If it's not CSB/R, is it still worth bringing up to Neuro?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
WildMtnHoney
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If it's not CSB/R, is it still worth bringing up to Neuro?

Post by WildMtnHoney » Sat Apr 04, 2015 8:56 am

Image

I have been tending toward more CA then OA since starting therapy, but most of them tend to look post-arousal, EXCEPT for the ones that follow breathing patterns like the one above. I have a history of complex migraines - the kind that look like strokes or TIAs - and my last MRI showed bright spots that may be old strokes (it would be "normal" if I were 70+, but I'm 38) so I'm a bit concerned, and wondering if it's worth it to take the sleepyhead data to my Neuro when I see her in May? She isn't the one who ordered the sleep study, but she was interested in the outcome first when they said NOS (her sister just happened to be the one to read it, too, small world). When they changed it to OSA she became less concerned. Honestly, I'll probably take the data to her anyway, but should I print out areas like that one, that have me really concerned, or will she poo-poo because they aren't really CS?

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Julie
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Re: If it's not CSB/R, is it still worth bringing up to Neuro?

Post by Julie » Sat Apr 04, 2015 9:06 am

But why not do it? At most it will cost you a little toner unless you can show them to her on your phone... why even question not doing it? If she's not interested, she'll tell you. And we don't know her of course.

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BlackSpinner
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Re: If it's not CSB/R, is it still worth bringing up to Neuro?

Post by BlackSpinner » Sat Apr 04, 2015 9:10 am

Don't censor what you tell your doctor, minor symptoms may be a tell tale sign.


Like the fact that the cat is cuddling up to my mother suddenly is a tell tale sign of her approaching death...... You never know what is meaningful.

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WildMtnHoney
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Re: If it's not CSB/R, is it still worth bringing up to Neuro?

Post by WildMtnHoney » Sat Apr 04, 2015 9:10 am

I don't know, honestly.

I guess because she's not my "sleep doc" (I don't have one, my GP is handling all of this) and I don't know who/how/what to do with what my concerns/questions are, because with everything I have going on I sometimes worry that GP thinks I'm Munchhausen anyway

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LSAT
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Re: If it's not CSB/R, is it still worth bringing up to Neuro?

Post by LSAT » Sat Apr 04, 2015 10:48 am

So she's not your sleep doctor...so what. She is treating you and you should not hesitate to inform her of any concern you have. I don't have a sleep doctor, but my primary care doctor, my pulmonologist and my cardiologist are aware of my SA and they ask about it at every visit. I recently needed to go to a TMJ (Jaw) doctor and he wanted to know about my SA.

WildMtnHoney
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Re: If it's not CSB/R, is it still worth bringing up to Neuro?

Post by WildMtnHoney » Sat Apr 04, 2015 11:29 am

Thinking about this some more - I'm pretty sure I've narrowed down my issue.

I'm afraid of coming off "loony" - Munchhausen, hypochondriac, health anxiety, or some flavor of any or all of the three.

I'm young, and yet I feel that I've been falling apart the past 5ish years. I've had too many ED trips, too many tests, too many specialists, etc. There are some conditions they have diagnosed, but some symptoms don't have a firm diagnosis yet, and that leaves me feeling like I'm a fraud, somehow. I get the feeling, when I show up at the ED, that the next time I come in *my* picture is going to among the "frequent flyers" board who don't get pain meds offered (hasn't happened yet, but still scares me when I'm in there more than twice in 3 months!).

I realize this is mostly OT, but I just wanted to say that I think I know what causing my issue.

I have mental health issues, as well, so I see a psycCNS regularly, and I'll bring this up with her next visit, and go from there.

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Nyre
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Re: If it's not CSB/R, is it still worth bringing up to Neuro?

Post by Nyre » Sat Apr 04, 2015 12:34 pm

With that AHI of 2.88 I don't think there is anything to worry about. but it wouldn't hurt to show any doctor you see so they know what you are experiencing .