2020 8:24 am

I have UARS. My doctors believe the APAP is treating my condition since my AHI is very low but I assume the pressure is not high enough. Does anyone know a Doctor that uses at PES to titrate the correct pressure to eliminate RERAs? Or just a Doctor that believes in titrating out all flow limitations, RERAS, etc? Thanks

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Last edited by tiredintenn on Fri Aug 28, 2020 3:10 pm, edited 1 time in total.

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Dog Slobber
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Re: Message for Dogs are Life

Post by Dog Slobber » Fri Aug 28, 2020 8:41 am

He hasn't been active on the forums for over a year. He's not reading your PMs because he's not logging in. He won't see this topic either.

If you want experiences with UARS and titration with PES, your best bet is t create a topic asking for that.

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chunkyfrog
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Info needed--with UARS and titration with PES

Post by chunkyfrog » Fri Aug 28, 2020 10:49 am

Or just edit your first post here, and the title to reflect the specific problem.
Like I have done in my title.
That will evoke the answers you need.
---from anyone who can help.

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slowriter
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Re: Doctors treating UARS. any suggestions

Post by slowriter » Tue Sep 01, 2020 8:51 am

tiredintenn wrote:
Fri Aug 28, 2020 8:24 am
I have UARS. My doctors believe the APAP is treating my condition since my AHI is very low but I assume the pressure is not high enough. Does anyone know a Doctor that uses at PES to titrate the correct pressure to eliminate RERAs? Or just a Doctor that believes in titrating out all flow limitations, RERAS, etc? Thanks
I don't know why anyone would bother with PES (which is pretty invasive), much less during titration, when all that really matters if whether you eliminate RERAs, and have a normal, consolidated, sleep architecture.

I don't have a recommendation, but I will mention my experience.

At my first sleep test, to see if I had a sleep disorder, when I woke up in the morning, the tech who did the study mentioned my AHI was low, but that I did have UARS. This was the first I'd heard about it.

The doctor was less interested in UARS, however, and was dismissive when I pushed for consideration of bilevel.

Our compromise was a titration study to assess CPAP vs bilevel, which confirmed I needed higher PS.

Before I did that study, however, I talked with the tech and emphasized I wanted her to prioritize eliminating RERAs. My guess is she would have anyway, but the point in my experience might suggest you ask doctors, including the current one, if they will titrate out RERAs, and assess bilevel along with that.

If their answer does not inspire your confidence, you could just self-titrate.

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