Love When Things Fall Into Place - Not OT
Love When Things Fall Into Place - Not OT
Had one of those moments today. Recently returned from a trip across the country. It was not in the plans or the budget, and beyond what I thought I was physically capable of pulling off, but my stepson had asked me to come while he is still able to communicate. He said he wanted to look in my face and tell me he loves me. He has advanced ALS and the doctors are beginning to talk Hospice. My heart has been heavy, as I knew when I left him I will likely not see him again. I've seen firsthand their struggle as she works full time as a CNA then comes home and takes care of him. He has one of those ventilator type cpaps that he uses 24/7, and I noticed how uncomfortable his nasal mask looked - so tightly fitted with plastic straps indenting his face and causing sweating under it. His wife mentioned she wished they could get a mask like she saw in a picture. The picture looked like a ResMed Swift. I was scheming. planning to get it for him as soon as I could, though my own mask of a few years had been glued and taped beyond efficient function. Got a message from a friend who was spring cleaning, and wanted to get rid of her husband's old machine, a ResMed S8 Compact. Told her if I couldn't use it I'd give it to someone who could. You know where this is going... when I picked up the machine it was in a suitcase. Found that a bit odd, till I opened it and out spilled several new and unopened hoses and 4 new Swift masks. Already got a package ready to be shipped tomorrow. Sometimes it's those little things that are a ray of sunshine breaking through the dark clouds.
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Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions |
My SleepDancing Video link https://www.youtube.com/watch?v=jE7WA_5c73c
Re: Love When Things Fall Into Place - Not OT
Sorry to hear what you are going though Kathy. We had a very good friend that died from ALS a couple years ago. In her case it came on very fast.
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Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
Additional Comments: Back up is a new AS10. |
- Sheriff Buford
- Posts: 4110
- Joined: Mon Aug 09, 2010 8:01 am
- Location: Kingwood, Texas
Re: Love When Things Fall Into Place - Not OT
The other night, our washing machine broke down. Funds are short, so me and the wife prayed a quick prayer for a solution. She was on the phone with the department store where we bought it from, to get a repair man to fix it. The department store man wanted the invoice number off the receipt. I had to dig out the receipt from the back of the closet. I realized I had purchase a repair warranty and it expires next December (not last month! ). I NEVER buy the warranties! I don't know what I was thinking when I bought that warranty! I feel that I (the customer) shouldn't have to pay a company to warranty the product THEY make.
The power of prayer!
I'm sure we disappoint God when he gives us blessings we ignore.
Sheriff
The power of prayer!
I'm sure we disappoint God when he gives us blessings we ignore.
Sheriff
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Machine: AirSense 11 Autoset |
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Re: Love When Things Fall Into Place - Not OT
And a special blessing on you for handling this sad event.
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Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: Eson™ 2 Nasal CPAP Mask with Headgear |
All posts reflect my own opinion based on my experience and reading.
Your mileage may vary
Past performance is no guarantee of future results
Consult with your own physician as people very
Your mileage may vary
Past performance is no guarantee of future results
Consult with your own physician as people very
Re: Love When Things Fall Into Place - Not OT
i know that Skype or the Facebook video messaging are not the same as holding a hand and feeling the warmth. But they do help. If you haven't looked into them already please do!
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- Posts: 290
- Joined: Mon Dec 12, 2016 11:35 pm
Re: Love When Things Fall Into Place - Not OT
+1TASmart wrote:And a special blessing on you for handling this sad event.
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Machine: DreamStation Auto CPAP Machine |
Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack |
Humidifier: DreamStation Heated Humidifier |
O soft embalmer of the still midnight,
Shutting, with careful fingers and benign,
Our gloom-pleas'd eyes, embower'd from the light,
Enshaded in forgetfulness divine
-- John Keats
Shutting, with careful fingers and benign,
Our gloom-pleas'd eyes, embower'd from the light,
Enshaded in forgetfulness divine
-- John Keats
Re: Love When Things Fall Into Place - Not OT
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A sad story but in a way, very uplifting. It's all about the little miracles. Hugs.
A sad story but in a way, very uplifting. It's all about the little miracles. Hugs.
Resmed AirSense 10 Autoset for her w/humid air/heated Humidifier
Bleep/P10
Bleep/P10