Take out the word "dysautonomia" and in its place put "migraines"... and your post could have been mine. I'm finding that doctors, including neurologists, have little patience for people with migraines. They say... here, take this or take that... just toss something out so that you will leave their office. One doctor said that headaches are all stress related unless you have a brain tumor or something like that.kaiasgram wrote:I've been on this therapy for a year and a half and I also continue to have terribly unrefreshing sleep. Like you, I've had tons of medical tests with no definitive results. And, like you, I do have a known medical condition (generically referred to as dysautonomia) but exactly how it might be affecting my sleep issues is very unclear. I too was anticipating some improvement in my health and physical feeling of well-being once I started on cpap, and I got my therapy dialed in very quickly to AHI's of .1 and .2, with frequent zeros, on a consistent daily basis. But a year and a half later I'm still utterly exhausted and have to push through each day.
I did find one doctor who thought he was very knowledgeable when it came to migraines. Put me on several meds which made me feel terrible and didn't help at all. When I mentioned these meds to my internist, she didn't agree with the meds the neuro had suggested and was very concerned about the dose he put me on. She took me off two, if I remember correctly, and lowered the dose of one. I felt better after that but the migraines didn't stop.
Snorkelpuss... I hope you get some answers. If you do, please pass them on.
