Machine losing pressure and tongue apnea questions.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Hello, World?
Posts: 25
Joined: Sun Sep 11, 2016 10:47 pm

Machine losing pressure and tongue apnea questions.

Post by Hello, World? » Sat Nov 26, 2016 10:57 pm

Hello, I have a set of questions as I'm entering my 4th month on CPAP.

Here's a link to the machine I'm using. I don't have a humidifier for it, but don't really need one: https://www.amazon.com/s?ie=UTF8&page=1 ... es%20tango
My face mask listed in my sig is up to date.

Unfortunately, my machine does not read data, so I'm just going to tell you my experience.

I have moderate sleep apnea, and the machine has helped a lot. I would finally wake up feeling rested and would actually have dreams for once.

However, in the last week or so, it hasn't been the same. I'm not sure what's going on, but my normal pressure setting of 10 doesn't feel at all like it's high enough to prevent my apneas. More than this, I find myself actually waking up from my apneas, always JUST before I feel like I'm about to start sleeping really deeply/dreaming, so something's definitely going on. I tried increasing the pressure and kept increasing it until finally 15 seems to work the best. It feels pretty high, but not as high as it once did when I tried a pressure of 15 when I first got it (I felt like I couldn't even breath out back then), so I really think it is losing pressure, and it gets worse over night. I realize that most people have said that you get used to the pressure, so it just feels like it, but I've used every objective way that I can to figure out if it is, and I really think that something's up with the motor. I've also noticed that it now seems like the pressure is a lot lower when I turn on my side, which hadn't been a problem before. As for troubleshooting, I haven't changed the filter, but only because the manual recommends that it be changed only every 6 months, and it looks fine. I've made sure that there aren't any leaks in the hose or mask, and the mask is very secure against my face.

Also, I didn't buy this new, I got it through a program at the sleep center for low income people to get older cpap machines that people turn in (though when I got it, it only had 7 hours of use and worked pretty well), so I can't just send it in for repairs. I'm going to ask the people I got it from if they can do anything on Monday, but any other options to know about would be helpful.

I also have a sort of question about whether there are different types of obstructive apneas, because when I have my cpap at a good pressure, I feel like the back of my throat is secure and won't collapse, but my tongue is more of the problem. I have a smallish mouth but a sort of normal sized tongue so it feels a little crowded back there normally, and when I go to sleep it often falls back and wakes me up (even when I sleep on my side). It doesn't feel like the pressure is doing too much to prevent this, and I think it's the main type of apnea that I have. Does anyone have experience dealing with this?

_________________
Mask
Additional Comments: Machine: S9 AutoSet

User avatar
kteague
Posts: 7781
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: Machine losing pressure and tongue apnea questions.

Post by kteague » Sun Nov 27, 2016 1:33 am

What is your usual sleep position? Some people find their pressure accommodates even back sleeping. Others have more events on their back even while using CPAP. If you feel your tongue is crowding the back of your mouth, you may find stomach sleeping is your best option. Let gravity work for you rather than against you. It took me a long time (months/years?) but at some point I was able to train my tongue to stay in a sealed position to the front of the roof of my mouth so I can now back sleep if I want with no increase in events on my data.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

User avatar
Hello, World?
Posts: 25
Joined: Sun Sep 11, 2016 10:47 pm

Re: Machine losing pressure and tongue apnea questions.

Post by Hello, World? » Sun Nov 27, 2016 12:09 pm

kteague wrote:What is your usual sleep position? Some people find their pressure accommodates even back sleeping. Others have more events on their back even while using CPAP. If you feel your tongue is crowding the back of your mouth, you may find stomach sleeping is your best option. Let gravity work for you rather than against you. It took me a long time (months/years?) but at some point I was able to train my tongue to stay in a sealed position to the front of the roof of my mouth so I can now back sleep if I want with no increase in events on my data.
I usually sleep on my side and the events are still pretty bad. I've tried sleeping on my stomach, but I really can't do it, especially not with the mask in the way the entire time. Is it normal of the cpap to not prevent tongue apneas? Wouldn't that be something they test for to make sure that cpap will work?

https://www.verywell.com/tongue-stabili ... ea-3015243
If that's the case, maybe a mouth piece like the above would be a better option for me.

I'm still just really confused about what's going on. As I mentioned, I did feel much better on cpap for the first few months. It's only been this past week or so that it's been acting up, so that I've been really bothered by my tongue moving over my airway and waking me up over and over. I'm going to start doing tongue exercises, but considering how long that could take, I really need a more immediate, definite solution.

_________________
Mask
Additional Comments: Machine: S9 AutoSet

User avatar
Goofproof
Posts: 16087
Joined: Mon Dec 05, 2005 3:16 pm
Location: Central Indiana, USA

Re: Machine losing pressure and tongue apnea questions.

Post by Goofproof » Sun Nov 27, 2016 11:26 pm

A XPAP that doesn't collect data is like buying a car with no steering wheel, not much fun on a sunday drive, but
it will at least get you somewhere it's just the car that decides where. It's Normal to feel like your XPAP isn't putting out the pressure you think it used to, your body gets used to breathing air under more pressure. Without data, you are just guessing. Jim
Use data to optimize your xPAP treatment!

"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire

User avatar
Uncle_Bob
Posts: 2777
Joined: Tue Feb 24, 2009 12:10 pm
Location: Arizona

Re: Machine losing pressure and tongue apnea questions.

Post by Uncle_Bob » Sun Nov 27, 2016 11:49 pm

Goofproof wrote:is like buying a car with no steering wheel
Car with no steering wheel and no data you say

http://www.digitaltrends.com/cars/googl ... river-job/

User avatar
kteague
Posts: 7781
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: Machine losing pressure and tongue apnea questions.

Post by kteague » Sat Dec 10, 2016 4:18 am

Hello, World? wrote: I've tried sleeping on my stomach, but I really can't do it, especially not with the mask in the way the entire time
Not sure if I can describe this well enough but I'll try. When side sleeping, try lying at a slight angle across the bed and pillow positioned to make your jaw come forward due to gravity. You don't want to accomplish this by tucking the chin as that could further compromise the airway. That's why it's best to keep the spine/neck aligned. Be observant of what position your jaw is in - you want it to face forward down - not just down in a way that will cause it to be more prone to falling open. Play around with sleep position during the day. Nothing less conducive to sleep than struggling at bedtime and thinking too much.

Position: Normal sleep position is 12:30 on the clock. Switch to 10:20 or 11:25.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions