Cpap Help

[Negev]

I need help with a big issue i have with cpap. I'm hoping there is someone out there can can give me some advice.
I had an accident 2 years ago and since then they cut my neck open and gave me a tracheotomy i now have ended up with
sleep apnea after the hole has been closed. I have a constant feeling of scar tissue in the back of my throat rubbing all the time
i have already been to a surgeon and he has told me i am a good candidate to get it fixed. My insurance company wants me to go threw
this machine first. They keep throwing around compliance this and compliance that. Im just trying to find an answer as to how to fail this dam
machine so i can get the surgery. There is one other snag i have been trying to tell the doctors but no one wants to comprehend it. I cant were a mask
and sleep ask the Military. I failed that part of chemical warfare training couldn't sleep a wink and i didn't sleep at all during the titration test. Any help would be greatly appreciated.

[Wulfman...]

I need help with a big issue i have with cpap. I'm hoping there is someone out there can can give me some advice.
I had an accident 2 years ago and since then they cut my neck open and gave me a tracheotomy i now have ended up with
sleep apnea after the hole has been closed. I have a constant feeling of scar tissue in the back of my throat rubbing all the time
i have already been to a surgeon and he has told me i am a good candidate to get it fixed. My insurance company wants me to go threw this machine first. They keep throwing around compliance this and compliance that. Im just trying to find an answer as to how to fail this dam machine so i can get the surgery. There is one other snag i have been trying to tell the doctors but no one wants to comprehend it. I cant were a mask and sleep ask the Military. I failed that part of chemical warfare training couldn't sleep a wink and i didn't sleep at all during the titration test. Any help would be greatly appreciated.

Sounds like you're bound and determined to fail anything and everything without REALLY trying first.
You were in the military?

My suggestion is to register on the forum and list all of your equipment and settings.
THEN we can try to help you become compliant with this therapy.


Den

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[herefishy]

If you go through trying cpap and fail compliance, you get the surgery, right? So just do it and fail - shouldn't be a problem, right? Or are you trying to find out how to sleep without the equipment and make it look like you had it on?

[ChicagoGranny]

I have a constant feeling of scar tissue in the back of my throat rubbing all the time
i have already been to a surgeon and he has told me i am a good candidate to get it fixed.

Does your doctor think your sleep apnea is the result of the accident and/or the scar tissue?

What kind of surgery is the doc talking about? Does he expect it to cure your sleep apnea?

If you give us incomplete information, you could end up with some shitty advice.

I cant were a mask
and sleep ask the Military. I failed that part of chemical warfare training couldn't sleep a wink

That kind of problem is an indication that you had sleep apnea before you had the accident. Or you did not want to be trained to deal with chemical warfare?

[Sonnyboy]

How long has it been since the tracheostomy hole was closed. Maybe after more healing the scar tissue feeling will resolve?

What is the name of the surgery the doctor feels you are a good candidate for?
Some times surgery can make a condition worst making Cpap more difficult following the surgery. You want to do your research and get a second opinion before you jump into surgery.

Perhaps you can consider giving Cpap a fair try while you are figuring the rest of this out?

Learning to tolerate masks was difficult for many of us and there are many experts on this board who can help you with this.

Your apnea needs to be treated. Achieving compliance is important if you want insurance to cover you cpap machine and equipment. Purposefully failing is easy but it is not a solution to your problem.

I agree with Den: Register on the forum and list all of your equipment and settings.
THEN we can try to help you become compliant with this therapy.

[Wulfman...]

And, if you're still lurking.........
This is a CPAP HELP forum (as your thread Subject is titled).
We try to HELP people be "successful" with their therapy.......not try to help them FAIL.


Den

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[ChicagoGranny]

not try to help them FAIL

But we are flexible. Everyone has their price.

[ChicagoGranny]

Den, What kind of fish is that? How much does it weigh? How old were you at the time?

You look like a hunk. Who knew?

[Wulfman...]

Den, What kind of fish is that? How much does it weigh? How old were you at the time?

You look like a hunk. Who knew?

That picture was taken in the Summer (June or July) of '69 at Eagle Lake in Ontario. I was about 21. My father took my brother and I on about a 3-day fishing trip up there (not counting the 2-days of driving).
It was a 20+ lb. Northern Pike. The interesting thing about this catch was that it had already swallowed another Northern that was about 1 1/2 - 2 lb. and went after my large (6" or longer) Creek Chub jointed Pikie minnow that I was trolling with. In other words, that was one hungry fish!!!
We also caught some other Northerns and quite a few Walleyes on the trip.

Another interesting side note is that if you've ever watched the "River Monsters" show on TV, one of his episodes in the last couple of years took place on that lake.......he was after a large Muskellunge/Muskie and caught a very large one on light tackle (lighter than he had prepared for the day he caught it). In one scene, they were traveling up a fairly narrow channel going from one area of the lake to another......and that channel looked very much like the one where I caught that Northern.

Anyway, it was a memorable trip and that picture is a favorite of mine.

Oh, I'm STILL a "hunk" ........just a little larger one than in that picture.


Den

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[Boy o Boy]

Well i guess i ruffled a few feathers around here. Something im good at. LOL but any way to answer some questions its been 2 years since i had my accident and it still bugs me to this date. My surgeon says im a good candidate for the surgery they are going to take out my tonsils and my vulva that little thing that sticks down in your throat and i think they said something about adenoids but not to sure on that one the procedure was an acronym uppp something like that. I haven't gotten the equipment yet but im supposed to get it next week. The reasons i am asking these questions are because i was told in order to be compliant i have to have this thing on like 4 hours a night for 90 days minimum. Now how am i supposed to get any sleep with this thing on my head. Like i said i cant sleep with things around my face and head its not going to happen call it claustrophobia or whatever but that's just the way it is with me and for those people out there that are judging me when you don't even know me shame on you. I am just trying to find out if there are people out there that have failed this machine and what they did to fail it so i will ensure i can get this surgery. That's it case closed.

[OkyDoky]

If you do a search at the top of the page you will find a lot of discussion on UPPP. Many have had it and still require CPAP. It is a difficult surgery to recover from.
My suggestion would be to find a mask that you can wear and give CPAP a real try. My P10 mask is very minimal. Wear it while watching TV to get used to it.
You don't really need anyone to tell you how to fail, that's easy.

[Wulfman...]

Well i guess i ruffled a few feathers around here. Something im good at. LOL but any way to answer some questions its been 2 years since i had my accident and it still bugs me to this date. My surgeon says im a good candidate for the surgery they are going to take out my tonsils and my vulva that little thing that sticks down in your throat and i think they said something about adenoids but not to sure on that one the procedure was an acronym uppp something like that. I haven't gotten the equipment yet but im supposed to get it next week. The reasons i am asking these questions are because i was told in order to be compliant i have to have this thing on like 4 hours a night for 90 days minimum. Now how am i supposed to get any sleep with this thing on my head. Like i said i cant sleep with things around my face and head its not going to happen call it claustrophobia or whatever but that's just the way it is with me and for those people out there that are judging me when you don't even know me shame on you. I am just trying to find out if there are people out there that have failed this machine and what they did to fail it so i will ensure i can get this surgery. That's it case closed.

Don't let them do the full-blown UPPP on you. The vast majority of folks who had it done regretted it......big time. And, it's not a "cure" and may only be helpful for only about 6 months.......then they've had to go back on CPAP or Bi-Level therapy and sometimes at much higher pressures. SO, if you THINK you're claustrophobic, you'd better examine your options thoroughly because they're relatively few and most still involve CPAP/Bi-Level therapy.

You're right, we don't know you, but we've seen many, many like you come to this "CPAP Help" forum with similar requests and attitudes......"I CAN'T do this!", or "I CAN'T do that!" or "It ain't gonna happen!"......or "I'm claustrophobic!"......blah, blah, blah.......

Good luck!!!


Den

.

[popcpoo]

I had my tonsils and adenoids removed as a child, and I had soft palate surgery in 1996 0r 1997. At that time, I had a badly deviated septum corrected, cleaned out the sinus cavities, removed the uvula and reshaped much of the soft palate. This helped for a few years at the most. I am now on bipap therapy. As others have said, you may only be putting off cpap/bipap therapy.

[chunkyfrog]

They might want to remove your uvula, but they are not going to find a vulva--you are a guy, right?
Too many surgeons have no idea what is causing a person's apnea; so they will cut out anything they see.
--and they don't care squat how you will manage without.
Cpap is the gold standard for a very good reason--it WORKS!

[SleepyCarey]

they are going to take out my tonsils and my vulva

chunkyfroggy beat me to the punch... if you're indeed male they're gonna have a tough time finding your vulva! First I've heard of vulva removal as a therapy option...

Thanks for the unintended laugh!