I can’t believe it took me so long to find this place! I have spent several hours reading through this forum, and I must say that the level of knowledge & expertise here blows away (pun fully intended) any other SDB forum that I have seen.
What a great community. A thank you to EVERYONE for sharing all their knowledge & information!
Best wishes to all,
Glenn
WOW! This forum is a TREMENDOUS resource!
13 posts
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Welcome to the forum Glenn! If you fill out your profile it makes it easier for everyone here to help if you have a problem. If you have no problems, tell us what works for you...it might help someone else.
Brenda
Brenda
_________________
| Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
| Additional Comments: Love my papillow, Aussie heated hose and PAD-A-CHEEKS! Also use Optilife, UMFF(with PADACHEEK gasket), and Headrest masks Pressure; 10.5 |
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birdshell
- Posts: 1622
- Joined: Sun Mar 26, 2006 11:58 am
- Location: Southeast Michigan (Lower Peninsula)
Glenn, you are not only welcome, but it seems you will fit right into the Forum Folk! You have taken the plunge, and welcome to hoseheaddom.
We'll tell you the secret handshake and administer the oath after we have all figured out how to re-rig all of the equipment, use all of the software, and fix all of the healthcare providers (DME to the big companies making the stuff). Don't hold your breath, though.
We'll tell you the secret handshake and administer the oath after we have all figured out how to re-rig all of the equipment, use all of the software, and fix all of the healthcare providers (DME to the big companies making the stuff). Don't hold your breath, though.
Be kinder than necessary; everyone you meet is fighting some kind of battle.
Click => Free Mammograms
Click => Free Mammograms
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Guest
I agree, I have learned a lot here too, but just a minor counterpoint here. This is nothing against anyone here, but this, or any, site is no substitute for professional medical advice. That is not to say that the pros are always right either, but they are the people with the many years of training and the people your lawyer can hold accountable if they really screw up. I am all for people managing thier own treatment and double-checking the pros. The pros do make mistakes. But the other side of the coin is that there is some borderline "practicing medicine without a license" that goes on here. I would hate to think anyone with a serious problem decided not to call thier sleep doc because they thought the found the answer here, especially when it comes to medication. Also there are other sites that have different points of view than this one. There are even a few good people working at DMEs. I think the best course is to get all the information you can from everywhere you can get it and make good choices about what to believe. I am sure everyone here does that, but it seemed worth saying anyway.
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CollegeGirl
- Posts: 1038
- Joined: Thu Oct 20, 2005 6:49 pm
- Location: VA
In general, I prefer to deliver informed, helpful, sometimes profound, often humorous responses to posts.
Guest, yours merely warrants this:
Duh.
Seriously, though, you seem like one of those people for whom the warning label on the hairdryer that says "Do not use while bathing" was invented.
You will notice, though, my disclaimer, just in case someone actually IS as dumb as you give them credit for. I, personally, have a little more faith in the human race.
Guest, yours merely warrants this:
Duh.
Seriously, though, you seem like one of those people for whom the warning label on the hairdryer that says "Do not use while bathing" was invented.
You will notice, though, my disclaimer, just in case someone actually IS as dumb as you give them credit for. I, personally, have a little more faith in the human race.
Machine: M-Series Auto
Mask: Headrest
No humidifier
On the hose since 2005.
Mask: Headrest
No humidifier
On the hose since 2005.
Hey CollegeGirl,
That really cracked me up. I really like your response SOOOO much better than my reaction (posted in a new thread).
OOPS… Did I go too far? Take things too seriously? Can I blame it on my fractured sleep architecture & sleep deprivation?
Ten points to you for calling it as you see it.
P.S. Why doesn’t the warning label on the hairdryer warn against use while showering? (It’s much more prevalent for adults to shower rather than bathe.) Hey, would you like to comment on how our society’s “not responsible for your own (stupid) actions” mentality flies in the face of Darwin’s (now challenged ) law? That’d be fun…
That really cracked me up. I really like your response SOOOO much better than my reaction (posted in a new thread).
OOPS… Did I go too far? Take things too seriously? Can I blame it on my fractured sleep architecture & sleep deprivation?
Ten points to you for calling it as you see it.
P.S. Why doesn’t the warning label on the hairdryer warn against use while showering? (It’s much more prevalent for adults to shower rather than bathe.) Hey, would you like to comment on how our society’s “not responsible for your own (stupid) actions” mentality flies in the face of Darwin’s (now challenged ) law? That’d be fun…
_________________
| Machine: ResMed AirCurve 10 ASV Machine with Heated Humidifier |
| Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
“Ignorance” is not pejorative; it is simply a lack of information. “Stupidity” is an inability to utilize available information.
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CollegeGirl
- Posts: 1038
- Joined: Thu Oct 20, 2005 6:49 pm
- Location: VA
ignorant1,
Glad I made you laugh. I didn't intend to make light of what can be a very serious topic. Wait... who am I kidding? I did.
But I do think it's important for people to consult medical professionals. It's just that if what you're medical professional is telling you isn't helping you, it MAY in some cases be time to listen to the forum and not the professional (and I'm saying this from personal experience).
We just have a "Guest" posting just about every week to remind us of this VERY important fact, and it irritates me a bit after a while, not because I don't think it's an important thing to remember, but because I think constant reminders can wear down newbies' trust in this forum, and wear down (at least to some degree) the confidence some of our regular posters have in the value of their own experiences (and I consider that value quite high).
Take care,
CG
Glad I made you laugh. I didn't intend to make light of what can be a very serious topic. Wait... who am I kidding? I did.
But I do think it's important for people to consult medical professionals. It's just that if what you're medical professional is telling you isn't helping you, it MAY in some cases be time to listen to the forum and not the professional (and I'm saying this from personal experience).
We just have a "Guest" posting just about every week to remind us of this VERY important fact, and it irritates me a bit after a while, not because I don't think it's an important thing to remember, but because I think constant reminders can wear down newbies' trust in this forum, and wear down (at least to some degree) the confidence some of our regular posters have in the value of their own experiences (and I consider that value quite high).
Take care,
CG
Machine: M-Series Auto
Mask: Headrest
No humidifier
On the hose since 2005.
Mask: Headrest
No humidifier
On the hose since 2005.
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KimmieSue
New to CPAP World and this Forum
I agree, what I great informational forum. I just happened on this. Thank you all! I need to search it more. I'm finding many have traveled this road before me. Hope I don't get booted for venting, but I just joined the world of CPAP users this past week, and I didn't realize it would be such an ordeal! I picked up my machine, and thought, "Great, now I'll get more quality sleep and feel rested and rejuvinated." But, it hasn't exactly worked that way just yet.
Apparently, my mouth falls open when I sleep, ugh. At the second sleepover, I was awakend to add a chin strap. My first night or two at home (no chin strap yet), I noticed my mouth came open, and, that I seemed to burp air. I thought that was weird. I called the sleep clinic girl who set me up with the machine and asked her about it..got the impression it could be somewhat normal/common. I asked if I could get a full facial mask to cover my mouth as well to see if that would help. So, I picked up the new mask for a try.
Still experiencing new CPAP user woes, I started surfing the net (in the wee hours after ripping off my mask, ugh), and found that struggling is not uncommon. The more I read and learn, the more questions I have, and the more ticked off I kinda feel about getting this far in the process with so little information and feedback.
I did my 2 sleep clinics, they called and relayed that the doc said I had some obstructive apnea, scheduled me to come in, I went in and was given a Resmed S8 Elite CPAP, a nasal pillow mask, a brief overview and sent on my way. I found it odd that when I went in, there was no consultation or feedback about my clinic results. When I inquired about this, the girl very briefly showed me a couple graphed charts and pointed out what generally each of the lines stood for, but she said my results would be reviewed w/doc when I came back in at 6 weeks, after using the machine.
I'm sure each office/clinic is different, but is this a normal/reasonable flow of events? I can't imagine anyone subjecting themselves to two nights hooked up in a sleep clinic and not being curious about the results. To me, it seems it would be normal human nature to be curious and expect something more than, "Yeah, you have apnea..come get your machine."
Now I'm reading there's APAP and CPAP and wondering if CPAP is what's best for me. I still have a lot to read and learn, but I feel like backing up and finding out more about my baseline results and prognosis, which I really know nothing about, may be helpful. Maybe it just takes time and perseverance to get used to this machine.
Guess this was more of a newbie rant session than anything, but thank y'all for offering us newbies your wealth of experiences and learned knowledge. I guess it's in my hands to figure this all out, and I appreciate y'all taking the time to centralize so much info on this subject.
Apparently, my mouth falls open when I sleep, ugh. At the second sleepover, I was awakend to add a chin strap. My first night or two at home (no chin strap yet), I noticed my mouth came open, and, that I seemed to burp air. I thought that was weird. I called the sleep clinic girl who set me up with the machine and asked her about it..got the impression it could be somewhat normal/common. I asked if I could get a full facial mask to cover my mouth as well to see if that would help. So, I picked up the new mask for a try.
Still experiencing new CPAP user woes, I started surfing the net (in the wee hours after ripping off my mask, ugh), and found that struggling is not uncommon. The more I read and learn, the more questions I have, and the more ticked off I kinda feel about getting this far in the process with so little information and feedback.
I did my 2 sleep clinics, they called and relayed that the doc said I had some obstructive apnea, scheduled me to come in, I went in and was given a Resmed S8 Elite CPAP, a nasal pillow mask, a brief overview and sent on my way. I found it odd that when I went in, there was no consultation or feedback about my clinic results. When I inquired about this, the girl very briefly showed me a couple graphed charts and pointed out what generally each of the lines stood for, but she said my results would be reviewed w/doc when I came back in at 6 weeks, after using the machine.
I'm sure each office/clinic is different, but is this a normal/reasonable flow of events? I can't imagine anyone subjecting themselves to two nights hooked up in a sleep clinic and not being curious about the results. To me, it seems it would be normal human nature to be curious and expect something more than, "Yeah, you have apnea..come get your machine."
Now I'm reading there's APAP and CPAP and wondering if CPAP is what's best for me. I still have a lot to read and learn, but I feel like backing up and finding out more about my baseline results and prognosis, which I really know nothing about, may be helpful. Maybe it just takes time and perseverance to get used to this machine.
Guess this was more of a newbie rant session than anything, but thank y'all for offering us newbies your wealth of experiences and learned knowledge. I guess it's in my hands to figure this all out, and I appreciate y'all taking the time to centralize so much info on this subject.
Re: New to CPAP World and this Forum
[quote="KimmieSue"]I agree, what I great informational forum. I just happened on this. Thank you all! I need to search it more. I'm finding many have traveled this road before me. Hope I don't get booted for venting, but I just joined the world of CPAP users this past week, and I didn't realize it would be such an ordeal! I picked up my machine, and thought, "Great, now I'll get more quality sleep and feel rested and rejuvinated." But, it hasn't exactly worked that way just yet.
Apparently, my mouth falls open when I sleep, ugh. At the second sleepover, I was awakend to add a chin strap. My first night or two at home (no chin strap yet), I noticed my mouth came open, and, that I seemed to burp air. I thought that was weird. I called the sleep clinic girl who set me up with the machine and asked her about it..got the impression it could be somewhat normal/common. I asked if I could get a full facial mask to cover my mouth as well to see if that would help. So, I picked up the new mask for a try.
Still experiencing new CPAP user woes, I started surfing the net (in the wee hours after ripping off my mask, ugh), and found that struggling is not uncommon. The more I read and learn, the more questions I have, and the more ticked off I kinda feel about getting this far in the process with so little information and feedback.
I did my 2 sleep clinics, they called and relayed that the doc said I had some obstructive apnea, scheduled me to come in, I went in and was given a Resmed S8 Elite CPAP, a nasal pillow mask, a brief overview and sent on my way. I found it odd that when I went in, there was no consultation or feedback about my clinic results. When I inquired about this, the girl very briefly showed me a couple graphed charts and pointed out what generally each of the lines stood for, but she said my results would be reviewed w/doc when I came back in at 6 weeks, after using the machine.
I'm sure each office/clinic is different, but is this a normal/reasonable flow of events? I can't imagine anyone subjecting themselves to two nights hooked up in a sleep clinic and not being curious about the results. To me, it seems it would be normal human nature to be curious and expect something more than, "Yeah, you have apnea..come get your machine."
Now I'm reading there's APAP and CPAP and wondering if CPAP is what's best for me. I still have a lot to read and learn, but I feel like backing up and finding out more about my baseline results and prognosis, which I really know nothing about, may be helpful. Maybe it just takes time and perseverance to get used to this machine.
Guess this was more of a newbie rant session than anything, but thank y'all for offering us newbies your wealth of experiences and learned knowledge. I guess it's in my hands to figure this all out, and I appreciate y'all taking the time to centralize so much info on this subject.
Apparently, my mouth falls open when I sleep, ugh. At the second sleepover, I was awakend to add a chin strap. My first night or two at home (no chin strap yet), I noticed my mouth came open, and, that I seemed to burp air. I thought that was weird. I called the sleep clinic girl who set me up with the machine and asked her about it..got the impression it could be somewhat normal/common. I asked if I could get a full facial mask to cover my mouth as well to see if that would help. So, I picked up the new mask for a try.
Still experiencing new CPAP user woes, I started surfing the net (in the wee hours after ripping off my mask, ugh), and found that struggling is not uncommon. The more I read and learn, the more questions I have, and the more ticked off I kinda feel about getting this far in the process with so little information and feedback.
I did my 2 sleep clinics, they called and relayed that the doc said I had some obstructive apnea, scheduled me to come in, I went in and was given a Resmed S8 Elite CPAP, a nasal pillow mask, a brief overview and sent on my way. I found it odd that when I went in, there was no consultation or feedback about my clinic results. When I inquired about this, the girl very briefly showed me a couple graphed charts and pointed out what generally each of the lines stood for, but she said my results would be reviewed w/doc when I came back in at 6 weeks, after using the machine.
I'm sure each office/clinic is different, but is this a normal/reasonable flow of events? I can't imagine anyone subjecting themselves to two nights hooked up in a sleep clinic and not being curious about the results. To me, it seems it would be normal human nature to be curious and expect something more than, "Yeah, you have apnea..come get your machine."
Now I'm reading there's APAP and CPAP and wondering if CPAP is what's best for me. I still have a lot to read and learn, but I feel like backing up and finding out more about my baseline results and prognosis, which I really know nothing about, may be helpful. Maybe it just takes time and perseverance to get used to this machine.
Guess this was more of a newbie rant session than anything, but thank y'all for offering us newbies your wealth of experiences and learned knowledge. I guess it's in my hands to figure this all out, and I appreciate y'all taking the time to centralize so much info on this subject.
The challenge of cpap therapy is not always money grabbing & grasping docs intent on hiding the truth from you - & dmes with similar intent (they are more in some peoples minds than in reality) - the plain facts are that this cpap is a new exploding field where there is a lot of inexperience & unfortunately that means we on cpap have to do a lot to take control of our own therapy.
It is easy to kick the incompetence of others. But if we take control of our own therapy & succeed then we are doing ourselves a favour.
The other fact here is that it is not all that hard, after doing your own research, to be able to find yourself a bit ahead of the game in some areas.
Whatever you seek to achieve, make sure you are doing it for your own health & if you can, share any benefits with others.
If there is any extra advice I can offer it is do not get hung up about kicking those in the respiratory profession who you believe you have passed by as you learn. Just pass on by, with dignity & pride.
This therapy is not about taking revenge on professionals you believed have let you down but improving your health and well being.
Cheers
DSM
It is easy to kick the incompetence of others. But if we take control of our own therapy & succeed then we are doing ourselves a favour.
The other fact here is that it is not all that hard, after doing your own research, to be able to find yourself a bit ahead of the game in some areas.
Whatever you seek to achieve, make sure you are doing it for your own health & if you can, share any benefits with others.
If there is any extra advice I can offer it is do not get hung up about kicking those in the respiratory profession who you believe you have passed by as you learn. Just pass on by, with dignity & pride.
This therapy is not about taking revenge on professionals you believed have let you down but improving your health and well being.
Cheers
DSM
xPAP and Quattro std mask (plus a pad-a-cheek anti-leak strap)
13 posts
• Page 1 of 1