I havent been posting for I thought i finally had the right settings but i am discovering that the SLIGHTEST change in anything throws me right off.
The first 2 nights I finally got through the night without any nose blocking were perfect but I had chosen to sleep in the living room those 2 nights.
I moved back to my bedroom and now I sleep one night perfectly and the next night I don't and its back and forth.
If I have the A/C on too high one night, i rip my mask off after 2 hours of sleep, unknowingly and then sleep another 6 hours or so without it afterwards not aware i have taken it off.
I've read to put tape on my mask but if i can't breathe because my nose is stuffy I don't want to be struggling in my sleep to do so, hence, I am not yet ready to try tape.
I am stubborn and want to be able to master this without having to use a ton of gels, rinses, tapes, etc and just wish to GET IT.
So last night my room was very cold, although very comfy under my duvet but its no good for the CPAP it seems.
I think i have to sleep without the A/C on at all which is great for the CPAP i think but not my preferred way to sleep LOL ( i like the cold )
Im struggling to get up to 13 which is supposed to be my proper pressure ( when I had the ESCAPE the DME set it to 10 and I didn't know so thats what i was using but I tried setting it up to 12 last night and it seemed to high
So when I read your message of trying to do it from 8-20 I can't imagine how that could work BUT i reached a point about 4 weeks ago where I honestly no longer knew what to do as nothing i was trying was working. Seeing as I finally got 2 nights in there in a row when i slept in the living room and slept perfectly both nights.....i am trying to replicate that and if i can, then I will hopefully FINALLY understand what works best for me at least in the way of comfort so I slew with my mask on all night and don't get stuffed up.
But my AHI is very high. I have severe sleep apnea so I DO have to get this damn thing under control and am admittedly very annoyed when I see how some people seem to get it right in a few nights and here i am 3 months in and still struggling daily with it---but no wish to give it up or abandon it......
( I also have vertigo when sleeping on my side which I always did until diagnosed but then Istarted sleeping on my back and then was diagnosed with S. apnea so but right now thats all I can do)
So I am going to try it my way for another night or two and if that does not work, I will give up again and then try your method........8 - 20
Plus it's likely your 'condensation' is caused by a too-high (or any) humidifier setting - try turning it down or even off, as it's only for your convenience, and not therapy.
Thats what I have done. I have turned off both the temperature and its actually a bit cold going into my nose and turned off the humidity and I "think" that is what works. Tonight I have to make sure that the AC is turned off as well and if i make it through the night without clogging up then i KNOW thats the right setting for this time of year....I hope to know better tomorrow and the next day..
I don't know how ANYONE could get through this without a forum of advice to turn to for now in it, I am shocked at the lack of support when given these machines.......by everyone involved.
Thank you
SleepWrangler I have asked this question a few times elsewhere and never got the right answer. It definitely helps to be in a Sleep Apnea forum that has other Canadians in it
One last question though IF you know the answer....Any idea WHAT determines a doctor prescribing the AUTO SET to you rather than the ESCAPE?
I was told by an American that if you have Severe Sleep Apnea as I do and ones pressure is written at above 10 on the prescription this will get you one?
I have since purchased my own here in Toronto, on Kijiji May 28. I got a brand new one in the case with a heated hose, and a brand new Swift FX Nasal Wisp mask for $650 and I sold my Escape machine to someone else for $200 ( you can't get any more for the Escape even though it was brand new LOL )
So when it came time to get my machine he refused and would only give me the ESCAPE. I mentioned that i had heard above 10 I was to get an Auto Set and i have no idea what he said to me about that but on my prescription he wrote in big letters ESCAPE but if I wanted an AUTO SET I WAS to pay 100% for it myself....LOL
I am curious for the next time i need a machine in 5 years or so time what one must do to get the AutoSet.....what determines an AutoSet for one person and an Escape for the others?
It's not that there isn't 'sales tax' if you buy from e.g. Cpap.com in the US, but that you don't pay any duty because it's a 'medical device'.
As stated I got mine 6 weeks ago for $650 everything and the mask and the fellow selling them now, works in a hospital and is now buying shipments of them with plenty to sell if anyone else here needs one. I can always dig up his phone number if needed. I picked it up at his condo at Square One in Mississauga.
For a third study, one would need to convince the physician there are residual problems to be addressed, or go back to your GP and convince them to make a new referral.
I had a terrible doctor and a terrible DME and the doctor even told me that the first sleep test was a failed test and I gather that the second test was questionable.
I just hope i am not struggling unnecessarily due to a failed test which has my numbers all wrong.
The second test was the one they gauged it from but they only had FF masks and I can't use those so i had nothing but leaks all night and every 45 mins the person had to come in the room to change masks. She must have put me on 15 different ones that night to test out and none of then worked. She was taping them down so tight I had a splitting headache and was unable to sleep and finally came in and told me that I HAD to fall asleep at least another 45 min to pass the test as they did not have enough time.........but who the hell could sleep with her coming in all the time? Then she put me on my side for that 45 but I don't think i fell asleep but just lay there and then finally i got so angry I just stood up and said I had had enough and damn it if they didn't get enough so i really can't see how they could have got the correct numbers from that night.
I will wait until a year is up and I am going to push for another one at a far better place that i research ahead of time, next time.
They were an absolute disaster with both my husband and myself.
SORRY FOR THE LONG post of answers but thank you very much for clearing up info I havent been able to find out about until your answers.
Off to bed soon and really hoping i will sleep through the night tonight....just waiting to get 2 more consecutive nights that work, without any changes so I can then start going up one pressure point number at a time and t hen if that works once i get to 13, then slowly switching off the CPAP and going to AutoSet and finally getting somewhere