Resmed epr

[Thebear]

I’d had my apnea brilliantly managed for 12 years mostly by an s8 machine, it took a couple of years to get used to it, but it changed my life, 2.5 years ago my hospital replaced it with the s9 followed by the airsense 10, for 18 months I was crippled with tiredness, and repeatedly went back saying the only thing that had changed was my machine. I had every test under the sun and was eventually prescribed modafinil, due to an accident of curiosity in a sleep study 30 months later I realised I was right and the problem was epr. I stopped taking the modafinil and worked out how to turn the epr off, and I’ve got my life back. If anyone out there has had successfully treatment and then moved on to one of these machines, this may be your problem. Within 3 days of turning it off I was dancing, laughing and really alert, happy. Plus I don’t need narcolepsy drugs. If you’re struggling turn off epr, it might not work for you, but after 880 crippling days, I now know I don’t have ME, I don’t have a crippling new condition, it’s just an advance that ruined my life.

[palerider]

I’d had my apnea brilliantly managed for 12 years mostly by an s8 machine, it took a couple of years to get used to it, but it changed my life, 2.5 years ago my hospital replaced it with the s9 followed by the airsense 10, for 18 months I was crippled with tiredness, and repeatedly went back saying the only thing that had changed was my machine. I had every test under the sun and was eventually prescribed modafinil, due to an accident of curiosity in a sleep study 30 months later I realised I was right and the problem was epr. I stopped taking the modafinil and worked out how to turn the epr off, and I’ve got my life back. If anyone out there has had successfully treatment and then moved on to one of these machines, this may be your problem. Within 3 days of turning it off I was dancing, laughing and really alert, happy. Plus I don’t need narcolepsy drugs. If you’re struggling turn off epr, it might not work for you, but after 880 crippling days, I now know I don’t have ME, I don’t have a crippling new condition, it’s just an advance that ruined my life.

Another "uh, yeah.... sure" first post out of the blue...

I'm surprised there isn't a sneaky mention of socrap.

For anybody that doesn't know better, just disregard the above post. EPR doesn't have that dramatic an effect.

[jnk...]

S8s had EPR too.

The lesson is always to use efficacy data to make sure therapy is optimized.

Needs can change over time whether one uses a different machine or the same machine and whether comfort features are used or not.

It is my opinion that ResMed EPR can at times have an effect on actual therapy effectiveness for some, either in a good way or a bad way, since it is virtually bilevel in the guise of CPAP. However I believe that following the principles for using efficacy data for trending will prevent mistakes whenever attempting to set up machines similarly when switching to a new model. BTW, it would be even more important if also switching brands, IMO, although that is not the situation described by the OP.

Just my take.

[LSAT]

I’d had my apnea brilliantly managed for 12 years mostly by an s8 machine, it took a couple of years to get used to it, but it changed my life, 2.5 years ago my hospital replaced it with the s9 followed by the airsense 10, for 18 months I was crippled with tiredness, and repeatedly went back saying the only thing that had changed was my machine. I had every test under the sun and was eventually prescribed modafinil, due to an accident of curiosity in a sleep study 30 months later I realised I was right and the problem was epr. I stopped taking the modafinil and worked out how to turn the epr off, and I’ve got my life back. If anyone out there has had successfully treatment and then moved on to one of these machines, this may be your problem. Within 3 days of turning it off I was dancing, laughing and really alert, happy. Plus I don’t need narcolepsy drugs. If you’re struggling turn off epr, it might not work for you, but after 880 crippling days, I now know I don’t have ME, I don’t have a crippling new condition, it’s just an advance that ruined my life.

I have used EPR for 8 years...My Comment...

[palerider]

I’d had my apnea brilliantly managed for 12 years mostly by an s8 machine, it took a couple of years to get used to it, but it changed my life, 2.5 years ago my hospital replaced it with the s9 followed by the airsense 10, for 18 months I was crippled with tiredness, and repeatedly went back saying the only thing that had changed was my machine. I had every test under the sun and was eventually prescribed modafinil, due to an accident of curiosity in a sleep study 30 months later I realised I was right and the problem was epr. I stopped taking the modafinil and worked out how to turn the epr off, and I’ve got my life back. If anyone out there has had successfully treatment and then moved on to one of these machines, this may be your problem. Within 3 days of turning it off I was dancing, laughing and really alert, happy. Plus I don’t need narcolepsy drugs. If you’re struggling turn off epr, it might not work for you, but after 880 crippling days, I now know I don’t have ME, I don’t have a crippling new condition, it’s just an advance that ruined my life.

I have used EPR for 8 years...My Comment...

I mean, yeah, I've helped a guy that even an EPR of 0 was too much... he'd have waxing and waining breathing even without any PS/EPR at all... And there are certainly people who 2 or 3 EPR/PS can induce a few centrals, but nobody has every credibly presented with any kind of symptoms as above that resolved by turning off EPR.

I'm pretty sure this is just another troll "yelling in the turkey pen"...

[Thebear]

Wow,now I know why I’ve never been on forums before, I put down something that happened to me, (my treatment was directed by clinicians in the uk, it’s all documented) and someone thinks it’s ‘impossible’ or ‘subfective’ no it’s not. I was crippled, I turned of the epr and was fine, and no the epr was not on my s8. These facts aren’t Subject to normal ‘Fake news’ responses, in the uk we aim for facts

[Thebear]

And I don’t know what your talking about because on my machine epr doesn’t have 0,1,2,3 or whatever other settings you’re talking about, it’s just on or off, I turned it off and within three days I felt amazing, fact not fiction. Smiley face, smiley face, smiley face. Children

[Thebear]

And why would a troll go on a cpap forum, I only posted in case anyone else had the same problem, it nearly put me out of business as I lost my evenings and weekends, but hey, maybe I’ll take up shouting at turkeys, wtf

[Thebear]

Does palerider keep turkeys? Did I miss some irony

[palerider]

And I don’t know what your talking about because on my machine epr doesn’t have 0,1,2,3 or whatever other settings you’re talking about, it’s just on or off,

That's not how it works.

There are manuals for these machines, and the function of EPR is well documented.

[palerider]

And why would a troll go on a cpap forum, I only posted in case anyone else had the same problem, it nearly put me out of business as I lost my evenings and weekends, but hey, maybe I’ll take up shouting at turkeys, wtf

You got me, but it happens *regularly*.

[Thebear]

I just want to be clear, I’m not saying anything about anyone else’s experience of epr, only mine, and there might be others like me.
In the uk, cpap settings are set by clinicians, pressure and epr.
Whereas Ramping and temp/humidity we set.
After 12 years of successful use, my old machine had run its course and the NHS supplied me with an S9, within a week I became crippled by tiredness only able to do a few hours at work before going home and sleeping, still using the machine. Over the next year and a half the clinicians tried increasing the pressure gave me oximetry tests, I’ve had every blood test under the sun 4-5 times, then they gave me a new S9, the tiredness continued, I eventually saw a neurologist and was booked in for a sleep study. After 20 months of crippling tiredness I was prescribed 400mg a day of modafinil, even this left me going to bed at 8.30. On the 5th of December during the sleep study I noticed that during the study I had 4 large snore events within 15 whilst my mask was on, this hot me thinking. I cross referenced with a friend who has mild apnoea, and was convinced it could be the epr. He used the same machine that i moved onto in February the airsense 10. Before the sleep study I had to stop taking the modafinil, this left me only able to do a couple of hours at work a day.
The Saturday after the sleep study I thought it was worth trying my theory, I’d been crippled for 2.5 years and drugged for 8 months, and the was no solution in sight. I stopped the Modafinil, accessed the clinical settings and turned the epr off. The next day I felt ok, but definitely slightly better. On the Monday I felt amazing, I danced listening to music whilst cooking at 8pm, went for a run with the dog, I was in the bath listening to music at 11pm and with a clear mind, able to think. I then read for fifteen minutes, I’ve not read unless for work for years. Over the next week, I just got better and better. So mate, if you’re smiling face has used it for 8 years successfully I’m happy for you. For me, and my apnoea is stopping breathing for between 5 seconds and a minute and a half 30 times an hour, EPR nearly killed me. And if anyone else is struggling, I’m just saying it might be worth a try. I’ve got my life back for the second time, but for me, I’ll stick to constant, consistent pressure because I lost all my quality of life for 2.5 years and it had massive financial repercussions as well.

[bombayone]

I am glad that you have found success. Ignore those who dispute your personal experience.

[D.H.]

I disabled my EPRA few days after getting the new machine. I found it annoying, as I was used to plain old CPAP for years.

As far as the symptoms that you describe go, I can't say one way or the other. However, if you're not really sleeping because of that (or for any other reason), I would except these symptoms.

[realshelby]

I just want to be clear, I’m not saying anything about anyone else’s experience of epr, only mine, and there might be others like me.

I read and took your post exactly for what it was. Your experience and how it worked out. Nothing else. I use epr and seem just fine with it.

But if anything, I have learned here that what works for me may not be very good for someone else. Mostly I am glad you feel better! If I did come up with some issues, I might try turning off epr just to see.

Cannot hurt. Unlike the replies you sometimes get on forums. From those that have nothing else to do but harass others.