Julie wrote:There is another side (or few). There may be the image thing of an older, fatter, snoring-with-mouth-open guy who people don't want to relate to. There's the mass of people who don't want to think about dying in their sleep or even on the road - other ways are more interesting, and being a sleepy dud (and not dude) is not sexy or cute, or courageous... raising money to make people aware of the seriousness is going to be hard. And I think lots of people don't even want to acknowledge that OSA exists... kind of like chronic fatigue, or fibro, etc. etc.
All that you say is true, and all that you say was also true of AIDS. It was dismissed as a disease which affected "those people", junkies and perverts. I don't think you necessarily have to turn the sufferers of OSA into cuddly, furry, big-eyed cuties. You can also show how OSA victimizes healthy children. How many innocent children have been killed by weary driving? How many children have been orphaned by the death of their parents from OSA related heart attack, stroke or cancer? The thing I don't get is why no one else seems appalled by overwhelming numbers which the CDC and NIH claim are true? 20% of the US? How long can the country hold to these absurd preconceptions in the face of those kind of numbers?chunkyfrog wrote:From the time of Charles Dickens, sleep apnea has been publicly linked to obesity, which has been ASSumed to be due to poor self-control, a CHARACTER FLAW. Wrong as this may be, the connection remains. It is easy to garner sympathy for sick children, dying mothers, and crippled soldiers, but people who cannot sleep and breathe at the same time, regardless of their (our) pain, are not receiving any sympathy, and support follows sympathy. Too many wish the world were simple, and in their infinite myopia, behave accordingly.
Diabetes, heart disease, alcoholism, are all "lifestyle" diseases. Does that mean they shouldn't be treated properly, or that it's impossible to raise money to combat them? Sure, there are a lot of people who don't think OSA exists. Are they right? I only found out I have OSA because I was admitted to the hospital with extreme hypertension. I was hooked up to a heart monitor and the doctor came to me the next morning and told me I have severe OSA. I never told them I had a sleep disorder. They determined it by objective evidence. We need to fight the ignorance which denies the existence of this condition, not give in to it.