Not getting rest, exhausted and cant find out the problem

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Feramoo
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Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 8:28 pm

I brought this up a few weeks ago and got some good advice but nothing is working..I have upped the pressure and even lowered..and yet I still am exhausted and tired and fatigued throughout the day. My machine has no holes in the tube or mask..I never wake up at all during the night. I can get the data needed to show..if needed. I am curious as to what could remotely be the problem.
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Pugsy
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Re: Not getting rest, exhausted and cant find out the problem

Post by Pugsy » Mon Mar 03, 2014 8:36 pm

Feramoo wrote: I can get the data needed to show..if needed.
Please do post a typical detailed report from whatever software you are using to get data. We have zero way of offering anything without a starting point.

Please add your equipment to your profile so we don't have to keep asking.

Without more specific information we can't offer much at all beyond generic stuff.

Hours of sleep? How many are you getting on average?
Take any meds? If so, what, dose and when?

Don't know how to post image of your reports? We talked about it here in this thread.
viewtopic.php?f=1&t=81072&p=737779#p737779
I attempted to go back to your other posts and read them to see if anything you mentioned in the past might help offer some more information but the forum search is down.

There's more to feeling well rested and full of energy besides slapping on a mask and getting a nice low AHI.
But maybe something will show up in your reports that points to needing improvement that might help you.

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Feramoo
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Re: Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 8:48 pm

Alright pulling the information up now..ill post a pic next but right away I wanna say it is showing last night that I slept almost 10 hours..I never woke up once and I am very tired right now..as for machine type I cannot remember..I will try going back and finding the forum.
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Feramoo
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Re: Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 8:55 pm

Here you go..this is for last night today.

Image
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Feramoo
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Re: Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 8:56 pm

Oh and in case you did not know..if you wanna see the full image right click on it and open in new window.
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Julie
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Re: Not getting rest, exhausted and cant find out the problem

Post by Julie » Mon Mar 03, 2014 9:08 pm

At the moment, the system won't let me look at your first thread, so I can't see what mask you're using or anything else you talked about. Have you had bloodwork lately? A thyroid test? Any other medical check up that might explain what could be going on? There are other medical conditions that have nothing to do with OSA that can make you tired and you should be sure nothing else is going on.

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Pugsy
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Re: Not getting rest, exhausted and cant find out the problem

Post by Pugsy » Mon Mar 03, 2014 9:09 pm

You have the detailed graphs all zoomed in on a short time span and only the events graph is the whole night.
Can you get a detailed image without zooming in?
We only need these graphs
Events
Flow rate
Pressure
Leak

you can turn off the AHI graph in Preferences/graphs tab.
The other graphs can be resized a little to pull leak up into view.
Also include the daily detailed on the left..not the events total

So that your image looks like this one below

Also...meds? do you take any meds?

Image

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Feramoo
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Re: Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 9:11 pm

Julie wrote:At the moment, the system won't let me look at your first thread, so I can't see what mask you're using or anything else you talked about. Have you had bloodwork lately? A thyroid test? Any other medical check up that might explain what could be going on? There are other medical conditions that have nothing to do with OSA that can make you tired and you should be sure nothing else is going on.

I dont remember every figuring out the mask I use..and no not to recently but last time I was in I was healthy except for being a little overweight, no diabeetes, thyroid ect. I even started a new diet and exercise in Jan.
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avi123
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Re: Not getting rest, exhausted and cant find out the problem

Post by avi123 » Mon Mar 03, 2014 9:12 pm

I don't see anything out of the ordinary in these graphs.

Image

I am not familiar with pressure pulse.

About 15% of CPAPERS who are treated adequately have RESes (RES = Residual Excessive Sleepiness, during day times). Omitting Depression, Restless Legs, and Central Sleep Apnea Syndrome b/c of heart problems, the rate drops by half.

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Feramoo
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Re: Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 9:17 pm

Alright this should be how you want it right?

And no Medication at all.

Image
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Pugsy
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Re: Not getting rest, exhausted and cant find out the problem

Post by Pugsy » Mon Mar 03, 2014 9:28 pm

Your report doesn't scream out "fix me" and if this is typical for you then the reports aren't going to be much help. Nothing exciting there at all.

So then you get to start doing some detective work trying to figure out what else might be going on to cause you to not feel as good as the report looks.

So 7 to 8 hours of sleep each night....do you have many awakenings during the night for anything? If so, how many and for what?
Do you have pain issues?
Mask issues...comfort, etc?
Bed comfort issues?
Are you having extreme fatigue or daytime sleepiness (need to nap)? either one or both...they aren't the same thing.
Have you had hormone levels checked? If male...testosterone? If female..the usual and are you of menopause age maybe?

What makes you say you aren't getting rest? Is it related to overall sleep quality or just in reference to fatigue or need to nap?

Have you had Vitamin D levels checked? It's a blood test and is NOT normally included in the yearly blood work we might get with a physical. Thyroid tests are normally included but vitamin levels are not.

Do you have copies of your sleep studies? If not, get them. If you do, was there any mention about many limb movements?
What was your AHI initially without the machine?

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Feramoo
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Re: Not getting rest, exhausted and cant find out the problem

Post by Feramoo » Mon Mar 03, 2014 9:34 pm

Pugsy wrote:Your report doesn't scream out "fix me" and if this is typical for you then the reports aren't going to be much help. Nothing exciting there at all.

So then you get to start doing some detective work trying to figure out what else might be going on to cause you to not feel as good as the report looks.

So 7 to 8 hours of sleep each night....do you have many awakenings during the night for anything? If so, how many and for what?
Do you have pain issues?
Mask issues...comfort, etc?
Bed comfort issues?
Are you having extreme fatigue or daytime sleepiness (need to nap)? either one or both...they aren't the same thing.
Have you had hormone levels checked? If male...testosterone? If female..the usual and are you of menopause age maybe?

What makes you say you aren't getting rest? Is it related to overall sleep quality or just in reference to fatigue or need to nap?

Have you had Vitamin D levels checked? It's a blood test and is NOT normally included in the yearly blood work we might get with a physical. Thyroid tests are normally included but vitamin levels are not.

Do you have copies of your sleep studies? If not, get them. If you do, was there any mention about many limb movements?
What was your AHI initially without the machine?
I never awake at night.
No Pain
Mask and comfort are fine.
Bed is fine
Its while I am awake through the..well night I am a night person..but my eyes are heavy and I just lack any energy to get moving. Body is tired I am tired.
I never nap.
Male and yes that was before my cpap..it was a little low so I got hormone injections but we stopped because i didnt need them anymore and I was still exhausted. Thats when I got the cpap.
When i first get up after sleeping if eel pretty good..but then only a few hours later im fatigued and feel like ic ould sleep again.
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Pugsy
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Re: Not getting rest, exhausted and cant find out the problem

Post by Pugsy » Mon Mar 03, 2014 9:52 pm

How long have you been on cpap therapy?
What was your pre cpap AHI?
Did your oxygen levels drop much in your sleep study?

I understand waking and feeling "okay" and needing to nap in the afternoon...been there myself and even with near perfect reports.
It may just be a matter of time for the body to come around.

You are a night person? Does that mean your sleep scheduled time is delayed or is your sleep scheduled time all over the place...like 10 PM one night and 3 AM the next night?
There's a big difference between regular scheduled time and erratic time. Some people routinely go to bed at 3 AM and wake at 11 AM all the time.

I know we all want for the cpap machine to fix us so we wake up full of vim and vigor and feel like a new person but the fact is the cpap machine can't fix everything in the world that might cause fatigue or drowsiness.
cpap machines fix sleep apnea. If your symptoms are related to some other cause then the machine doesn't do such a good job fixing those no matter how much we expect them to.

Sometimes it just takes time and the improvements are so gradual that we can't really see them as measurable.
You have to use the machine anyway but you can use that time to explore other things which might be suspects in causing your symptoms.

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I may have to RISE but I refuse to SHINE.

Guest

Re: Not getting rest, exhausted and cant find out the problem

Post by Guest » Tue Mar 04, 2014 8:54 pm

There is scientific evidence that severe sleep apnea can cause brain damage to certain small regions of the brain that are associated with wakefulness and energy. If these regions are damaged, then the damage is permanent and excessive daytime sleepiness will continue even after starting CPAP. Unfortunately at this time there is no treatment. But continuing to use your machine will still do a lot of positive things for your body.

Feramoo wrote:
Pugsy wrote:Your report doesn't scream out "fix me" and if this is typical for you then the reports aren't going to be much help. Nothing exciting there at all.

So then you get to start doing some detective work trying to figure out what else might be going on to cause you to not feel as good as the report looks.

So 7 to 8 hours of sleep each night....do you have many awakenings during the night for anything? If so, how many and for what?
Do you have pain issues?
Mask issues...comfort, etc?
Bed comfort issues?
Are you having extreme fatigue or daytime sleepiness (need to nap)? either one or both...they aren't the same thing.
Have you had hormone levels checked? If male...testosterone? If female..the usual and are you of menopause age maybe?

What makes you say you aren't getting rest? Is it related to overall sleep quality or just in reference to fatigue or need to nap?

Have you had Vitamin D levels checked? It's a blood test and is NOT normally included in the yearly blood work we might get with a physical. Thyroid tests are normally included but vitamin levels are not.

Do you have copies of your sleep studies? If not, get them. If you do, was there any mention about many limb movements?
What was your AHI initially without the machine?
I never awake at night.
No Pain
Mask and comfort are fine.
Bed is fine
Its while I am awake through the..well night I am a night person..but my eyes are heavy and I just lack any energy to get moving. Body is tired I am tired.
I never nap.
Male and yes that was before my cpap..it was a little low so I got hormone injections but we stopped because i didnt need them anymore and I was still exhausted. Thats when I got the cpap.
When i first get up after sleeping if eel pretty good..but then only a few hours later im fatigued and feel like ic ould sleep again.

IheartCPAP
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Re: Not getting rest, exhausted and cant find out the problem

Post by IheartCPAP » Thu Apr 10, 2014 10:40 am

Is there any way to test for this brain damage?

I've examined my CPAP data with sleepyhead and all my numbers look good but I still wake up feeling terrible and feel "zoned out" throughout the day. Is it possible the CPAP itself impacts sleep architecture? Breathing forced air just doesn't seem natural. I don't have centrals, but would a BiPAP possibly help?

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