New user needs help

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

New user needs help

Post by Espada » Sat Apr 11, 2020 12:45 pm

Hello

Its my first post sorry in advance for any missing info
I have been diagnosed with sleep apnea for years but couldn't afford a cpap machine finally i was able to get one that works as apap or cpap so i tried setting it myself as i had no sleep study with titration to figure out best numbers, first i started at 5 minimum and 16 for maximum pressure still felt bad or even worse than before and my AHI was 15 and higher then i found out it here that i have to try and increase the minimum which i did and 9 minimum gets me AHI 3.2 to 3.7 still can't feel rested if i increase more than 9 minimum my AHI goes higher to 5 or 7 buy even at 3.7 or 3.2 i feel unrested and tired during the day, on a side note i stopped waking up to pee thats the only improvement 😅

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Julie
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Re: New user needs help

Post by Julie » Sat Apr 11, 2020 1:45 pm

What machine/model plse and mask? Any reason you know of that your max pressure's so low?

Espada
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Re: New user needs help

Post by Espada » Sat Apr 11, 2020 2:17 pm

I could pump the maximum to 20, the device is from a company called Granzia called easypap with a full face mask that covers my nose and mouth

Espada
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Joined: Sat Apr 11, 2020 12:32 pm

Re: New user needs help

Post by Espada » Sat Apr 11, 2020 2:39 pm

Last reading on the machine
AHI: 3.7
used time: 8.8
Treatment time: 8.8
Average pressure: 9.5
Average leak volume: 0.2
Total time: 261.2
P90( means 90% of the time used that pressure ) : 11.2

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Julie
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Re: New user needs help

Post by Julie » Sat Apr 11, 2020 2:49 pm

No - 90% of the time was ANYthing below 90, up to it.

And need a lot more info on the machine (not familiar with it over here) and mask.

Espada
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Joined: Sat Apr 11, 2020 12:32 pm

Re: New user needs help

Post by Espada » Sat Apr 11, 2020 3:28 pm

The mask looks something like the one attached as for the machine tell me what info you want and i shall provide it
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Pugsy
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Re: New user needs help

Post by Pugsy » Sat Apr 11, 2020 3:46 pm

Do you wake up frequently during the night? If so approx how many times and any idea why?
How many hours of real sleep (not just laying there awake with mask and machine on) do you think you might be averaging?
Do you take any medications (even OTC) and if so, what?
Any other physical or mental health conditions that might impact how you sleep and feel?

We know your cpap therapy is working to some extent because your getting up to pee during the night (called nocturia and is a common symptom of sleep apnea) has quit.
What other symptoms are you having that you wish you didn't have? Is it just the tired/fatigued feeling or is there something else? Need to nap, foggy brain, etc?

I am not familiar with a brand called "easypap"....where are you located and how are you getting the data you report?...off the machine or some sort of software or special codes?

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
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I may have to RISE but I refuse to SHINE.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: New user needs help

Post by Espada » Sat Apr 11, 2020 4:09 pm

Pugsy wrote:
Sat Apr 11, 2020 3:46 pm
Do you wake up frequently during the night? If so approx how many times and any idea why?
How many hours of real sleep (not just laying there awake with mask and machine on) do you think you might be averaging?
Do you take any medications (even OTC) and if so, what?
Any other physical or mental health conditions that might impact how you sleep and feel?

We know your cpap therapy is working to some extent because your getting up to pee during the night (called nocturia and is a common symptom of sleep apnea) has quit.
What other symptoms are you having that you wish you didn't have? Is it just the tired/fatigued feeling or is there something else? Need to nap, foggy brain, etc?

I am not familiar with a brand called "easypap"....where are you located and how are you getting the data you report?...off the machine or some sort of software or special codes?
The machine is called easypap made by a company called Granzia and the info is from the device itself it had an " info " tab which preview the previous night sleep results, i live in Cairo Egypt, when i wake up not an hour or two goes by and i feel so heavy and nothing fixes me ( coffee or whatever ) only sleeping does for sometime and again i want to sleep and feel fatigued, sometimes i feel that i am awake with partially open mouth which causes leaks through the mask i would close my mouth and back to sleep only time i would wake up is when there is leak from the mask even a little wakes me up instantly for second i would adjust the mask or my mouth and back to sleep, for my health no i don't take any medicine and have no conditions other than sleep apnea and no test whatsoever could identify why i have obstructive sleep apnea anyways as i have no extra flesh at my nose or throat and lately my life is living hell cause of the heavy feeling i have on my brain and body and after finally getting the machine and seeing no improvement its just getting sad

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Pugsy
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Re: New user needs help

Post by Pugsy » Sat Apr 11, 2020 4:59 pm

This is a bit difficult because we can't figure out what kind of apnea events you are having.
Your brand of machine we aren't familiar with and I don't know if there is any software available that might help us out in that regard.

Your AHI in the 3.xxx numbers aren't horrible but they are still high enough to cause a negative impact on how you feel during the day.
Without knowing what kind of apnea events you are having then we can't really come up with concrete ideas to try to help you feel better.

About all we can do is make some common assumptions and try various things to see if it helps or not.

Since we are unfamiliar with your machine we can't even offer ways of changing the settings in case you wanted to try a little more pressure to see if that would bring the AHI down and maybe make you feel better. If you were using a machine that was more common that we are used to that worked with our available software we would have more information to go on.

AHI is composed of 3 categories
central apneas...and obstructive apneas....that's the A in AHI
Hyponeas is the H
and I is of course the index or hourly average

central apneas we can't do much with to reduce their numbers with this sort of machine...more pressure won't usually reduce their numbers because the airway is already open and there is simply no effort to breathe
obstructive apneas and hyponeas are usually responsive to more pressure though and when faced with this situation where we don't know what kind of event a person is having about all we can do is say "a little more pressure" and see if the AHI reduces or not and monitor how a person feels.

How long have you been using this machine?
Sometimes it just can take several weeks even several months to feel better.

Finally....sometimes some other health issue is behind the symptoms of fatigue. CPAP machines can only fix airway related issues. They can't fix other health issues. Example....I have rather crappy sleep due to pain issues. I wake up often during the night from pain.
So some days I feel like crap because I didn't sleep well from the pain....my machine does a great job dealing with the apnea issues but it doesn't help at all with the pain. Sure wish it did.
If you haven't had a complete physical work up with the normal lab tests and some extra hormone tests and vitamin tests we suggest that some extra detective work be done with exams and lab tests. Vitamin D is especially important and often overlooked.
Too little Vitamin D will manifest itself with symptoms very similar to apnea symptoms....fatigue, etc.
Vitamin D is often overlooked. Testosterone levels if the person is a guy....often overlooked. Thyroid function needs to be checked as well.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: New user needs help

Post by Espada » Sun Apr 12, 2020 4:54 am

Pugsy wrote:
Sat Apr 11, 2020 4:59 pm
This is a bit difficult because we can't figure out what kind of apnea events you are having.
Your brand of machine we aren't familiar with and I don't know if there is any software available that might help us out in that regard.

Your AHI in the 3.xxx numbers aren't horrible but they are still high enough to cause a negative impact on how you feel during the day.
Without knowing what kind of apnea events you are having then we can't really come up with concrete ideas to try to help you feel better.

About all we can do is make some common assumptions and try various things to see if it helps or not.

Since we are unfamiliar with your machine we can't even offer ways of changing the settings in case you wanted to try a little more pressure to see if that would bring the AHI down and maybe make you feel better. If you were using a machine that was more common that we are used to that worked with our available software we would have more information to go on.

AHI is composed of 3 categories
central apneas...and obstructive apneas....that's the A in AHI
Hyponeas is the H
and I is of course the index or hourly average

central apneas we can't do much with to reduce their numbers with this sort of machine...more pressure won't usually reduce their numbers because the airway is already open and there is simply no effort to breathe
obstructive apneas and hyponeas are usually responsive to more pressure though and when faced with this situation where we don't know what kind of event a person is having about all we can do is say "a little more pressure" and see if the AHI reduces or not and monitor how a person feels.

How long have you been using this machine?
Sometimes it just can take several weeks even several months to feel better.

Finally....sometimes some other health issue is behind the symptoms of fatigue. CPAP machines can only fix airway related issues. They can't fix other health issues. Example....I have rather crappy sleep due to pain issues. I wake up often during the night from pain.
So some days I feel like crap because I didn't sleep well from the pain....my machine does a great job dealing with the apnea issues but it doesn't help at all with the pain. Sure wish it did.
If you haven't had a complete physical work up with the normal lab tests and some extra hormone tests and vitamin tests we suggest that some extra detective work be done with exams and lab tests. Vitamin D is especially important and often overlooked.
Too little Vitamin D will manifest itself with symptoms very similar to apnea symptoms....fatigue, etc.
Vitamin D is often overlooked. Testosterone levels if the person is a guy....often overlooked. Thyroid function needs to be checked as well.
Thanks for trying ❤️ the machine comes with a memory card but when i tried to browse the files on my pc the format was strange and no program would open or play them " my numb brain thought it would be playable like a movie 😅 " so is there a software to open the logs saved on the memory card to give me more information about my apnea?

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Pugsy
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Location: Missouri, USA

Re: New user needs help

Post by Pugsy » Sun Apr 12, 2020 6:39 am

There very likely is some software so you can see the details but I don't know how to get it.
ResMed and Respironics both have brand name software that is just for their brands of machines.
We also have another software that is compatible with several brands of machines but I don't think it will work with your machine.
To make it work they have to have some SD card contents and figure out the file structure.
The place you got the machine from should have it though. You could ask them to run off a detailed report.

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Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: New user needs help

Post by Espada » Sun Apr 12, 2020 6:59 am

Pugsy wrote:
Sun Apr 12, 2020 6:39 am
There very likely is some software so you can see the details but I don't know how to get it.
ResMed and Respironics both have brand name software that is just for their brands of machines.
We also have another software that is compatible with several brands of machines but I don't think it will work with your machine.
To make it work they have to have some SD card contents and figure out the file structure.
The place you got the machine from should have it though. You could ask them to run off a detailed report.
What is the name of the software maybe it is compatible with my machine

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Pugsy
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Location: Missouri, USA

Re: New user needs help

Post by Pugsy » Sun Apr 12, 2020 7:03 am

OSCAR https://www.sleepfiles.com/OSCAR/
http://www.apneaboard.com/wiki/index.ph ... stallation
http://www.apneaboard.com/wiki/index.ph ... rpretation


But I doubt it is compatible. You are welcome to try.
The authors of OSCAR have had to get samples from the SD cards first and write code for each brand. I don't recall anyone ever getting the files from your brand of machine. You are the only person who I have ever heard of using the brand you use.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.

Espada
Posts: 32
Joined: Sat Apr 11, 2020 12:32 pm

Re: New user needs help

Post by Espada » Tue Apr 14, 2020 5:50 pm

Pugsy wrote:
Sun Apr 12, 2020 7:03 am
OSCAR https://www.sleepfiles.com/OSCAR/
http://www.apneaboard.com/wiki/index.ph ... stallation
http://www.apneaboard.com/wiki/index.ph ... rpretation


But I doubt it is compatible. You are welcome to try.
The authors of OSCAR have had to get samples from the SD cards first and write code for each brand. I don't recall anyone ever getting the files from your brand of machine. You are the only person who I have ever heard of using the brand you use.
Well you were absolutely right it doesn't support my device a " yuwell " brand but here are my settings i might have something off you could help me with

Max pressure: 14
Minimum pressure: 9
Initial pressure: 4
Therapy pressure: 9
Unit: cmh20
Fps level: 3
Ramp: 15 minutes
Humidity: 5

With these setting i had AHI 4 to 6 but i increased minimum to 10 and maximum to 20 which is the absolute maximum of the machine and got AHI 3.2 but still not rested enough should i increase the minimum more?

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Pugsy
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Location: Missouri, USA

Re: New user needs help

Post by Pugsy » Tue Apr 14, 2020 6:04 pm

Not really enough information but I can offer a WAG...wild ass guess...
Increase the minimum to 10 cm and the max to 20 and see what happens. It's really all I can offer.
It's not impossible for that AHI of 3 ish to be disturbing your sleep and making you feel like crap.

There's also the chance that you feel like crap from something else going on that is totally unrelated to sleep apnea and the best data in the world won't let the machine fix a problem that is unrelated to sleep apnea.

It's worth trying though...what do you have to lose?

If you start having problems like a big increase in AHI or belly pain issues (aerophagia) then we have to back up.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Additional Comments: Mask Bleep Eclipse https://bleepsleep.com/the-eclipse/
I may have to RISE but I refuse to SHINE.